I am not my diagnosis.

While I continue to struggle to figure out Twitter, forget how to update my website, get confused while recording podcasts, consistently get my innumerable passwords mixed up, stay oblivious about Instagram and Snapchat, the digital world gallops ahead.

Digital Interventions in mental health Conference 2017 was recently held in London. It explored topics across psychiatry, technology and culture to identify innovative ways of addressing mental health needs.

Dr Becky Inkster is a Neuroscientist, passionate about digital interventions in mental health, social media data analysis, genomics, molecular biology, and neuroimaging. She co-founded Hip-Hop Psych as she is passionate about working with hard-to-reach, disadvantaged groups and youth culture.

‘Views from the street’, ‘Prison transition tools’, ‘Beyond the bullets’ and ‘The Digital Psychiatrist’ are some of the workshops that were conducted at the above conference. The range of topics was rather fantastic. It was aimed at improving our understanding of how social media is helping to create and facilitate new spaces for mental health practices and support, exploring the benefits of social media and social networking to improve a sense of identity, self-expression, community building and emotional support through examining a few popular international examples. Participants and facilitators engaged in interactive sessions to understand how new tools for self-expression via pictures, videos, captions and short personal narratives can help break down the stigma surrounding mental health and perhaps even lead to more people seeking help. They explored how to empower young people to use social networks in a way that promotes their mental health and wellbeing, how to harness the power of social media to nurture mental health innovations that the future holds.

Impressive stuff. I carry on doing what I do. I write another article for the Huffington post – Darkness to light. I talk about my darling Saagar and emphasise the importance of us, the people, educating and empowering ourselves so that we can help ourselves and each other through the light of knowledge and empathy. I continue to speak with ordinary people living extra-ordinary lives. Here is a conversation with Sara Muzira, mother of the beautiful Simba. Both, mum and son are artists. She talks about the state of inpatient mental health services in her experience and things that can be made better for patients and their families. Thank you Sara.

 

 

 

 

 

 

 

 

 

 

It takes a whole village to raise a child.

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When I was 9, a music teacher came home every Tuesday evening to teach me singing and Kathak dance. That was my favourite time of the week. One week I waited and waited for what seemed like a very long time but he did not come. That evening I had a very high fever and had to be taken to the doctor.  Last week I have been having a high temperature, a cough and a cold. Withdrawal?

Growing up in the UK’, a report published by the BMA in 2013 found that we fail many children and young people every year. 2.6 million children in the UK live in absolute poverty. Children are at higher risk of living in both relative and absolute low income than the overall UK population. 14% of the most severely materially deprived kids from 30 EU countries live in the UK – same percentage as Romania. The severe economic hardship from the 2008 financial crisis in the UK and consequent spending cuts have been disproportionately detrimental to children, young people and low income families, particularly those who were already at a disadvantage such as migrant children and lone parent families.

‘We like to think of ourselves as a child-friendly society, but the facts do not support that comfortable, complacent assumption’  – James Appleyard, treasurer of the BMA.

Nelson Mandela said: ‘There can be no keener revelation of a society’s soul than the way in which it treats its children.’

According to the World Happiness Report 2013, Dutch kids are some of the happiest in the world. Here are a few possible reasons. Dutch parents are the happiest people. Dutch Mums have found the perfect work-life balance with 68% of them working part time, 25 hours per week or less. They don’t care so much about being charming or about how they look. Dutch dads are more hands on and play a large role in child care. Many of them also work part time. Dutch kids feel no pressure to excel at school. They have no homework before the age of 10. There is no competitive university application process. They can simply attend school for learning rather than competing in academic performance.

The Dutch breakfast mostly consists of a slice of white bread with butter and chocolate sprinkles on top. The United Nations called it healthy. What makes it ‘healthy’ is that breakfast is taken as a family every morning. The kids have a right to express their opinions as they are meant to not just be seen but also heard. Grandmothers have an active role in bringing up the grandkids and that has a huge positive impact on the kid’s self-esteem. The Dutch government gives money to families to help with expenses. People, including kids safely cycle everywhere. A huge emphasis is placed on ‘gezellighied’, a concept of pleasant togetherness that is more bracing than coziness and more exciting than contentment. ‘Gezellighied’ is an untranslatable Dutch word. Its closest meanings are convivial, sociable, fun, nice atmosphere resulting from general togetherness of people giving rise to a strong sense of belonging and a warm feeling. People work hard to bring this into their everyday family lives.

Why do we fail so many kids in our country?

Politicians make blunders because they surround themselves with like-minded people who are completely disconnected from the general populace. There is a failure in advocacy for children. As a society we need to examine and change our attitudes towards the importance of children. Mentally and socially some people manifest a bunker and silo attitude leading to isolation and exclusion. We need to create nurturing communities locally which could be based around the arts, music, exercise, spirituality, sports, play groups and after-school clubs.

Families, government and education policies and practices need to emphasise the importance of creating nurturing environments for kids.

 

Day 1000

Living on the blurred line between reality and illusion.
Tasting the bitter-sweetness of all things.
Moving from the world of words to no words.
Letting the silence listen and speak.
Pure experience. It’s like this. This is how it is.
All existence in one realm. One love.
Death, the great leveller, swallowing all pride.
‘Forever’ sitting within the fold of Now.

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Mystic Love

When I seek peace, he is
The kindly intercessor,
And when I go to war,
The dagger, that is he;
And when I come to meetings,
He is the wine and sweetmeat.
And when I come to gardens,
The fragrance, that is he.
When I go to the mines, deep,
He is the ruby there,
When I delve in the ocean,
The precious pearl is he.
When I come to the desert,
He is the garden there.
When I go to the heaven,
The brilliant star is he…
And when I write a letter
To my beloved friends,
The paper and the inkwell,
The ink, the pen is he.
And when I write a poem
and seek a rhyming word-
the one who spreads the rhymes out
within my thought is he!
– Rumi.

Day 999

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The G Word

Grief is the normal and natural reaction to significant emotional loss of any kind. Grief is the mixed bag of conflicting feelings caused by the end of, or change in, a familiar pattern of behaviour. Grief is the feeling of reaching out for someone who has always been there, only to find when you need them one more time, they are no longer there.

The following statistics are heart breaking and could be avoided in many cases. Over half a million people die in the UK every year with an average of 5 grievers per death. That’s 2.5 million new grievers each year due to a death. Over 250,000 grievers per year due to divorce. This figure does not include the children grieving this significant loss. 25% of children in the UK are in single parent families1. By the 10th anniversary of moving in together just under 4 in ten couples will have separated. A Harvard study has found that when a husband or wife dies, the remaining spouse’s risk of dying is 66 per cent higher in the three months after their partner’s death.

Unresolved grief is everywhere.

Common myths about grief:

1. Time heals: Time does not heal. Time is an abstract concept – a unit of measurement that has no healing power. We know people who have waited 10, 30 or 40 or more years to feel better. However actions taken over time can heal.

2. Grieve alone: Often this advice is subtly implied “just give her some space” or “he needs a few minutes alone in the other room”. As children we learn that this means sad feelings should be hidden or experienced alone.

3. Be strong: Usually the griever is asked to be strong for others. “You have to be strong for your wife/Mum/children”

4. Don’t feel sad: This is usually followed by an intellectually true statement that is emotionally useless to the griever. “Don’t feel sad, his suffering is over” or “Don’t cry, at least you had him for 20 years”

5. Replace the loss: This is really common with pet loss or the end of a romantic relationship. “We’ll get you a new dog” or “there’s plenty more fish in the sea”

6. Keep busy: “If I just keep busy I won’t have to think about the loss”. This one is sad because some people spend their whole lives with this mentality and never get the chance to grieve and complete what was unfinished with the particular loss.

The G word – Guilt.

The word “guilty” is often used by a griever.
Griever: My son died alone, I feel so guilty.
Grief Recovery Specialist: Did you ever do anything with intent to harm your son? Griever: No, of course not (This is an almost universal response)
Grief Recovery Specialist: The dictionary definition of guilt is “intent to harm” and you didn’t do that. You are devastated enough by his death, please don’t add to it an incorrect word that distorts your feelings. Would it be more accurate to say there are things you wish had been different, or better or that you’d done more of?
Griever: Oh yes!
Source: ‘Guide to loss’ , 61 tips on grief:  free download from http://info.griefrecoverymethod.com/mainpage-ebook

Day 998

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Good fortunes.

Today is your lucky day.
She says, ”Why not?”
The traffic cop is sleeping.
Everyone assumes you were just kidding.
You’re upgraded to first class.
Your client is even later for the meeting. Bingo!
You got the good genes.
You win the lottery(and haven’t lost the ticket).
Surprise. It’s on sale!
It’s sunny at Wimbledon.
You bet on the wrong horse, which wins.
Blackjack. It goes in.
The test is negative.
You find 100 pounds in your old jeans. You’re OK.
Your mother-in-law is really cool.
You guess right.
There is no traffic.
You are the millionth customer.
You are proven innocent. Near miss.
Refund. No one got hurt.
You find your cell-phone.
Your kids are healthy.
They accept your ridiculous offer.
The one you love, loves you back.
Your dead, really rich uncle really really liked you.
You have a sense of humour.
It’s just a mole.
No one ever finds out.
Tomorrow will be even better.

  • By John Nieman

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Day 997

Moving home

The experts on the gardening programme  on the radio said that repotting is traumatic for plants. I had never thought about that before. Should it be any different for children and families moving house?

By virtue of my dad’s job, we moved more or less every 2 years. Some of the places we lived in are not easy to find on the map of India. I completed 12 years of schooling in 8 different schools in India. It was normal to be the new girl in class. We went to schools that catered to families that moved frequently. So, often there would be other new kids in class too. It was heart-breaking to leave friends just when our friendships were deepening. As time went on, it became a part of life and although it was sad, I could handle it much better. That was partially because I altered the quality of my relationships. I didn’t allow them to get too deep. I protected myself by holding back a bit of me for myself. That bit would always be safe. I didn’t know I was doing it then but I see it now.

The cycle repeated itself with Saagar. The difference was that he travelled outside India to places where he would be the only coloured kid in class, where they spoke a different language in a peculiar accent, where he had no close friends or extended family, where it was normal for people to live all their lives in one place and be buried in the cemetery two streets away from their primary school.

Grief can come in intangible forms – loss of trust, loss of innocence, loss of safety, loss of childhood, loss of control and loss of faith.  A 2010 study of 7,000 American adults found that the more times a person had moved house in childhood, the more likely they were to report lower life satisfaction and well-being, irrespective of their age, gender and education.

Reasons, timing and location matter. The good news is that something can be done about it.

Day 996

 

Tying the knot

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Today my friend and her fiancé tied the knot. 2 individuals and families came together and entwined their love and destinies forever. The sun and the flowers smiled as they poured out blessings. The fragrance of jasmine flooded the air as the pretty little white flowers adorned the hair of most women present. Chanting of Sanskrit verses in a rhythmic baritone meter sanctified the atmosphere. The fire at the centre of the auspicious ceremony bore witness.

The sights, sounds and smells conjured up images from the past. The food and music. The silk and gold. The gifts and festivities. The smiles and promises. The coconuts and beetle-nuts. The salutations and offerings to deities. The hopes and dreams of lifelong friendship, companionship, health, happiness and prosperity. Mischievous traditions of the bride’s friends hiding the bride-groom’s shoes and little competitions between the bride and groom. A reminder of times and people gone by.

In the last 2 years and 9 months I have turned down three wedding invitations. Couldn’t face the thought. Today was the first. It was good.

The last wedding Saagar and I attended was in September 2012. We drove to a small village near Brighton on a very wet day. Our Tom-tom took us to the middle of a field and declared, ‘You have reached your destination’ . We had to laugh. We drove up to the nearest set of houses, knocking on doors of complete strangers to find out more. We finally got there. It was great!

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