Feathers etc.

10 weeks back I was surprised to find an all-day course in ‘Mindful Self-Compassion’ for Health Professionals advertised on the Trust intranet. It sounded great and it was for free. Wow! We are recognising the pressures on health care professionals and moving slowly but surely in the right direction. To organise a course like this and make it available to all staff at no cost is nothing less than super-fantastic.

I enrolled instantly and waited patiently for the day to arrive. The day arrived.  I entered the room to find all these items scattered neatly around the room: a bowl of smooth tactile pebbles in purple, maroon, white and yellow, little bottles of lavender and vanilla extracts, fantastical eye-catching postcards, maracas and manjiras, a white rosary in a tiny wooden box, sketch pads with charcoal tree sticks, a bunch of sea shells, sprigs of fresh rosemary and mint, a dried corn on the cob, a few white and brown feathers, a spongy red ball and a spiky yellow plastic one, a tiny hand-crank music box and an hour-glass with pink sand. These things were for us to appreciate, touch, feel, smell and listen to.

Two gentle young women led the day taking great care of everyone in the room and in complete harmony with each other. We started with a ‘soft landing’ – becoming aware of our feet on the floor, bum on chair, our breath and our finger tips. They called these short snatches of peace, the ‘green moments’. We were encouraged to create/access these green moments to transition from seeing one patient to the next or from work to home mode and vice versa.

The word ‘discernment’ was brought into my awareness. While the dictionary meaning of it is “the ability to judge well”, we were encouraged to scan our thoughts and ‘notice what’s not helpful’. It was a useful concept. It helped me locate stuff that was unnecessarily cluttering up my mind and blocking light from entering this sacred space.

I remembered that as a teenager I had a big scrap book filled with my collection of feathers of all kinds, my favourite being the peacock feather. Where did that dreamy girl with 2 pig-tails go?

For a while I could hold the little girl in me lovingly in my arms and marvel at her innocence and beauty, appreciate her child-like sense of wonder and creativity. This sweet girl is me. Perfect and complete in every way. All she needed was to be seen. By me.

Caring with compassion for you and me.

No shame. Just love.

Last week I met Matt. A young man, calmly determined to share his story and open up a rainbow that would envelop the world and knit it closer together. A story of a glorious love, a damning shame and a tragic unnecessary death.

Matt and Naz met in Birmingham in the year 2000 and instantly fell in love. Matt Ogston and Dr Nazim Mahmood. Both men. Men in love. They tried having a relationship in that city but knew that if they wanted to live like normal people doing normal things, they’d have to move away. So, they did. Over the next 13 years they built and lived a fulfilled and happy life together in London. All this time they managed to hide their gayness from Naz’s family as it was guaranteed to create unhappiness.

One weekend Naz needed to go back to Birmingham for a family event. The question of his sexuality came up and he spoke the truth. As expected, his family reacted badly. He was told that he was living in ‘sin’ and his ‘condition’ was treatable. I cannot imagine how he must have felt. Deeply humiliated I guess. That day he must have known that now, he could never be the man he was born to be. His love for his fiancé would always be seen as sin by others he deeply loved.

He returned to London. To Matt. Two days later he ended his life.

In his utter devastation, Matt found the determination to do what he could, to stop religion from getting in the way of love. He set up the Naz and Matt Foundation.

“Our mission is to never let religion, any religion, come in the way of the unconditional love between parents and their children.”

At 15.

Cricket in the summers and badminton in the winters. That’s what Saagar chose to play during his school years. He was good at both and wanted to be better.

I often went along to watch him play, even though I didn’t appreciate all the technicalities of either game. One evening we gathered in the Sports club to watch him play. I noticed that every time he missed a shot he hit his right leg hard with the badminton racket gripped in his right hand. That must hurt. I didn’t understand. It distressed me. I spoke with him later. “It’s only a game, darling.”, I said. He kept quiet, neither defending his action, nor arguing with me, pointedly focussing on the piece of ground hit by his obliquely downcast eyes.  In him I saw a boy in pursuit of perfection.

Out of the blue he broke up with his lovely girl-friend of 7 months. That too on Valentine’s Day. His first love. Sweet and innocent. On being asked why, he said, ”It’s boring.” Soon after, late one night I gleened tears in his eyes as he hugged me, pretending not to sob. In him I saw a boy, trying to be a man. Oh! The pains of growing!

After a night out with friends, one weekend I noticed a cluster of 3 pea-sized fresh burn marks on his right forearm. Horrified, I asked what happened. He said it was a dare. A few of his friends were being goofy and challenged him to hold the burnt end of a cigarette on his skin and he did. He laughed as if it was a joke. I didn’t know what to make of it. How could this bright kid with an astute sense of right and wrong be talked into this kind of silliness? In him, I saw a boy trying to fit in with his peers.

Was there more to see? Did he tell me everything or just what he thought I could handle?

Uganda Diaries

Frantically searching for an important document, I rummaged through all my papers up and down the Study. My mind can’t be trusted with anything anymore! My memory is shot. I exhausted myself and all my options. Over a cup of tea, I thought about all the places I had not looked through. A box full of Saagar’s books and diaries. I never read through any of his personal stuff. But that day, before I knew it, I had read all his musings from his travels to Uganda with a friend. They were there for 2 weeks to help at a local school supported by their College.

It seems when he was struggling, he wrote. Like me. He wrote exactly as he spoke, leaving some words half said and stretching out the first letter of unspeakable words. His diary was reading itself to me in his voice. I felt like he was in the room. I was an intruder. It wasn’t my place to read it. It was personal to him. But it was also my conduit to him even if it was written 27 months prior to Day 0.

It was clear that the boys were totally unprepared for the massive change. This is the note from his last day there.

30/7/2012. 2300 hrs.

“Never before have I been able to say the words “I want my mommy!” with as much certainty as now. This sucks ass. I feel like such a pathetic little shit. I hope missing Mother is no more than a manifestation of homesickness.”

A deep feeling. Then a judgement. Then an admonishment and then a substitution. A minimization. A classic example of a young man being brutally unkind to himself even though he is suffering. Being a ‘man’. Not allowing for any fragility even in the face of a harsh reality.

Fact: He missed me. Thinking of me brought him comfort. I have evidence.

How could I ever doubt that? By judging myself too critically. Why do we do this to ourselves?

That was a beautiful gift from you to me on your birthday my son. 25th birthday! Bless you my love.  

Mum’s the problem.

Recently I have met a Professor of Psychotherapy, a Consultant Psychiatrist and a GP – all parents of children lost to mental illnesses. Here’s what one mum says:

“Whenever I have seen a therapist, they have gone straight to my childhood, my up-bringing, my parents and their parents. All my behaviours and feelings seem to be explained and understood based on their behaviours, however ‘normal’, for their times. I am encouraged to think of all the ways in which they could have directly or indirectly damaged me.

By that principle, all of my child’s behaviours and feelings should be explained and understood based on the behaviours of his parents. Half of them is me. I agree. I must be part of the problem. My profession is perceived as a bigger problem. ‘High achieving Asian’ parents are assumed to put a lot of pressure on their children. So much so, the medics looking after him didn’t even need to meet me or know the quality of our relationship to be certain that my job makes me a bigger problem than most other mums. They could squarely put the blame on me and actively keep me out of the picture. I asked too many questions. I was the biggest problem. They wrote it in their notes.

However, that does not mean that I cannot be part of the solution. NICE guidelines lay out my role beautifully but do the people on ground read any of these guidelines? In my experience, not. If half of all that is written in Policies and guidelines was implemented, families could engage meaningfully in helping their kids recover.”

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Ref: https://www.nice.org.uk/guidance/cg185/chapter/1-Recommendations#recognising-diagnosing-and-managing-bipolar-disorder-in-children-and-young-people-2