Out of office reply.

Who we are doesn’t always show up in the way we do things. Something holds us back from bringing our unique gifts to the world. In my case it has been the fear of being judged as too soft, too loopy. We end up being like (read ‘as boring as’) everyone else. May be they are terrorised by other’s judgements too. Best to stick to the narrow and straight.

Yesterday, the e-mail below bounced into my inbox, all purple and pink in Comic Sans MS. It was such a refreshing change from the bland factual one-line out-of-office replies, that I had to share it here. He spoke the same language as me and so unreservedly. Being himself fully.

The mission statement of the Co-production collective he leads is : “Our vision is a world where diverse knowledge and experience are recognised and valued in the co-production of research, services, and policy development.”

Indeed, changing the world, one connection at a time. Not losing a single opportunity to connect. Not even an e-mail from a stranger.

šŸ’› Hello lovely,

Thank you so much for your email.

I’m really grateful you’ve taken the time to get in touch.

If you’ve emailed me, it’s probably because something matters to you. Please know that it matters to me too.

I just wanted to let you know that I may take a little while to reply.

I live with a number of long-term health conditions, so I’ve learnt that I need to be intentional about how I use my time and energy. Some days I’m happily working away with a cuppa by my side. Other days, my laptop stays closed while I take the time I need to rest, recover and simply be.

That hasn’t always been easy.

For a long time, I thought I had to keep pushing, always be available and put everyone else first. I’m slowly learning that rest isn’t something we have to earn. Looking after ourselves isn’t selfish. It’s what helps us keep showing up for the people and things we love.

šŸ“§ I aim to reply to emails within three working days, although occasionally it may take a little longer if my health needs to come first.

🚨 If your enquiry is genuinely urgent, or you’ve not heard from me after a few days, please contact my wonderful PA at pa.isaacsociety@gmail.com, who’ll be happy to help or make sure anything important reaches me.

🌿 Before you go, here’s a few gentle reminders, for both of us.

šŸ¤ You don’t have to earn your rest.

🌱 Healing doesn’t always mean doing more. Sometimes healing looks like slowing down.

šŸ’š Your worth has never been measured by how busy you are, how many emails you answer or how much you achieve. You matter simply because you’re you.

āš–ļø A kinder world starts with how we treat each other, but it also starts with how gently we treat ourselves.

ā˜• So, if you can, put the kettle on. Step outside for a few minutes. Listen to the birds. Hug someone you love. Cuddle a pet. Sit in the sunshine. Read a few pages of a good book. Have the nap. The emails will still be here when you get back.

If today feels heavy, I hope you know you don’t have to carry it on your own. Reach out to someone you trust. Speak to a friend, a family member or someone who can be there with you.

If you’re in the UK or Ireland and you’re in emotional distress or crisis, you can contact Samaritans any time, day or night, by calling 116 123 or emailing jo@samaritans.org. You don’t have to be suicidal to get in touch. Sometimes we all need someone to listen.

Thank you for your patience, your understanding and your grace. It means more than you know.

Take gentle care of yourself.

With love,

Isaac Samuels OBE
Social Change Leader
Changing the world, one connection at a time.

šŸ’š “Be gentle with yourself. The same compassion you so freely give to others is something you deserve too.”

I have aged sixty years.

I have aged sixty years.

And become the notebook lady.

The orange moleskin is the Core notebook that goes everywhere with me. Its orange strings mark the current pages. Our most recent meetings were numbered 112/146 (Wed/Sat). In all, we’ve met 258 times. Can you believe it?

The bright yellow A4 Ryman ruled book is for Morning pages. Recently I found a receipt in German for 2 coffees and croissants from Frankfurt airport from mid-July this year.

The pliable green Matthew Williamson one with peacock feathers printed on it houses my poetry collection. It has no strings, but a dried maple leaf lives in there, being Autumn, absorbing poems.

The hard-bound thick one with zig-zag pastel shapes on it contains my Solution-focussed Brief therapy notes. I bought it from a Tibetan monk at Namdroling Tibetan monastery near us. A postcard with the picture of a smiling Dalai Lama reminds me to smile and stay warm-hearted. His Holiness addressed the youth recently and said that being warm-hearted is as important as education, if not more.

The green and blue one notes the developments on our farm. It begins with tree-planting plans and recently I have started jotting down some ideas for the interiors of our house at the back of the book. A thin plastic ruler marks the page presently relevant.

The old brown one assembles notes on writing in the first half and old song lyrics at the back. This morning I found a white, brown and blue feather tucked into it. It comes from a previous life in which I once went for a walk in Dulwich park with my son. A feather sparkled at us both, lying on the edge of the lake. One of the ducks must’ve dropped it. I must’ve picked it up and brought it home.

That was a good life. He was there.

This is a good life. He is here.

I have aged sixty years.

My notebooks are my joy and my treasure. Even though they make my suitcase very heavy, they go travelling with me.. I am learning to enjoy what I enjoy and share what I learn.

Enjoy what you enjoy and share what you learn.

Times six.

Two summers ago, on a dry Saturday morning in London, Si and I set out for a walk. We headed to our local park, Streatham Common. As we took a turn into the Rookery, we noticed a young man sitting on the third step of the wide, well-trodden staircase descending towards the South-East. He held his bent head in both his hands.

An invitation.

I took a deep breath, softly stepped up to him with a ā€˜Hi. Good morning.’ He slowly raised his head and mirrored back my faint smile. None of our smiles reached our eyes. They were not real yet, only polite.

We got talking and forgot about the walking. Miles was in his late thirties, a father of two. He had been unable to work for a few months because of disabling symptoms that suggested something like Chronic Fatigue/ ME/ Long Covid. Of late his stress levels had rocketed as his employer had started suggesting ā€˜malingering’ in his letters. Even though his GP understood and validated his medical condition, his employer showed no understanding.

We gathered for coffee in the park on two more occasions that year. We enjoyed our chats, kept in touch and met up regularly even though not frequently. This year, he tells us he has been dismissed from his job after a ā€œfair processā€ for ā€œgross misconductā€ for being physically and mentally unable to work. Gross misconduct includes physical violence, theft and fraud, intoxicated while at work and similar serious offences.

A study at King’s College London looked at the causes of death in 2000 patients with CFS/ME conducted over the years, 2007-2013. A total of 17 patients died in that period – eight died from cancer, five from suicide, and four from other causes. When compared to the general population, less than one suicide would be expected in a study population of this size. Yet five deaths by suicide were recorded. This means that, after controlling for age and other factors, the rate of deaths by suicide in this study was approximately six times higher in people with CFS than in the general population.

The reasons for this vulnerability are – poor quality of life with no hope for relief, loss of employment, finances, and/or relationships, chronic pain, secondary depression, and other associated mental and/or physical illnesses.

Miles felt he was losing his sense of self as a capable human being with integrity. People didn’t always believe or understand him. Maybe he is what they called him, a malingerer. This is hard on his family, but they support him all they can. The kids are delightful. He still has good days and bad, still has serious brain fog he cannot work through sometimes, still can’t do much but he tries his best. He carries a lot of shame for this thing that happened to him. He feels trapped.

No tests can prove his diagnosis. No definitive treatment is available yet.

Resource: Action for ME: https://www.actionforme.org.uk/

Room With a View in Santiago


The old city shutters stood open.

Not to admit the world, for the world was already here; only to let it drift through old granite, through warm air, through the afternoon.

Below, children called, trolleys rattled over stone, shopkeepers laughed, voices crossed and uncrossed like birds above a square.

Nothing argued. Nothing needed to win. The street was not divided.

Beside me, a small dog claimed a borrowed mat with complete confidence that love had already prepared it.

I thought of my son.

I thought of all that seems absent, and of all that love refuses to call lost.

The heart did not deny its longing. The afternoon did not deny its peace.

Neither excluded the other.

Then, without announcement, a smile from a waiter, a bowl of water that had not been requested, churros that had not been ordered, a kindness that carried no invoice.

And I understood, if only for this hour,
that there are moments which cannot be bought because they were never for sale;

moments which cannot be earned because they were never wages;

moments which ask nothing except that they be allowed.

Nothing was missing.

Nothing was excluded.

Nothing was demanded.

Nothing had to justify itself.

The 5pm cathedral bells found their place among the voices, and nothing was disturbed.

Time found its place without disturbing the timeless.

The voices still rose from the street below.

The light still rested upon the granite.
The dog still slept.

Love still loved.

And for this afternoon,
everything already was.

  • By a dad at CORe at the end of his pilgrimage, Camino de Santiago.

The garden

No home to return to this time. A few months ago, we were feeling un-anchored while planning our upcoming summer-break in the UK. No home to return to this time.

I sat down, thinking, this was a chance to make a home in another part of the UK for a few weeks, wondering where that might be. By the sea. Somewhere quiet and quirky, not-too-long a train-ride from London. Devon! We’d spent a delightful few days with friends there  last year. I looked up houses for short lets and a cabin appeared. It was available for the duration. It was solely solar powered with a good fridge-freezer and all amenities. Most of all it boasted of an array of outdoor spaces. The photographs were a feast. We booked it before it was taken. In our minds our holiday had begun.

On the day, our hosts were at the car park to receive us and help us with our luggage. They asked us if we knew the story of the garden on the clifftop, where our cabin was located. We didn’t.

Jason was an accomplished young geologist, working at a Diamond mine in Angola.

ā€œOn 8th November 1998, the Yetwene mine was attacked by rebels. Several of his colleagues were killed and Jason along with 3 expatriates and 5 Angolans were last seen being herded into the bush.  For many years the families were led to believe their men folk were alive.  What followed the disappearance of the men is a story still waiting to be told. When someone ā€˜disappears’ in such circumstances, it means there is no defined moment when ALL family members can accept the missing person IS dead.  Each person comes to accept that inevitability at different times, in different ways – and even then, there can be an extended period of time when you believe he’s dead but hope he’s alive.  Oscillating between those two states.  He must be dead, but he may be alive!

When the hammer fell signalling this plot was now the Pope family’s – it was an emotional moment for Nev and Alan.  Did it mean they both accepted their son was dead? (Sadly, the answer was ā€œNoā€.)ā€

Of all the places we could’ve landed up in, we are here, in a memorial garden by the sea, with the family of a young man who did not come home, a family that actively sought answers, remembered and talked about things and lives that matter.

Can anyone claim to know which is worse?

Knowing your son is dead or not knowing if he is?

This question is invalid as no one can judge any loss as ā€˜good’, ā€˜better’ or ā€˜worse’. I cannot know how Nev felt then and how she feels now. She cannot know how I feel. Sometimes I can hardly identify my own feelings. How can I claim to know anything of others? No one can. It may be a good guess but only in the head. Not in the bones, the middle of the chest. Not in the experience of the drag of gravity.

This is a joyful garden of fragrant pink roses and hand-made big-eyed metallic spiders, massive and tiny, dotted around. It has a playful feel to it. It is clearly, all about love.

If the path of grief is a loving humbling pilgrimage, this is a perfect shelter along the way.

(Resource: Circle of Remembrance – peer-led support groups for bereaved parents)