Young minds

Times six.

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Two summers ago, on a dry Saturday morning in London, Si and I set out for a walk. We headed to our local park, Streatham Common. As we took a turn into the Rookery, we noticed a young man sitting on the third step of the wide, well-trodden staircase descending towards the South-East. He held his bent head in both his hands.

An invitation.

I took a deep breath, softly stepped up to him with a ‘Hi. Good morning.’ He slowly raised his head and mirrored back my faint smile. None of our smiles reached our eyes. They were not real yet, only polite.

We got talking and forgot about the walking. Miles was in his late thirties, a father of two. He had been unable to work for a few months because of disabling symptoms that suggested something like Chronic Fatigue/ ME/ Long Covid. Of late his stress levels had rocketed as his employer had started suggesting ‘malingering’ in his letters. Even though his GP understood and validated his medical condition, his employer showed no understanding.

We gathered for coffee in the park on two more occasions that year. We enjoyed our chats, kept in touch and met up regularly even though not frequently. This year, he tells us he has been dismissed from his job after a “fair process” for “gross misconduct” for being physically and mentally unable to work. Gross misconduct includes physical violence, theft and fraud, intoxicated while at work and similar serious offences.

A study at King’s College London looked at the causes of death in 2000 patients with CFS/ME conducted over the years, 2007-2013. A total of 17 patients died in that period – eight died from cancer, five from suicide, and four from other causes. When compared to the general population, less than one suicide would be expected in a study population of this size. Yet five deaths by suicide were recorded. This means that, after controlling for age and other factors, the rate of deaths by suicide in this study was approximately six times higher in people with CFS than in the general population.

The reasons for this vulnerability are – poor quality of life with no hope for relief, loss of employment, finances, and/or relationships, chronic pain, secondary depression, and other associated mental and/or physical illnesses.

Miles felt he was losing his sense of self as a capable human being with integrity. People didn’t always believe or understand him. Maybe he is what they called him, a malingerer. This is hard on his family, but they support him all they can. The kids are delightful. He still has good days and bad, still has serious brain fog he cannot work through sometimes, still can’t do much but he tries his best. He carries a lot of shame for this thing that happened to him. He feels trapped.

No tests can prove his diagnosis. No definitive treatment is available yet.

Resource: Action for ME: https://www.actionforme.org.uk/

The garden

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No home to return to this time. A few months ago, we were feeling un-anchored while planning our upcoming summer-break in the UK. No home to return to this time.

I sat down, thinking, this was a chance to make a home in another part of the UK for a few weeks, wondering where that might be. By the sea. Somewhere quiet and quirky, not-too-long a train-ride from London. Devon! We’d spent a delightful few days with friends there  last year. I looked up houses for short lets and a cabin appeared. It was available for the duration. It was solely solar powered with a good fridge-freezer and all amenities. Most of all it boasted of an array of outdoor spaces. The photographs were a feast. We booked it before it was taken. In our minds our holiday had begun.

On the day, our hosts were at the car park to receive us and help us with our luggage. They asked us if we knew the story of the garden on the clifftop, where our cabin was located. We didn’t.

Jason was an accomplished young geologist, working at a Diamond mine in Angola.

“On 8th November 1998, the Yetwene mine was attacked by rebels. Several of his colleagues were killed and Jason along with 3 expatriates and 5 Angolans were last seen being herded into the bush.  For many years the families were led to believe their men folk were alive.  What followed the disappearance of the men is a story still waiting to be told. When someone ‘disappears’ in such circumstances, it means there is no defined moment when ALL family members can accept the missing person IS dead.  Each person comes to accept that inevitability at different times, in different ways – and even then, there can be an extended period of time when you believe he’s dead but hope he’s alive.  Oscillating between those two states.  He must be dead, but he may be alive!

When the hammer fell signalling this plot was now the Pope family’s – it was an emotional moment for Nev and Alan.  Did it mean they both accepted their son was dead? (Sadly, the answer was “No”.)”

Of all the places we could’ve landed up in, we are here, in a memorial garden by the sea, with the family of a young man who did not come home, a family that actively sought answers, remembered and talked about things and lives that matter.

Can anyone claim to know which is worse?

Knowing your son is dead or not knowing if he is?

This question is invalid as no one can judge any loss as ‘good’, ‘better’ or ‘worse’. I cannot know how Nev felt then and how she feels now. She cannot know how I feel. Sometimes I can hardly identify my own feelings. How can I claim to know anything of others? No one can. It may be a good guess but only in the head. Not in the bones, the middle of the chest. Not in the experience of the drag of gravity.

This is a joyful garden of fragrant pink roses and hand-made big-eyed metallic spiders, massive and tiny, dotted around. It has a playful feel to it. It is clearly, all about love.

If the path of grief is a loving humbling pilgrimage, this is a perfect shelter along the way.

(Resource: Circle of Remembrance – peer-led support groups for bereaved parents)

If not now, when?

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‘This is difficult.’

‘What I need is absolution.’

‘I don’t deserve it. I failed to be a good parent to my son.’

The subject of our meeting last evening was self-compassion, one of the recurring themes in the Circle of Remembrance. It was an opportunity to revisit the ways in which we can be our own best friend. As we have been encouraging the practice of self-compassion in the group for as long as we’ve existed, I assumed it would be an everyday practice for most of our members.

I was surprised to hear the above responses coming forth. The jaws of the beast of guilt must’ve loosened their grip on me.

Three years after Saagar’s death, I heard of ’Self-compassion’ for the very first time. My innate belief was that the only way to progress was to work hard, like the coachman whipping his horses to move forward. Finally, after having lost my marriage, my child and all pride in my professional achievements, I was learning.

Dissecting events from the past and looking at them under a microscope seemed pointless and silly. Still, I was doing it all the time. I had spent most of my life doing the things that I thought I had to do as opposed to the things that I wanted to. And it was never enough. There was always more that could be done. I was always inadequate.

When Saagar was six, I was working full time and studying for exams. When I returned from my Part 1 Fellowship exam, Saagar looked up from his toy helicopter and asked me, “Mamma, did you win?” I was unable to see this was a game, and I needed to enjoy it a little bit. In the middle of all the working and doing, I completely forgot to relax and look after me. I was unable to stop and reevaluate my priorities. This was normal. Everyone around me seemed to be in the same situation.

Through years of therapy, I learnt that I had been the unconscious creator of the jinn that kept me spinning, leaving little time to sit down, relax and have a heart-to-heart. I was invincible and so should everyone else be. Until now, the art of conversation was oblivious to me. I had never witnessed good listening, except in films. I listened to fix as that is what I was trained to do. Sitting around talking was not as credible as being busy, doing important things. That’s what I had seen and here I was, on repeat. But all these hours of sitting with the gift of my therapist’s listening had helped me turn to myself with empathy. Working through various threads of my life had loosened a tight knot. I was able to tease each thread apart and see it for what it was.

I learnt that I was my tyrant and my slave, pushed by the whip of time and pulled by the notion of success. Despite being determined to not become my ancestors, they were more present in me than I was.

Underneath that jumble, sat my grief, patiently waiting. As the thick oil-slick of self-ignorance thinned and washed away, I was able to grieve properly for the suffering and death of my child. A hundred tonnes fell off my shoulders and I bawled with relief – I was perhaps not entirely responsible. I was simply living by what I knew then.

I was worthy of my own kindness.

I deserved to be held gently by me.

In time, I might even forgive myself.

Possibly, even have compassion for me.

For all these years I had been trying my best to serve my patients and family from a punch bowl that had been empty. I couldn’t see this emptiness as I didn’t know what a full one looked like. In my home and work settings, self-sacrificing mothers and doctors were nobility. These ideals had seeped into me while I wasn’t looking. 

But now, thankfully, I could see that my bowl was empty.

I was going to polish it and replenish it gently.

If not now, when?

Life is about more than antiseptic wipes.

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If there ever was a reminder of my own disappearance, it is here. Right here, looking straight into my eyes. This line ends with me. No progeny. No genetic propagation. No continuation. No traces.

Lines on the surface of water.

This is a kind of liberation from the complexities of life, the noise and the karmic debts, whatever they might be. Nothing to give. Nothing to take. Simply another life, here and then, gone. After Saagar, the inevitability of my own demise is the most obvious fact. It doesn’t evoke fear or dread. Inescapable. It puts a smile on my face. Ah! To be human. What a ride!

 In the grand scheme of things, we are momentary bubbles riding on a wave, arising out of the ocean, assuming a separateness from its waters.

Grand and then gone. Like Saagar.

I see folks with long bucket-lists spending their days and nights doing soulless jobs, brothers defrauding each other for a possible gain, couples frantically buying houses in every city while the ulcers in their stomachs bleed and proliferate.

Sitting at the table next to me in a posh Bangalore café, a mother is fretting over the fact that her child doesn’t yet know the names of all the months in the right order and he’s already two years old. While I sip my coffee, I watch this young mum obsessively chase her son around the place with an antiseptic wipe, cleaning his hands, everything he has touched and is about to touch, repeating, January … February … March …

We’re crying for softness.

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(A tapestry by Sheila Hicks)

Threads. Blankies. Comforters.

If we let it, this hard world of sharp angles and square blocks, straight logic and serrated edges can seep into us and concrete us from the inside. That must not be allowed to happen as it may be impossible to undo.

We, tender-fleshed people, need cushioning. We, supple spongy beings, seek preservation through rounded, silky, fluffy coverings. Our need to be nestled with tenderness inside the pliable delicate tissue of another’s compassion is primal. It must be recognized as the ultimate necessity for living.

To keep softness alive in a world so harsh is the job at hand in this moment.

In any moment, ever.

Secretly we’re all yearning for something that is warm, welcoming, and soft. Born into the young arms of our mother, held against her soft chest, we’re rocked gently to sleep, patted rhythmically on the back and hummed to. Lullabies ringing and sleep half-arriving into this space of trust and love. Remember how easy it was to rest into it, knowing all was well and would be well? Let it be thus again.

“Life is better when you surround yourself with people for whom kindness isn’t a strategy, it’s a way of life.”