human rights

A missed opportunity.

Posted by

3

Never have I had so much time and predictability. Days have been rolling at a soft rhythm. This whole drama started nearly a year ago. What have I done with the advantages I’ve had? What do I have to show for it?

Nothing.

People have started new businesses, done a whole lot of voluntary work, written books, got fit, learnt to knit and sew and cook and all that jazz. I am just the same as I was at the start. Still subconsciously judging me based on my productivity. Old habits, like patterns that repeat themselves on an unending roll of synthetic fabric in a psychedelic print. I must admit there is a strange kind of gratification in that. Self-flagellation is a modern virtue.

One lesson we can learn from a dog – it never tries to be a better dog. It is fully accepting of itself. It has no concept of ‘self-improvement’ or ‘achievement’. It’s free of the notions of ‘self’. You might want it to be a better dog but as far as that sweet creature is concerned, it is purely its unadulterated self.

The world was given an opportunity to unite and it managed to cut itself up into even smaller bits – the ones who wear masks everywhere and the ones who don’t, the ones who think that vaccine is God and the others who don’t, the ones who drive beyond 5 kilo-meters and the ones who won’t, the ones who use public transport and the ones who don’t, the ones that can’t wait for the lock-down to end and others who can’t bear the thought of it ending. One side trying desperately to convert the other. The rich got richer and the poor got poorer. People went as far as snitching on their neighbours – all in the name of a greater good. Not really for themselves but for other people.

The list of criminal offences has more than doubled in this time while basic human rights have been trampled upon or willingly surrendered. Who would’ve thought that leaving one’s house more than once a day could be classed as a ‘criminal act’?

I suppose I can congratulate myself for staying out of prison for one whole year.

Felicitations dear World. You have just given birth to a baby religion.

Human rights issue – Families Matter

Posted by

2

Hundreds of times, in waiting rooms outside Intensive Care Units I have looked into the eyes of sons and daughters, spouses and partners of patients, held their hands and said, “We did all we could. I am so sorry for your loss.”

When Saagar died, no one looked into my eyes and said that to me. They had not done all they could for him. The hospital carried out a sham investigation, a futile exercise in ‘being seen’ to be doing the right thing.

The GMC found everything to be hunky dory. The doctors ‘looking after’ Saagar had done their jobs to perfection. Just too bad the patient was dead. They did not deem Saagar’s case worthy of an investigation. GMC’s role in its own words:

“We work to protect patient safety and support medical education and practice across the UK.”

The Coroner’s report shone some light on the holes in Saagar’s care. It clearly pointed out the things that South London and Maudsley (SLaM) Hospital got wrong.

  1. There was a general failure to identify the diagnosis on the discharge summary from the Home Treatment Team to the GP.
  2. There was a general failure to communicate thoroughly enough with the parents about the relapse symptoms, what to watch out for and where to go for help in the future.

Last June, I wrote to the CEO of SLaM, requesting an update on the changes that had been made in his organisation in response to the Coroner’s findings above. He said someone would get back to me and I heard nothing. This June, I sent him a reminder and again he said someone would get back to me and I am still waiting.

What are my rights as a parent? Is this too much to ask?

What were Saagar’s rights as a young man with a mental illness?

Are our lives not as important as anyone else’s? Black or white or brown? With Cancer or Diabetes? Or Bipolar Disorder?

Everyone deserves to be heard and seen. With respect.

It’s not charity. It’s a human rights issue.

Ref: Learning from deaths: Guidance for NHS trusts on working with bereaved families and carers