Mental Illness

I fold.

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My latest love is folding. The act of arranging a piece of paper or cloth in a way that it occupies less space and looks neat. Layering one part of it on top of another to make it compact. Apparently, molecules, tents, parachutes, rocks and beds fold too. But I am more inclined towards an un-stitched piece of material. Bed sheets and towels are my favourites but I don’t mind table-covers, handkerchiefs and face-towels.

Firstly, it’s the subtle fragrance of moist lavender fabric conditioner, still fresh from the wash. When I open my arms out wide to hold the margins, the top edge rises right up to my nose and the aroma gets right inside my head. Exhilarated by that, my fingertips follow the margins to find the corners. Sometimes the rim curls up on itself and needs to be straightened, patted back repeatedly on a flat surface. The corner often falls to the floor and it takes a deep forward bend to lift it up. These are the in-built stretching advantages for the upper and lower body.

The corresponding corners are brought together and the first large fold created which gets progressively smaller with every corner alignment, until I have a beautiful stack-able rectangle in my hands, ready to land on its shelf in the airing cup-board along with and on top of its contemporaries in white, blue, orange and green. If dried on a clothes-line, it doesn’t need ironing. That’s the energy saving advantage.

Folding a sari is an art-form. I learnt it from my mother. Here, the mouth and teeth assume an active role. The sari is an un-tailored stretch, at least six yards long and about forty-two inches wide. Before anything I need to ensure that I have a bed nearby so that I can lay the length of the material there while I work on the edges and corners. After figuring out which horizontal edge is up and which surface goes on the outside, I start from the top left corner. The rest of the routine has to be witnessed to be believed but it’s the middle point on the top edge of the sari that has been folded twice over that is held between the incisors for a short time. The silk ones have a habit of going all askew if not held and laid perfectly and lovingly flat. A real treat for the hands and arms.

Oh. The satisfaction. I wish all the ruffles and crinkles of the world could be folded neatly away and patted out with warm hands.

Yesterday I found myself putting away a pashmina that I had used once since it was dry-cleaned. In default mode, I was making the folds along the same lines, in the same direction as the dry-cleaner had done. It was strangely pleasurable and worrying.

Wonder where this new love of mine will take me.

Random stuff

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After many years, things are being taken out of cup-boards and off shelves, turned inside out and properly looked at. Dusty books, clothes, folders, boxes and sachets. Some familiar fragrances are escaping and some old scenes are playing out on the screen of the mind. Bits of stuff slipping out of other stuff and falling to the ground with a clink. Some stuff that was believed to be misplaced is being placed. Some that was believed to be forgotten is being revisited.

Sample 1

A nappy pin. Special feature – A white safety cap to prevent accidental opening up while the baby has his cloth nappy on. Commonly used in India and other developing countries. Original owner: Baby Saagar.

Sample 2

A business card. Special feature – Simplicity. An invitation to music and joy. Original owner: Saagar.

Sample 3

A Crisis Plan. Special features – Not worth two pennies. Highly ineffective. Not accompanied by a conversation. No detail. Not individualised. Not created in partnership with the patient. Not an alive document. Does not mention anything more than ‘self-harm’. Doesn’t tell us what ‘Crisis’ looks like. Doesn’t identify any helpful distractions, activities, friends or family. Doesn’t appear to know the patient, for example, a key fact – does this person have a key worker? Does not express any understanding or compassion.

Commonly used in developed countries.

Oops! The name of the GP surgery is visible. It doesn’t matter. It closed down years ago. We were it’s last few unlucky patients. Owner: Saagar Naresh (1994-2014).

(Resource: Safety Planning is essential to safety: https://stayingsafe.net/home)

Home

Borrowed light

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It sits on my shoulder like a monkey. Annoying. I’ve had a long day, I say. Go away.

It pulls my right ear and searches for lice scrambling all its fingertips over my scalp, irritating as hell. There are none. Get lost. I am not a child.

I’m losing it. The moon is winning.

Proud of its super-fullness. It is evil. The tides it excites, the fights it ignites, the way it bends minds, the resting foetuses it pulls into this cruel world, stealing sleep from the depths of the night. Milky and serene on the outside, within a serious trouble-maker resides. Hurricanes, tornados and earthquakes it invites.

You’re an imposter. I see you. A big black rough rock with nought to your name. No water. No gravity. No air. Certainly, no light. This thing you proclaim as your own is in fact not so. We all know. It belongs to the star called Sun. The one that gives life. Not you. That’s the real star. You, a mere appendage, borrowing importance, gloating in your pretend beauty, cycling and circling with poor intent.

You’re no good to me. Go away. You bad bad moon.

Thank you for noticing.

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She was listed for a minor surgical procedure on my list. I called out her name in the waiting area and escorted this pleasant, middle aged lady into a cubicle for her pre-anaesthetic check-up. We both sat down at right angles to each other. She had an unmissable racoon’s eye on the right side of her face. I looked again. Just to be sure. It was there in its fading pinky-blueness. She was in hospital for a totally unrelated reason but I ventured into asking, “What happened here?” pointing to the eye.

‘Oh. I had a run-in. Couple of weeks ago.’

“A run-in with what?”

‘You know … It’s okay. I don’t want to talk about it.’

“Have you spoken to anyone about it?”

‘Yes. I am okay. I really don’t wish to speak about it.’

“That’s fine. How are you doing today?”

We went ahead, staying focused on preparing her for the upcoming procedure.

I took a moment to call the Safeguarding department of the hospital. They said that it was normal for people suffering abuse, to not talk about it for a long time. They advised us to signpost her verbally. A written set of resources might make her more vulnerable, if discovered by the wrong set of hands.

Two women are killed by a partner or former partner every week in England and Wales.

One in five people suffering domestic violence will plan or attempt to take their own lives.

One in eight of all female suicides and attempts in the UK are due to domestic violence and abuse. This equates to 200 women taking their own lives and 10,000 attempting to do so due to domestic abuse every year in the UK. That’s nearly 30 women attempting to complete suicide every single day. 

Men endure domestic abuse too. This can include physical violence, as well as emotional and psychological bullying, sexual violence or financial control and abuse. 

It is living hell. An invisible prison. Isolating, with no one to confide in.

It takes great courage to speak. It’s often ignored. Many suffer in silence.

Survivors do come in contact with health and social services but disclosure is difficult.

If done right, it is life changing. Appropriate response is invaluable.

Front-line staff must recognise signs and highlight issues.

It is important to ask and act.

After her procedure, I went to see her in the Recovery room.

“Have a nice evening.” She said. “Thank you for noticing.”

Resources:

https://www.rcn.org.uk/clinical-topics/domestic-violence-and-abuse/general-resources-and-support

https://uksaysnomore.org/get-involved/ask-for-ani/
https://www.mankind.org.uk/help-for-victims/types-of-domestic-abuse/

No words.

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Two years back, it could not be screened as scheduled. After a long wait, last weekend it was, at Clapham Picture house where Saagar often went with his friends. People came from Leicester, Salford, Cornwall, Cardiff and Birmingham. Some, I had only ever seen on screen. Others, when they were school kids. They brought their sisters, spouses, friends and colleagues. They stayed for hours afterwards, talking about themselves in a way they never had. They fell in love with Saagar’s big brown eyes and mischievous smile. They saw what a treasure had been carelessly lost. Everyone felt something. Many had no words but there was a profusion of overdue hugs all around. Many felt they knew him even though they had never met him. Some introductions were made to link up the leaders from various sectors of society so they could form stronger and safer networks.

That woman in the film was not just me. She spoke for the fifteen families in the UK, who are plunged into this harsh reality every day. More than 6500 every year.

That young man in the film was not just Saagar, but everyone who has ever blamed themselves for their troubles and felt shame for things that have happened to them, hiding behind their beautiful smiles. Unseen. Unheard. Each one who lost their tribe and couldn’t find a way back.

These were not just Saagar’s friends, but all those who are left behind, trying to figure out how this could happen to someone they loved. Wondering what they could have done then and what they can do now.

This film laments a future lost. It mourns silent suffering. It also illuminates a path that appears out of darkness. It also celebrates love and smiles. It also gives us permission to soften, lighten, loosen. It breaks open our hearts so we can hear the unspoken pain that lies behind the mask of another face and our own. It makes us one.

This is what it means to be human. Here, on this beautiful Earth, there is no other. Only us. Not us and ‘them’. Just us.

PS: International film awards: Eight.

‘1000 days’ is made by Me and Thee films for educational purposes. Hence it is not yet freely available on social media. It was screened in the ‘Lived experience’ section at Middlesbrough, for the Hartlepool and Stockton Safeguarding children’s Partnership and South Tees Safeguarding Children’s Partnership Conference on the 12th of July. It made a profound impact on roughly 350 attendees, motivating them to make individual and collective change so as to protect young lives and their happiness. Will keep you posted on the opportunities to watch it. Thank you for your love and support. Please do share any constructive ideas/ thoughts you may have for the film in the comments section.

What do I do with this thing?

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It churns inside me all the time. This thing does not settle. It does not sit still. It burns my tummy, wets my thirsty eyes, parches my tongue and pokes its elbow into the longing in my heart. It doesn’t rest and doesn’t allow me to rest. It kisses my forehead, only to kill me with its kindness. It stays with me, no matter where I go – to the park, to work, on a bike-ride, at my desk, in the kitchen. It seeps into my words. Into the movements of my hands. Into the mirror. Into the songs, I choose. Into tea and toast. There is no getting away from it. It pervades my silences and my sleep.

I wish it had never appeared but it has. It wish it wasn’t mine but it is. The problem is, it won’t leave me alone. Not for the briefest of moments. In a Stockholm Syndrome way, I hold on to it and defend it. How I wish it wouldn’t tear me up so mercilessly.

What do I do with this thing?

Once I heard a Therapeutic Writing Coach say: Name it. Claim it. Tame it. Re-frame it. Proclaim it.

‘Re-frame it’ stayed with me. It does not mean I tell myself false pacifying stories but encourages me to see it for what it is, beyond the drama. Grief, as love that has no place to go. Longing, as the other side of the coin of love.

If I don’t transform it, I will keep transmitting it and I don’t want to do that.

(Resource: Therapist and Writing for Well-being Coach

Nigel Gibbons : http://www.nigelgibbons.co.uk/About-Me.htm)

God bless America.

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Following the Sandy Hook school shootings in 2012, the Conservative commentator Anne Coulter provocatively proclaimed that “Guns don’t kill people. The mentally ill do.”

“The United States sees an average of 32 000 handgun-related deaths per year (as per this paper published in 2015), and firearms are involved in 68% of homicides, 52% of suicides, 43% of robberies, and 21% of aggravated assaults. Far from the national glare, this everyday violence has a disproportionate impact on lower-income areas and communities of color, and is widely held to be the cause of widespread anxiety disorders and traumatic stress symptoms”… the stigma linked to guns and mental illness is complex, multifaceted, and itself politicized, in as much as the decisions about which crimes US culture diagnoses as “crazy” and which it deems “sane” are driven as much by the politics and racial anxieties of particular cultural moments as by the workings of individual disturbed brains. Beneath seemingly straightforward questions of whether particular assailants meet criteria for particular mental illnesses lay ever-changing categories of race, gender, violence, and, indeed, of diagnosis itself.”

“Persons in the United States live in an era that has seen an unprecedented proliferation of gun rights and gun crimes, and the data we cite show that many gun victims are exposed to violence in ways that are accidental, incidental, relational, or environmental. Yet this expansion has gone hand in hand with a narrowing of the rhetoric through which US culture talks about the role of guns and shootings. Insanity becomes the only politically sane place to discuss gun control. Meanwhile, a host of other narratives, such as displaced male anxiety about demographic change, the mass psychology of needing so many guns in the first place, or the symptoms created by being surrounded by them, remain unspoken.”

“Mass shootings represent national awakenings and moments when seeming political or social adversaries might come together to find common ground, whether guns are allowed, regulated, or banned. Doing so, however, means recognizing that gun crimes, mental illnesses, social networks, and gun access issues are complexly interrelated, and not reducible to simple cause and effect. Ultimately, the ways our society frames these connections reveal as much about our particular cultural politics, biases, and blind spots as it does about the acts of lone, and obviously troubled, individuals.”

Ref: American Journal of Public Health. 2015 February; 105(2): 240-49.

Mental Illness, Mass Shotings and the Politics of American Firearms by Jonathan M. Metzl, MD, PhD and Kenneth T. MacLeish, PhD

PMCID: PMC4318286

PMID: 25496006

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4318286/

… and your name is?

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S A A G A R.

In Delhi, it was simple and sweet.
In Belfast, it was a problem. It had to be pronounced slowly with exaggerated lip movements and spelt out clearly. Still, it was uttered in all kinds of ways – Segaar, Sega, Saaga, Sags, Sagsy-wagsy. It is after all, a proper noun. “As long as you call him with love, you can call him anything.” I would say with a smile. But of course, it was his name. Not mine.

At the age of 7, one day he came home from school and said, “Can’t you change my name to Aran or something?” I felt for him but laughed. What else could I do? I asked him if something happened at school that day, if someone said something hurtful and he just picked up his soft grey elephant and cuddled it.

I told him the story of his name. I was 24 when I got married. My in-laws lived In Chennai. We visited them a few months after the wedding and one evening we all visited a place called Besant Nagar beach. That was the first time my eyes fell upon the expansive ocean. On the map this water body had the boring label, Bay of Bengal. The vision of a dark blue shimmer below meeting a pale blue glow above in a clean, delicate, straight line made everything else disappear. Its calm, its rhythm, its enormity, its subtle dance, its grace and openness pulled me in. All conversation faded away and there I was, completely soaked in the bliss of the ocean. My soul soothed. My body relaxed. My eyes quenched. My heart happy. I was in love. In that moment, I knew that if we ever had a son, he would be called, ‘Ocean’: Saagar. I reminded him that his name was Saagar because his heart was as expansive and as beautiful as the ocean. He smiled and gave me a tight hug.

As he grew older, he came to own his name. He came to live it. The waters of this ocean ran deep. They appeared placid on the surface but strong currents ran underneath. All I saw was the steady flow of gentle waves, rhythmically lapping against the shore through the seasons. It oscillated with the moon but the high tide was never too high and the low tide was never too low, until one day it was.

Invitation to the Circle of Remembrance

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Towards the end of 2020, a series of phone calls with mums and dads from the USA, Australia and the UK resulted in the formation of an on-line peer support group that has met every other Saturday evening for an hour and a half. The first meeting was held in the middle of January 2021. We’ve recently had our 32nd meeting. The group provides a warm space for sharing and offers non-judgemental listening and understanding. It provides a fertile ground for post-traumatic healing and growth. We call it CORe: Circle of Remembrance.

The loss of a child is different from other losses. The purpose of CORe is to honour our children, to create an opportunity for sharing our inner and outer experiences and to seek tools and mutual understanding for establishing a firmer ground of compassion, from which to live our new lives.

Over time, I have come to appreciate my need for a tribe to belong to. Other people who are also living through the loss of their child validate our experiences, witness our pain and help us feel less alone.

After many years of trying to make sense of something so treacherous, I now know that it is impossible to make any sense of it. However, I also know that it’s possible to create a new path for ourselves. A path of learning and peace.

It has been an honour for Si and me to facilitate the CORe group of roughly 20 friends and witness their journeys. The rich, life-sustaining conversations and friendships within the group are a delight to be a part of.

It therefore gives me great joy to invite bereaved parents to a new group that will meet on alternate Wednesdays from 7.00 – 8.30 pm (UK time). Please visit the website of CORe (link below) for more details and testimonials and sign up if you would like to join.  In our experience with the Saturday group, the upper limit to attendees is 25. Once we have about 15 members, we’ll get started. The tentative start date is 4th May 2022.

https://www.core-community.com/

Two lessons

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“He loved me in the purest sense and I loved him. That’s how he kept me alive.” says Marsha about Ted, a catholic priest.

This relationship taught her two important things that she applied to her work as a therapist for seriously suicidal people. She wrote about these things and taught them to her students, the future generation of therapists.

  1. ‘I was unable to say thank-you then. Now I can.’

If you’re giving unconditional love to help someone cope with the hell they are in, if you’re holding them emotionally and physically, don’t interpret their absence of ‘thanks’ as a sign that you are not giving them what they need. You probably are.

2. ‘Keep loving them.’

When someone sees no point in living, they are like someone walking in a mist. They don’t see the mist. They don’t see that they are getting wet. If you’re walking with them, you may not see it either. But if they have a pail of water, you can collect the water that was mist, in it. Each moment of love adds to the mist, which adds to the water in the pail. By itself, each moment of love may not be enough. But ultimately, the pail fills up and the person in hell can drink that water of love and be transformed.

Like Marsha, I know this to be true. I’ve been there and drunk from that pail.

(Inspired by Marsha M Linehans’s book: ‘Building a life worth living’.)