Meeting old friends for the first time.

Meeting old friends for the first time. In at least three dimensions. Sharing a physical space together, not just a bland rectangular screen. Actually holding hands.

“Gosh! You’re for real!”

The sparkling smiles of recognition mixed with disbelief. The hugs offering heart to heart resuscitation and healing. Sitting down side by side on the sofa, sharing stories, tea and cake.

A year ago, this could have been fiction but last weekend it was fact. While volunteering at a retreat for Bereaved parents hosted by The Compassionate Friends, we finally met people we’ve only ever seen on Zoom. It was held at the simple and serene Woodbrooke Centre, a Georgian manor house in Selly Oak, Birmingham with tall trees, beautiful flower beds and a family of geese perambulating the grounds, intermittently honking. It is a Quaker centre and has a poster in the main foyer which reads “Nameless helping the Nameless”.

The garden in front of the main house has a labyrinth mowed into it. Early on Saturday morning, birds were singing and the light was inviting me into the open. I decided to walk bare feet into the center of the labyrinth. I took my shoes and socks off at the edge of the circle. As soon as I started walking, it turned into an extremely mindful experience as the ground was littered with geese droppings.

The silence in that place was sweet and the views a treat. We talked about the importance of finding meaning. We shared the joys and challenges of taking the inward road. We watched a film and sang together. We wrote from our hearts and created pretty little candle holders for our kids from jam jars at the crafts table. We cried and laughed, reassured that in this company, it was completely acceptable to do both, sometimes simultaneously.

A pleasant exchange. Giving and receiving with compassion. Understanding. Belonging. Learning. Holding the utter magnificence of life in one hand and the absolute devastation in another. That’s what this game is all about, I guess.

Invitation to the Circle of Remembrance

Towards the end of 2020, a series of phone calls with mums and dads from the USA, Australia and the UK resulted in the formation of an on-line peer support group that has met every other Saturday evening for an hour and a half. The first meeting was held in the middle of January 2021. We’ve recently had our 32nd meeting. The group provides a warm space for sharing and offers non-judgemental listening and understanding. It provides a fertile ground for post-traumatic healing and growth. We call it CORe: Circle of Remembrance.

The loss of a child is different from other losses. The purpose of CORe is to honour our children, to create an opportunity for sharing our inner and outer experiences and to seek tools and mutual understanding for establishing a firmer ground of compassion, from which to live our new lives.

Over time, I have come to appreciate my need for a tribe to belong to. Other people who are also living through the loss of their child validate our experiences, witness our pain and help us feel less alone.

After many years of trying to make sense of something so treacherous, I now know that it is impossible to make any sense of it. However, I also know that it’s possible to create a new path for ourselves. A path of learning and peace.

It has been an honour for Si and me to facilitate the CORe group of roughly 20 friends and witness their journeys. The rich, life-sustaining conversations and friendships within the group are a delight to be a part of.

It therefore gives me great joy to invite bereaved parents to a new group that will meet on alternate Wednesdays from 7.00 – 8.30 pm (UK time). Please visit the website of CORe (link below) for more details and testimonials and sign up if you would like to join.  In our experience with the Saturday group, the upper limit to attendees is 25. Once we have about 15 members, we’ll get started. The tentative start date is 4th May 2022.

https://www.core-community.com/

A Vision

By JR Leach

I had this vision back last spring,
When the land was ruled by corrupted kings,
And greed was fueled by hoarding things,
But things that one could touch.

The vision spoke of melted gold,
The value of the world resold,
“The price for life” is what we’re told,
By men who own too much.

As fear spread through a world; forlorn,
With threats of plague that ne’er were born,
Fresh chains were forged and willing-worn,
By those who feared the lie.

And though once joy had been assured,
Through weighing risk, and griefs endured,
Death could no longer be ignored,
For all souls fear to die.

This fear was stoked by those town criers,
Who peal the bells but start the fires,
And sing the songs their lord requires,
To whom they humbly thank.

Fresh tides of evil rise with haste,
As hands of Midas are replaced,
By hands whose touch turns all waste,
And paper sharp and blank.

“But rules are rules” the fearful sigh,
Content to see their forebears die,
No hand to hold, no last goodbye,
Just pixels, bright but cold.

“But rules are rules”, the state replies,
While deaf to all those muffled cries,
That sound from those with honest eyes,
And doubt the fear they’re sold.

And even children are not spared,
For misery is widely shared,
And dished by those who swore they cared,
But cared for guidelines more.

So mired and masked, the schools return,
Devoid of joy but forced to churn
Out abstract facts, for all must learn
That learning’s just a chore.

The vision ends when all is grey,
While shapeless, mouthless words relay,
The promise of a brighter day,
But no such day arrives.

A year drifts by, and so does youth,
The vision now a dismal truth,
But ‘truth’ is passé and uncouth,
While fiction blooms and thrives.

But even in this twilight hour,
imprisoned in our lonesome bower,
The words we speak retain their power,
And words can never die.

So speak your thoughts, and rise above
The barbs and briars of those who shove
The truth away, just think and love,
And you’ll escape the lie.

Freedom on a page

Writing is a friend. It sustains. It slowly pushes open the rusted, jammed doors of many hearts and allows for the gaping wounds in there to heal. Over the last few weeks it’s clear that it is not just possible but fun, to attend and host meetings remotely. Despite challenges, it can be enriching. A wise man/woman has identified 3 things one needs, to get through a day :

  1. Someone to love.
  2. Something to do.
  3. Something to look forward to.

No wonder people are gardening, baking, embroidering and doing various things, spending time or connecting in creative ways with people they love. We have been setting one episode of ‘The Crown’ as our carrot, to look forward to at the end of a long ‘working from home’ day. I have been writing some poetry and dreaming of putting a book together and getting it published some day. There goes my Ego …. again!

This seems like a good time to do something new. I would like to invite you to write with me. To connect with your hearts and bring a blank page to life. To find your own expression and share other people’s worlds through their words and prose. We would call ourselves “Freedom on a page”. In this time of partial captivity, this title seemed appropriate. If you have other suggestions, please bring them to the group. We would meet every Tuesday morning for an hour and a half – between 9 and 10.30 am on Zoom. We would write as much as we like during the week but have 200-300 words to read out to the group. If you would much rather only listen, that’s fine too. Join in. Don’t think so hard that you talk yourself out of it. You have done that before. Haven’t you? 😉

If you would like to join, please

(1) e-mail me at kidsaregifts20@gmail.com by Saturday, the 23rd of May. If you’d like more time to decide, take that time and send me the e-mail when you are ready.

(2) familiarise yourself with Zoom (https://zoom.us/) and download it on your computer/phone. It is free and easy. You can switch the video off if you don’t want to be seen. You can participate by writing on the ‘chat’ if you don’t want to speak.

I will send you an invite by e-mail on Monday, the 25th. I will start the meeting 15 minutes before 9 am, UK time (GMT+1) on Tuesday, the 26th of May and wait for you. Then we’ll see what happens. I have never done this before so I am a little bit nervous too. Shall we write about what ‘Freedom’ means to you? Feel free to pick any other subject. I look forward to this adventure. Depending on how you feel, we can continue to ‘meet-up’ every Tuesday.

Try it. Magic happens when the naked tip of a pen meets a nude blank page. The fingers holding that pen are deeply connected to the real you. So are the fingers typing on your keyboard.

Freedom on a page

Feathers fall from heavens like rain

A splash of sun-rays on the pavement lifts dust

Fills my senses with petrichor

The romance of which dances

In every gap, crack and crevice

I float up with the fragrance

And glide along the tops of trees

Breathe in bliss, touching green

Everything IS, as it IS

Watching its own ISNESS

Wrapped in a melodious silence.

This must be it

One moment of being fully alive.

— — — —

Three friends

This is an approximate transcript of a presentation I made at a TCF (The Compassionate Friends) gathering of bereaved parents earlier this month. The topic was “Finding Hope after Catastrophe”. I hope you find it useful in some way.

“Hello. My name is Sangeeta. I am an Anaesthetist by profession and it’s my job to put people to sleep. Thank you TCF, for having me here this evening.

My son is called Saagar Naresh. I could often hear his cackles emanating from his room. I am pretty sure he’s watching cat videos again. He loves to laugh and make other people laugh. He’s as bright as they come, astutely picking up languages, accents and mannerisms of people around him. He would go shopping with his best friend Hugo to Oxford street and they would pretend to be South African tourists all day.

We loved cooking together. It involved chopping of onions. He got tired of his eyes stinging and watering and found a way out – he would wear his swimming goggles whilst chopping onions. It worked brilliantly!

He was an excellent cricketer. A fast bowler to be precise. He also played the drums in a band. He loved to go to the gym. Most of all, he had a heart of gold and even when he was a teenager, he loved cuddles. He spoke French and German fluently and chose to study Arabic from scratch at University as he wanted to challenge himself.

After his second year at Durham University, he came home for the summer holiday and was diagnosed with Bipolar Disorder. He was unable to go back to pursue his studies as his depression started to deepen. We saw a doctor on the 14th of October 2014. He told us that Saagar would have to wait till his medications kicked in, that he was on the right medicines but they would take time to work. On the 16th of October, Saagar ended his own life.

That was like a bomb going off in our lives. Losing him suddenly, out of the blue was our catastrophe.

Finding hope …

The Oxford dictionary defines Hope as “a feeling of expectation and desire for a certain thing to happen”.

For me, Hope is the belief that it is possible that some of the best days in my life are yet to come.

Soon after Saagar passed away, just getting through the day was an achievement. The time ‘yet to come’ was a huge burden. I had nothing left to offer to the world and the one thing I wanted, the world could not offer me. My own mortality stared me squarely in my face and it was strangely seductive.

What was I left with? My logical mind had been turned into an emotional pulp as there was no logic to this. The more I tried to make sense of it, the more I suffered. It was like banging my head against a brick wall. It did not make any sense. Period. Deal with it.

What was I left with?

  1. This moment, right NOW
  2. Me, mySELF.
  3. Nature.

NOW

How deep rooted was my belief that Saagar would always be around? How much did I take that for granted?

What am I taking for granted right now?

My breath.

My parents.

My partner.

My job.

My health.

Let death be your teacher. ‘Right now’ is all I have left. Like a bird trapped in a cage. The door is open but the bird is unable to fly away. The cage is where he/she belongs. In the ‘now’, I could only sit and watch the door, knowing that it was open. I could breathe in, take a pause, breathe out, pause, breathe in and repeat… I could fully acknowledge and feel the dark hollow that was my chest and hear the echoes of my sobs returning from the black hole within. Connecting fully with the present moment was the only way past it. There was no short-cut. No secret escape route. One moment at a time. Now, I am walking upstairs. Now, I am halving cherry tomatoes. Now, I am watching the steam rise from my cup of tea and so on… My refuge lay in this moment, right here. Right now. The future is a story. The past exists in our thoughts. Yet, our mind is in one or the other. What is real is this moment.

I had a patient once who had a black ‘Gratitude’ tattoo on her left forearm in a big bold decorative font. I asked her the story behind it. She said, ”I work with kids with learning disabilities. By the time I’ve brushed my teeth in the morning, I’ve achieved more than they can. So, I am grateful every moment.”

SELF

I was lucky to have so much support at that impossible time. My mum and brother came over from India to be with me. My friends, Saagar’s friends, their parents, my work colleagues. Everyone stood by me with love and compassion but ultimately it was up to me to live with this utter devastation. I was filled with so many questions, so much guilt and grief that I felt like I was drowning. 

It took 2-3 years but slowly I taught myself to be kind to myself. I am still teaching and reminding myself that our everyday reality is made up of stuff that is unthinkable for most people. We live the life that is other’s worst nightmare. Many can’t even imagine what it’s like to be in our shoes. 

So, we need to honour ourselves for carrying on living with as much grace and dignity as possible after having absorbed the impact of such a huge catastrophe. To know that the harsh inner critic will continue to chatter but we need to witness its mumbling, recognise the pointlessness of it and let it go.

We need to have compassion for ourselves. Compassion being not just a gentle kind feeling but small acts of courage. For instance, I used to love dangly ear-rings ‘before’. I would change them every day, to match my clothes. But for 3 years ‘after’ I didn’t change out of the boring old gold studs. One day I decided to change into one of my favourite pair of ear-rings for no particular reason. It was a small shift. It took courage. I cried. But it was an act of kindness towards myself. I needed my own friendship, my own affection. I needed to once again find ways of being at ease with myself. Lord Buddha has said “If your compassion does not include yourself, it is incomplete.”

I am learning that I need to be a ‘compassionate friend’ to myself.

NATURE

That wretched day in the middle of October was cursed but also resplendent with autumn colours. It was a festival of orange, ochre, red, green, yellow and terracotta. These decorative leaves carpeted our street. I stared out of the window watching these leaves gracefully dance their way to the ground. The trees went from being semi-nude to naked. This was the cycle of life. Nature was reminding me and showing me the devastating beauty of life. Cycles upon cycles of change, millions of times over. The impermanence of everything.

Over the next few months, I sat gazing at the Himalayan mountain range, marvelling at its history and all the changes it has undergone. I sat on a beach in Goa, watching the ocean waves change every second. Over time, I started to allow Nature to teach me what I needed to learn and soothe me when I needed to be soothed. I learnt that we humans can carry the utter tyranny of life in one hand while simultaneously carrying the spectacular beauty of it in the other.

I requested everyone to join me in singing this song by ABBA and was delighted by the upward shift of healing energy in the room as everyone sang together. It was a powerfully uplifting evening.

I have a dream, a song to sing
To help me cope with anything
If you see the wonder of a fairy tale
You can take the future even if you fail
I believe in angels
Something good in everything I see
I believe in angels
When I know the time is right for me
I’ll cross the stream, I have a dream

I have a dream, a fantasy
To help me through reality
And my destination makes it worth the while
Pushing through the darkness still another mile
I believe in angels
Something good in everything I see
I believe in angels
When I know the time is right for me
I’ll cross the stream, I have a dream
I’ll cross the stream, I have a dream

I have a dream, a song to sing
To help…”

Gold flecks

Every day since Saagar’s death, I looked for him in my face when I looked in the mirror. I searched hard. I desperately wanted to see him. Just a hint of him. But, no. Nothing showed up. Absolutely nothing.

Last night, I hunted again and I am definite I found a hue of him in the black and golden flecks on the irises of my eyes. Just a shimmer, only visible when light fell at a particular angle. Fleeting but present. The golden flecks weren’t as bright as his. They were somewhat faded but they were certainly there. And they were his.

I smiled. Yes. He was right here.  In my eyes.

Every week day morning and every week day evening, I walk to and from the same railway station where it happened. As I walk to the station, I walk his last walk. As I walk home, I walk the path he didn’t. I send him my love and blessings at every step. He is in my mornings and evenings and in everything in between.

A new Blackbird Bakery kiosk has recently opened on Platform 1 at West Norwood station. The staff are friendly and coffee fabulous. I wish it had been there then. It makes it a happier place. I am glad it’s there now.

IMG_6322

Green Tara

green-tara-sttue

Once again, I found myself in Swansea. The meeting was planned weeks in advance and I had travelled 4 hours to be there. I, a practising doctor, once again, seeking light in the realm of the unexplained. Why was I there? Because I wanted to write a book and I wanted to know what Saagar thought. Does that make sense? Like hell it does. That’s why I had trudged all the way there and would be changing trains for the rest of the day to get back home.

One whole wall in the waiting room was teaming with thank-you cards, mostly from women who believed they had had babies as a result of Acupuncture or other therapies received at the centre. It was a modest space with a tired fawn carpet and upright wooden chairs with plastic, foam maroon coverings. Like all waiting-room-chairs all over the country.

Her big smile snatched my gaze away from the wall and welcomed me into her space. She guided me up the stairs into the same consultation room where we had met more than a year ago. The familiar potted palm, the large window and the same arrangement of the 2 comfy sofas by the fire-place, facing each other with a small wooden table placed in between. Déjà vu, all over again.

I sat facing her and the window. She sat facing me and the door. We started with a brief catch-up and then she connected with Saagar. She said he’s happy. He’s growing his hair and following the cricket. She thinks she can hear him speak French. Is he saying something about Guy’s hospital? He says he enjoyed his time and friendships at Dulwich. He mentioned a particularly close ‘black’ friend. I am sure he means the one coming home to lunch tomorrow. He says he loved the large window by his bed with the great view of the London cityscape.

He felt there was a place for him at the wedding. It was fun, especially the bit by the river in the early morning hours. He must have meant the photo-shoot of Si and I in our normal clothes. It shows us in our ‘natural habitat’. The camera loved the early morning sun. So, we complied.  ‘Natural’ and ‘photos’ don’t belong in the same sentence. We tried our damnedest best, seeking inspiration from Hollywood and Bollywood combined, getting confused and dramatic and giving rise to some cracking moments. He was there.

He offers me a Green Tara through her. A Buddhist manifestation of active compassion, Tara is the saviouress, the one who reaches out and responds freely to all who suffer. She is fearless and boundless. He wants me to have a jade statue of Tara. He knows my heart and mind. We walk in the same light.

She says the book will happen. A book of beauty and joy that was him. Of his continued presence. Of hope.

( A 20 minute video of an awareness raising presentation for trainee anaesthetists at a national conference in Glasgow from earlier this month: Being Human)

[E-mail address for Moya O’Dwyer, the medium: moyairishmagix@yahoo.com]

Community is the answer.

“…the lonelier a person gets, the less adept they become at navigating social currents. Loneliness grows around them, like mould or fur, a prophylactic that inhibits contact, no matter how badly contact is desired. Loneliness is accretive, extending and perpetuating itself. Once it becomes impacted, it is by no means easy to dislodge.” – By Olivia Laing, The Lonely City.

In the summer of 1999 I moved from New Delhi to a little place called Antrim in Northern Ireland. I lived in a tiny room in the accommodation for junior doctors on hospital grounds. I didn’t know a soul there. Slowly I made a few friends at work. Unlike now, there were no mobile phones, whatsapp, skype, facetime or facebook then. Telephone calls costed a bomb.  People were friendly but everyone was a stranger. Initially I didn’t get their sense of humour at all. I felt foolish. I longed to speak my own language with someone. Anyone. But there was no one who would understand.

One evening I went to buy some chocolates to a nearby petrol station. There were 2 cashiers but only one of them had a long queue of people waiting their turn. I didn’t understand why. I went up to the cashier without a queue and made my payment. I didn’t get the meaning of the looks on people’s faces. It didn’t help that I was the only coloured person for miles. From some face expressions it was obvious that they had never ever seen a coloured person outside of the television. I felt alone. Very alone.

Urban loneliness is a common phenomenon.  Isolation causes inflammation. Inflammation can cause further isolation and depression. The cytokines released as a result suppress the immune system giving rise to more illness.

Frome is a historical town in Somerset. It is known as one of the best places to live in the UK. Dr Helen Kingston, a GP, kept encountering patients who seemed defeated by the medicalisation of their lives. They were treated like a cluster of symptoms rather than a human being with health problems. Staff at her practice were stressed and dejected by what she calls “silo working”.

With the help of the local council and Health connections Mendip, she launched a community initiative in 2013. It main intervention was to create a stronger community. They identified and filled gaps in communications and support in the community. They employed ‘health connectors’ and trained up volunteers to be ‘community connectors’.  They helped people with handling debt or housing problems, sometimes joining choirs or lunch clubs or exercise groups or writing workshops or men’s sheds (where men make and mend things together). The aim was to break a familiar cycle of misery.

In the three years that followed, emergency hospital admissions rose by 29% across the whole of Somerset. In Frome they fell by 17%.

No other intervention, drug or procedure on record has reduced emergency admissions across a population.

 

 

 

 

 

 

 

Acer and Ajahn

After Saagar’s death, it felt as if a big black boulder had landed in the middle of our living room. There wasn’t much space around it. It occupied the entire room. I had no escape from this uninvited guest. I had to squeeze my way around it to get past. Its roughness abraded my skin. It was stubborn, heavy, ugly, lifeless, crude and unmoving. It had made a home in our house. It was here to stay. I had no choice but to live with it and look at it. It stared right back at me non-stop. Its weight was suffocating. It sat on my chest, jutting its chin out, determined to get me. I pushed with all my might but it didn’t budge an iota.

It’s still there. But I can negotiate my way around it without the jaggedness making me bleed. We can sit and watch each other without wanting to kill each other. It has relaxed and settled into my space and I can breathe. A green shoot has peeped from underneath it. Another slender sapling has appeared out of the crevice near the window.  The old sharp corners don’t catch anymore. They have rounded off. Life is happening around it.

If I had remained firmly rooted in the pure physicality of the world, I couldn’t have co-existed with this deeply unpleasant and unwanted occurrence. Spiritual teachings and practices have been a respite from my mind, the generator of pain. I am nowhere near ‘wise’ but I remain open to universal knowledge. I allow it to bring me peace, however momentary.

Amaravati Buddist monestary is one of my refuges. A few months ago I spent 5 days there in Silent retreat. A beautiful plant with asymmetric leaves overflowed from an indoor pot. With permission I brought 3 leaves home, allowed them to root in water and then planted them in soil. They look happy.

IMG_6211

In December 2017 we planted an Acer in Saagar’s memory at Amaravati. It’s called ‘Winter flame’ or Acer Palmatum. A friend of a friend is a ceramist. She is making a set of drums and drumming sticks with Saagar’s initials, to be placed at the tree. I have never met her. She has never met me or Saagar. But we are connected. We all are connected.

IMG_5924

An excerpt from a Dhamma talk by Ajahn Anando:

“We suffer because we constantly chase pleasure. We run away from pain.
Loose the greed for sensuous things.
See that the letting go of the world is peaceful.
Time is nothing. There is only ‘now’ and ‘change’.
Past and future are ‘thoughts’ in the Now.
Is there any way you can get into the past? Or the future?
Is there any way you can get out of ‘Now’?”

Resource:

https://www.amaravati.org/audio/

It takes a whole village to raise a child.

f73ced10f5b52382b2b8e1d461fa04aa

When I was 9, a music teacher came home every Tuesday evening to teach me singing and Kathak dance. That was my favourite time of the week. One week I waited and waited for what seemed like a very long time but he did not come. That evening I had a very high fever and had to be taken to the doctor.  Last week I have been having a high temperature, a cough and a cold. Withdrawal?

Growing up in the UK’, a report published by the BMA in 2013 found that we fail many children and young people every year. 2.6 million children in the UK live in absolute poverty. Children are at higher risk of living in both relative and absolute low income than the overall UK population. 14% of the most severely materially deprived kids from 30 EU countries live in the UK – same percentage as Romania. The severe economic hardship from the 2008 financial crisis in the UK and consequent spending cuts have been disproportionately detrimental to children, young people and low income families, particularly those who were already at a disadvantage such as migrant children and lone parent families.

‘We like to think of ourselves as a child-friendly society, but the facts do not support that comfortable, complacent assumption’  – James Appleyard, treasurer of the BMA.

Nelson Mandela said: ‘There can be no keener revelation of a society’s soul than the way in which it treats its children.’

According to the World Happiness Report 2013, Dutch kids are some of the happiest in the world. Here are a few possible reasons. Dutch parents are the happiest people. Dutch Mums have found the perfect work-life balance with 68% of them working part time, 25 hours per week or less. They don’t care so much about being charming or about how they look. Dutch dads are more hands on and play a large role in child care. Many of them also work part time. Dutch kids feel no pressure to excel at school. They have no homework before the age of 10. There is no competitive university application process. They can simply attend school for learning rather than competing in academic performance.

The Dutch breakfast mostly consists of a slice of white bread with butter and chocolate sprinkles on top. The United Nations called it healthy. What makes it ‘healthy’ is that breakfast is taken as a family every morning. The kids have a right to express their opinions as they are meant to not just be seen but also heard. Grandmothers have an active role in bringing up the grandkids and that has a huge positive impact on the kid’s self-esteem. The Dutch government gives money to families to help with expenses. People, including kids safely cycle everywhere. A huge emphasis is placed on ‘gezellighied’, a concept of pleasant togetherness that is more bracing than coziness and more exciting than contentment. ‘Gezellighied’ is an untranslatable Dutch word. Its closest meanings are convivial, sociable, fun, nice atmosphere resulting from general togetherness of people giving rise to a strong sense of belonging and a warm feeling. People work hard to bring this into their everyday family lives.

Why do we fail so many kids in our country?

Politicians make blunders because they surround themselves with like-minded people who are completely disconnected from the general populace. There is a failure in advocacy for children. As a society we need to examine and change our attitudes towards the importance of children. Mentally and socially some people manifest a bunker and silo attitude leading to isolation and exclusion. We need to create nurturing communities locally which could be based around the arts, music, exercise, spirituality, sports, play groups and after-school clubs.

Families, government and education policies and practices need to emphasise the importance of creating nurturing environments for kids.