Times six.

Two summers ago, on a dry Saturday morning in London, Si and I set out for a walk. We headed to our local park, Streatham Common. As we took a turn into the Rookery, we noticed a young man sitting on the third step of the wide, well-trodden staircase descending towards the South-East. He held his bent head in both his hands.

An invitation.

I took a deep breath, softly stepped up to him with a ‘Hi. Good morning.’ He slowly raised his head and mirrored back my faint smile. None of our smiles reached our eyes. They were not real yet, only polite.

We got talking and forgot about the walking. Miles was in his late thirties, a father of two. He had been unable to work for a few months because of disabling symptoms that suggested something like Chronic Fatigue/ ME/ Long Covid. Of late his stress levels had rocketed as his employer had started suggesting ‘malingering’ in his letters. Even though his GP understood and validated his medical condition, his employer showed no understanding.

We gathered for coffee in the park on two more occasions that year. We enjoyed our chats, kept in touch and met up regularly even though not frequently. This year, he tells us he has been dismissed from his job after a “fair process” for “gross misconduct” for being physically and mentally unable to work. Gross misconduct includes physical violence, theft and fraud, intoxicated while at work and similar serious offences.

A study at King’s College London looked at the causes of death in 2000 patients with CFS/ME conducted over the years, 2007-2013. A total of 17 patients died in that period – eight died from cancer, five from suicide, and four from other causes. When compared to the general population, less than one suicide would be expected in a study population of this size. Yet five deaths by suicide were recorded. This means that, after controlling for age and other factors, the rate of deaths by suicide in this study was approximately six times higher in people with CFS than in the general population.

The reasons for this vulnerability are – poor quality of life with no hope for relief, loss of employment, finances, and/or relationships, chronic pain, secondary depression, and other associated mental and/or physical illnesses.

Miles felt he was losing his sense of self as a capable human being with integrity. People didn’t always believe or understand him. Maybe he is what they called him, a malingerer. This is hard on his family, but they support him all they can. The kids are delightful. He still has good days and bad, still has serious brain fog he cannot work through sometimes, still can’t do much but he tries his best. He carries a lot of shame for this thing that happened to him. He feels trapped.

No tests can prove his diagnosis. No definitive treatment is available yet.

Resource: Action for ME: https://www.actionforme.org.uk/

Life is about more than antiseptic wipes.

Posted by kidsaregifts20

If there ever was a reminder of my own disappearance, it is here. Right here, looking straight into my eyes. This line ends with me. No progeny. No genetic propagation. No continuation. No traces.

Lines on the surface of water.

This is a kind of liberation from the complexities of life, the noise and the karmic debts, whatever they might be. Nothing to give. Nothing to take. Simply another life, here and then, gone. After Saagar, the inevitability of my own demise is the most obvious fact. It doesn’t evoke fear or dread. Inescapable. It puts a smile on my face. Ah! To be human. What a ride!

In the grand scheme of things, we are momentary bubbles riding on a wave, arising out of the ocean, assuming a separateness from its waters.

Grand and then gone. Like Saagar.

I see folks with long bucket-lists spending their days and nights doing soulless jobs, brothers defrauding each other for a possible gain, couples frantically buying houses in every city while the ulcers in their stomachs bleed and proliferate.

Sitting at the table next to me in a posh Bangalore café, a mother is fretting over the fact that her child doesn’t yet know the names of all the months in the right order and he’s already two years old. While I sip my coffee, I watch this young mum obsessively chase her son around the place with an antiseptic wipe, cleaning his hands, everything he has touched and is about to touch, repeating, January … February … March …

Like cloud joining cloud.

Posted by kidsaregifts20

Loss Too Deep for Words

When all that seems real is lost,
where words blur and fail,
where intention cannot reach the depth,
where heart hungers
and soul starves.

Only the warmth in the heart of another
finds the pulse,
like cloud joining cloud,
a delicate meeting
before language.

Seeing and seen,
no grandeur, no pretence.

Not words.
Not healing.
Not intention.

Not reviving.
Not demanding.
Not offering.
Not outside, just there, stepped inside.
Rare.

Once isolated, unreachable,
now golden sun emerging, real.

Only that which is real
can touch that which is real.

Nothing survives
that is not love.

By Tony Bisson

(Tony is a bereaved father. He wrote this poem expressing what being in the Circle of Rememberance means to him.)

Why do love and crying go together?

Posted by kidsaregifts20

(From *The Creation of Adam* by Michelangelo)

At a recent wedding, halfway through his speech, the bride’s father was overcome with tears. He was so happy for his daughter that he couldn’t help but cry. It was a sparkling moment of a mixture of affection, achievement and perhaps relief. Even though it took him by surprise, it was perfectly normal and rather sweet.

At the hospital, I watched men and women cry with joy at the first sight of their newborn baby. It was joy to behold their love and terror of having this amazing miracle happen to them. I have taken many photos of those moist eyes brimming with love.

Babies cry to express their hunger or discomfort or pain. Adults also cry to express themselves but somehow, they don’t seem to have as much permission as kids. When we’re happy, we laugh and that’s okay. When we’re sad, we cry and that’s often not okay.

Jesus wept. (John 11:35)

When he visited the tomb of his friend, Lazarus, Jesus was moved to tears seeing the sorrow of those mourning his death. The verse comforts believers by showing them that Jesus had empathy for the grief, loss, and pain that humans endure. Despite knowing he was about to raise Lazarus, he felt for them in that moment. He had solidarity with the human heart.

The protective mechanisms built into our bodies are very subtle. The eyelids blink to ensure that the cornea remains moist, so we can continue to see clearly. It happens without us noticing. As soon as we put something in our mouths, our saliva starts to counter potential troublemakers in our food. When we change our position from sitting to standing, the biomechanics in the body readjust to ensure that we don’t fall over. A sense of balance in innate to us while standing and walking.

Crying also protects. It works as a pressure-release valve. When our emotions are intense and difficult to contain, crying helps to reestablish emotional equilibrium. It is a cue for connection with others as it is founded in our vulnerability as humans.

To stay with each other until the flood subsides.

To hold each other. Talk. Listen. Be present

That’s how we hold space for feelings, allowing them to be fully expressed.

That is how we experience divine love.

Resource:

CORe: Circle of Remembrance. A free online peer support group for bereaved parents, where crying is honoured.

Be the light.

Posted by kidsaregifts20

A café on a sunny beach in Goa. Lunch with friends. Rava dosa and spicy sambar. In walks a woman of European descent, possibly a few years older than me. She sits at the table opposite us. She has two deep vertical frown lines just above either side of the bridge of her nose. They seem to be fixed in place. She orders a white coffee and waits, looking at her phone and then turning to look out of the window. Looking at her phone and turning her head towards the window. This pattern repeats. The lines stay firmly in place. I wonder why. She is obviously travelling. Wonder if she has someone with her or not. Has she made some friends here? I wonder if I should ask but it might seem strange to her and others in the eatery.

I was still debating whether I should or shouldn’t, when I saw her pay her bill and leave. I excused myself and followed her out. She walked to the right with her arms crossed across her chest and her head bent forward.

“Excuse me.” I called out. She turned around.

“Sorry to disturb you. I was in the café there. You seemed to be worried about something. Of course, it’s not my business but if there’s something you want to talk about, I have time.”

‘Oh. Thank you. Things are not great at home. Nothing too serious but I feel so far away.’

“I am sorry to hear that. Are you okay?”

‘Yes. I am okay, I think. I have a couple of friends. We’ll meet up later and talk things over. Thank you for bringing some light into my day.’ She smiled, the frown softening.

“May I give you a hug?” I asked.

“Yes. Please.”

We had a moment, said our goodbyes. I slipped back into the café, gently sat down and blended back into the conversation.

“If everything around seems dark, look again, you may be the light.”

– Rumi.

For this new year and for ever more, I wish you be the light that you are, for others and yourself.