Out of office reply.

Who we are doesn’t always show up in the way we do things. Something holds us back from bringing our unique gifts to the world. In my case it has been the fear of being judged as too soft, too loopy. We end up being like (read ‘as boring as’) everyone else. May be they are terrorised by other’s judgements too. Best to stick to the narrow and straight.

Yesterday, the e-mail below bounced into my inbox, all purple and pink in Comic Sans MS. It was such a refreshing change from the bland factual one-line out-of-office replies, that I had to share it here. He spoke the same language as me and so unreservedly. Being himself fully.

The mission statement of the Co-production collective he leads is : “Our vision is a world where diverse knowledge and experience are recognised and valued in the co-production of research, services, and policy development.”

Indeed, changing the world, one connection at a time. Not losing a single opportunity to connect. Not even an e-mail from a stranger.

šŸ’› Hello lovely,

Thank you so much for your email.

I’m really grateful you’ve taken the time to get in touch.

If you’ve emailed me, it’s probably because something matters to you. Please know that it matters to me too.

I just wanted to let you know that I may take a little while to reply.

I live with a number of long-term health conditions, so I’ve learnt that I need to be intentional about how I use my time and energy. Some days I’m happily working away with a cuppa by my side. Other days, my laptop stays closed while I take the time I need to rest, recover and simply be.

That hasn’t always been easy.

For a long time, I thought I had to keep pushing, always be available and put everyone else first. I’m slowly learning that rest isn’t something we have to earn. Looking after ourselves isn’t selfish. It’s what helps us keep showing up for the people and things we love.

šŸ“§ I aim to reply to emails within three working days, although occasionally it may take a little longer if my health needs to come first.

🚨 If your enquiry is genuinely urgent, or you’ve not heard from me after a few days, please contact my wonderful PA at pa.isaacsociety@gmail.com, who’ll be happy to help or make sure anything important reaches me.

🌿 Before you go, here’s a few gentle reminders, for both of us.

šŸ¤ You don’t have to earn your rest.

🌱 Healing doesn’t always mean doing more. Sometimes healing looks like slowing down.

šŸ’š Your worth has never been measured by how busy you are, how many emails you answer or how much you achieve. You matter simply because you’re you.

āš–ļø A kinder world starts with how we treat each other, but it also starts with how gently we treat ourselves.

ā˜• So, if you can, put the kettle on. Step outside for a few minutes. Listen to the birds. Hug someone you love. Cuddle a pet. Sit in the sunshine. Read a few pages of a good book. Have the nap. The emails will still be here when you get back.

If today feels heavy, I hope you know you don’t have to carry it on your own. Reach out to someone you trust. Speak to a friend, a family member or someone who can be there with you.

If you’re in the UK or Ireland and you’re in emotional distress or crisis, you can contact Samaritans any time, day or night, by calling 116 123 or emailing jo@samaritans.org. You don’t have to be suicidal to get in touch. Sometimes we all need someone to listen.

Thank you for your patience, your understanding and your grace. It means more than you know.

Take gentle care of yourself.

With love,

Isaac Samuels OBE
Social Change Leader
Changing the world, one connection at a time.

šŸ’š “Be gentle with yourself. The same compassion you so freely give to others is something you deserve too.”

Times six.

Two summers ago, on a dry Saturday morning in London, Si and I set out for a walk. We headed to our local park, Streatham Common. As we took a turn into the Rookery, we noticed a young man sitting on the third step of the wide, well-trodden staircase descending towards the South-East. He held his bent head in both his hands.

An invitation.

I took a deep breath, softly stepped up to him with a ā€˜Hi. Good morning.’ He slowly raised his head and mirrored back my faint smile. None of our smiles reached our eyes. They were not real yet, only polite.

We got talking and forgot about the walking. Miles was in his late thirties, a father of two. He had been unable to work for a few months because of disabling symptoms that suggested something like Chronic Fatigue/ ME/ Long Covid. Of late his stress levels had rocketed as his employer had started suggesting ā€˜malingering’ in his letters. Even though his GP understood and validated his medical condition, his employer showed no understanding.

We gathered for coffee in the park on two more occasions that year. We enjoyed our chats, kept in touch and met up regularly even though not frequently. This year, he tells us he has been dismissed from his job after a ā€œfair processā€ for ā€œgross misconductā€ for being physically and mentally unable to work. Gross misconduct includes physical violence, theft and fraud, intoxicated while at work and similar serious offences.

A study at King’s College London looked at the causes of death in 2000 patients with CFS/ME conducted over the years, 2007-2013. A total of 17 patients died in that period – eight died from cancer, five from suicide, and four from other causes. When compared to the general population, less than one suicide would be expected in a study population of this size. Yet five deaths by suicide were recorded. This means that, after controlling for age and other factors, the rate of deaths by suicide in this study was approximately six times higher in people with CFS than in the general population.

The reasons for this vulnerability are – poor quality of life with no hope for relief, loss of employment, finances, and/or relationships, chronic pain, secondary depression, and other associated mental and/or physical illnesses.

Miles felt he was losing his sense of self as a capable human being with integrity. People didn’t always believe or understand him. Maybe he is what they called him, a malingerer. This is hard on his family, but they support him all they can. The kids are delightful. He still has good days and bad, still has serious brain fog he cannot work through sometimes, still can’t do much but he tries his best. He carries a lot of shame for this thing that happened to him. He feels trapped.

No tests can prove his diagnosis. No definitive treatment is available yet.

Resource: Action for ME: https://www.actionforme.org.uk/

Life is about more than antiseptic wipes.

If there ever was a reminder of my own disappearance, it is here. Right here, looking straight into my eyes. This line ends with me. No progeny. No genetic propagation. No continuation. No traces.

Lines on the surface of water.

This is a kind of liberation from the complexities of life, the noise and the karmic debts, whatever they might be. Nothing to give. Nothing to take. Simply another life, here and then, gone. After Saagar, the inevitability of my own demise is the most obvious fact. It doesn’t evoke fear or dread. Inescapable. It puts a smile on my face. Ah! To be human. What a ride!

 In the grand scheme of things, we are momentary bubbles riding on a wave, arising out of the ocean, assuming a separateness from its waters.

Grand and then gone. Like Saagar.

I see folks with long bucket-lists spending their days and nights doing soulless jobs, brothers defrauding each other for a possible gain, couples frantically buying houses in every city while the ulcers in their stomachs bleed and proliferate.

Sitting at the table next to me in a posh Bangalore cafĆ©, a mother is fretting over the fact that her child doesn’t yet know the names of all the months in the right order and he’s already two years old. While I sip my coffee, I watch this young mum obsessively chase her son around the place with an antiseptic wipe, cleaning his hands, everything he has touched and is about to touch, repeating, January … February … March …

Like cloud joining cloud.

Loss Too Deep for Words

When all that seems real is lost,
where words blur and fail,
where intention cannot reach the depth,
where heart hungers
and soul starves.

Only the warmth in the heart of another
finds the pulse,
like cloud joining cloud,
a delicate meeting
before language.

Seeing and seen,
no grandeur, no pretence.

Not words.
Not healing.
Not intention.

Not reviving.
Not demanding.
Not offering.
Not outside, just there, stepped inside.
Rare.

Once isolated, unreachable,
now golden sun emerging, real.

Only that which is real
can touch that which is real.

Nothing survives
that is not love.

  • By Tony Bisson

(Tony is a bereaved father. He wrote this poem expressing what being in the Circle of Rememberance means to him.)

Why do love and crying go together?

(From The Creation of Adam by Michelangelo)

At a recent wedding, halfway through his speech, the bride’s father was overcome with tears. He was so happy for his daughter that he couldn’t help but cry. It was a sparkling moment of a mixture of affection, achievement and perhaps relief. Even though it took him by surprise, it was perfectly normal and rather sweet.

At the hospital, I watched men and women cry with joy at the first sight of their newborn baby. It was joy to behold their love and terror of having this amazing miracle happen to them. I have taken many photos of those moist eyes brimming with love.

Babies cry to express their hunger or discomfort or pain. Adults also cry to express themselves but somehow, they don’t seem to have as much permission as kids. When we’re happy, we laugh and that’s okay. When we’re sad, we cry and that’s often not okay.

Jesus wept. (John 11:35)

When he visited the tomb of his friend, Lazarus, Jesus was moved to tears seeing the sorrow of those mourning his death. The verse comforts believers by showing them that Jesus had empathy for the grief, loss, and pain that humans endure. Despite knowing he was about to raise Lazarus, he felt for them in that moment. He had solidarity with the human heart.

The protective mechanisms built into our bodies are very subtle. The eyelids blink to ensure that the cornea remains moist, so we can continue to see clearly. It happens without us noticing. As soon as we put something in our mouths, our saliva starts to counter potential troublemakers in our food. When we change our position from sitting to standing, the biomechanics in the body readjust to ensure that we don’t fall over. A sense of balance in innate to us while standing and walking.

Crying also protects. It works as a pressure-release valve. When our emotions are intense and difficult to contain, crying helps to reestablish emotional equilibrium. It is a cue for connection with others as it is founded in our vulnerability as humans.

To stay with each other until the flood subsides.

To hold each other. Talk. Listen. Be present

That’s how we hold space for feelings, allowing them to be fully expressed.

That is how we experience divine love.

Resource:

CORe: Circle of Remembrance. A free online peer support group for bereaved parents, where crying is honoured.