Day 931

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Making everything better.

Sweetest memories come from mundane everyday activities.

When Saagar and I went for our weekly shopping, he loved to take full charge of steering the trolley around. He wouldn’t want me to touch it. Sometimes I would mistakenly place a hand on it and get a glare from him. Other times I would deliberately touch the trolley with the tip of my little pinky, just to get a reaction from him. I was never disappointed. He obliged. We also had a ritual of rewarding ourselves with a chocolate éclair each, on our way home.

Soon after Day 0, I couldn’t manage to go to that supermarket without a major heart-break. I would stand in front of the bakery section and cry like a school kid with sobs and tissues and both my fists covering my eyes. It didn’t matter who was around. It didn’t matter that I made a spectacle of myself. It just happened.

Today, it didn’t happen. We went there and finished our shopping. We went to the bakery section. Si stood beside me and put his hand on my shoulder as we got our chocolate eclairs. We went to the car-park, stood in the sun and enjoyed our sweet rewards. It felt like Saagar was there. He was there in our hearts and minds.

The Japanese have a word, kaizen. Kai means change and zen means good. Kaizen is based on the philosophical belief of continuous, incremental improvement. It believes that everything can be changed for the better. Nothing is ever seen as a status quo – there are continuous efforts to improve which result in small, often imperceptible, changes over time. These small changes add up to big changes over the longer term.

Getting better at getting better.

Day 928

Posted by kidsaregifts20

Metamorphosis

When something like this happens, it changes who you are and how you live your life. Your alignment with the universe shifts and you transform into an avatar of your former self. There are some similarities but huge differences.

I can’t remember what I used to be like.

Large swathes of my mental canvas have been rendered blank. Maybe it’s a defence mechanism. Maybe it’s the accelerated ageing process. Maybe shock and grief have gobbled up millions of my grey cells. Maybe part of my brain has mulched into pulp.

Whole new plantations have made an appearance in this barren space. I feel like I am going mad about MAD – making a difference. Writing was a miniscule and secretive part of my life but now it claims a lot of territory. I used to spend a lot of time and energy on my job. Now it takes up only a small part of my time. My job used to be satisfying and pleasurable. Now it sits in the back-ground. I find fulfilment in writing, connecting with people and volunteering my time to raise awareness of mental health issues.

Keeping Saagar alive through sharing his story seems like the most meaningful thing to do. Repeating his story as many times as it takes, to change things that need to change is of paramount importance.

Living in gratitude is the only way to live.

Last week I wrote this article sitting at the dining table in my parent’s house with the intention to mark the Mental Health Awareness week. Thankfully Huffington post published it today.

Thirty months on:

http://www.huffingtonpost.co.uk/sangeeta-mahajan/thirty-months-on_b_16412078.html

Day 927

Posted by kidsaregifts20

Westminster-Abbey-DrugFAM-10th-Anniversary

The bags from my journey home 2 days ago were still waiting to be unpacked. I was in two minds whether to go for the service or not. I could think of a hundred items I could tick off my ‘to-do list’ if I didn’t go. It was optional after all, even though I had booked a place for myself.

I have lived in London for nearly 11 years. I work 150 yards away from it and yet, have never visited the Westminster Abbey. This was my chance. If I didn’t go today, I would probably never make the effort.

‘A Service of Celebration and Hope’ was being held by DrugFAM.

A charity that provides a lifeline of safe, caring and professional support for families, friends and carers who are struggling to cope with the nightmare of a loved one’s addiction to drugs and alcohol.

Elizabeth Burton-Phillips lost one of her twins, Nick, to heroin addiction in 2004. During this harrowing time, she and her family had very little support. In 2006, she founded DrugFAM with the sole aim of ensuring that no family, friends or carers are left living in isolation, fear and ignorance of the support available.

Silence, shame and stigma – these terms apply to Mental illness and Drug addiction. Both remain deeply misunderstood.Both claim many young lives – lives worth talking about. Today’s service was a public acknowledgement of the strength and courage of those lost to addiction and of those who are still living with active addiction in their families. In her address Elizabeth quoted Robin Williams,”I used to think that the worst thing in life is to end up alone. It’s not. The worst thing in life is to end up with people who make you feel alone.” She said, ‘Today, no one in this Abbey is alone.’ It was indeed a celebratory, yet serene and unifying one hour. It was a renewed commitment to continue efforts to enable every human being to live with dignity, to be respected and to fulfil their potential.

Even though my ‘to do’ list was left untouched, I felt honoured to be there.

Day 925

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Vulnerability. Not weakness.

Stories are data with a soul. Researcher and storyteller Brene’ Brown has taken the time to take a deep hard look at shame and vulnerability.

She believes that ‘connection’ is neurobiologically why we are here.

Shame is fear of disconnection or not feeling like you are worthy of connection. For example, not good enough, not pretty enough, not strong enough, not rich enough and so on. All experiences of excruciating vulnerability.

After 6 years of researching ‘Shame’ she took a closer at a sub-group of individuals with ‘Worthiness’, people with a strong sense of love and belonging who believe they are worthy of love and belonging. She called them ‘Wholehearted’. This group had a few remarkable traits:

Courage – to be imperfect
Compassion – ability to be kind to themselves and others
Connection – ability to give up the idea of perfection

They fully embraced their vulnerability. They believed that vulnerability makes them beautiful. They were willing to reach out their hand first, to invest in a relationship that may or may not work out. It was not comfortable but they did it anyway.
Vulnerability is also the birthplace of tenderness, belonging, love and joy.

What makes us vulnerable?
The simplest things like asking for help, waiting for the doc to call back, initiating sex, loosing a job, asking someone out on a date and many more.

Why do we struggle with vulnerability?
The uncertainty is too uncomfortable. So we numb it.

At present, we are most highly addicted, medicated and obese populace ever.
We can’t selectively numb feelings.
When we numb vulnerability we also numb joy and connection.

The ways in which we deal with our discomfort with vulnerability are:

We make everything uncertain, certain, eg- religion.
We Blame- a way to discharge pain and discomfort.
We Perfect – most dangerously our children.
We pretend – like what we are doing doesn’t have an effect on people.

We need to let ourselves be seen.
To love with our whole hearts even if we are unsure.
To practice Gratitude despite the uncertainty because our vulnerability means we are alive.
Lean into joy and believe – I am enough.
That enables us to be kinder and gentler to the people around us and to ourselves.

Ref:

Book :
Daring Greatly by Dr Brene Browm
TED talk by Dr Brene Brown on Power of Vulnerability:

Day 923

Posted by kidsaregifts20

The idea of this blog was conceived in a state of utter shock and numbness. All I knew was that no one should suffer alone. I didn’t want anyone to experience the pain that was in me. All I wanted was to immortalise Saagar. I wanted to continue having him in my life on a daily basis. This blog was and is, my sacred time with my son. On some days it’s my life jacket. On others it’s a luminous shrine or a punch bag, a podium with a loud speaker or an art gallery, a story-telling exercise or a tear-soaked handkerchief, a rant or a vent.

Every week I hear back from people who have been touched by Saagar’s story.

Message from a Mum:

“I don’t know you my dear but I have to say your son is so beautiful and he is watching you from heavens and being happy that you are able to save so my kids by opening up …..virtual hugs from a mom who is dealing with the same disease your son fought i was able to hug my daughter today as i knew more what she is dealing with because of you rather than getting frustrated with her ……..thanks from the bottom of my heart for correcting me in dealing with this disease.”

Message from a lovely young lady:

“Hi S. It’s been a long time since I’ve seen you. I just wanted to say that when we met last summer and we had an emotional conversation about Saagar and life in general. Something definitely struck a chord with me. I’ve spent my whole life since I was a child, running away from my mental health issues. I had a complete breakdown shortly after seeing you. I’ve just been discharged from the Home Treatment team after a very difficult period. I’ve been diagnosed with Borderline Personality Disorder and am on the waiting list to receive the right therapy. Anyway, I just wanted to thank you because I think if I hadn’t had that conversation with you I wouldn’t have been able to open up to my family and ask for the help I desperately needed. I’ve been wanting to message you for a while but it’s taken me some time to accept that I have a mental disorder. I read your blog all the time and it’s inspired me to write my own about my own thoughts and experiences. Thank you for the amazing work you are doing to raise mental health awareness. Sorry about the mammoth text. I hope you are well and your yoga retreat plans are going well. Love, Z. x”

(Z’s blog: http://notasimplemind.wordpress.com)

Thank you! We are together. Never alone.