Day 728

A landscape of musical notes emanated from four musical instruments inspired by movement of people across the globe in search of a land of gold. When I closed my eyes, I could feel the magical textures at my fingertips and sense the turbulent river flowing and a lone vessel struggling to carry a tonne of isolation and desperation across to a place of hope. Vibrant colours could be heard and pathos felt in the core of my heart and every pore on my skin. The conversations and unison between those colours filled the space with absolute empathy for those forced to leave their homes, a cry against injustice of the refugee crisis. Crossing the Rubicon….dissolving boundaries…reunion…last chance…a boat to nowhere…

Land of Gold – an ode to those displaced.

Find the kind heart,
Rest your feet and soul.
May your kind heart
Find the land of gold.
Pay attention, say your name
Listen closely and keep warm.
Gentle hands, you are brave,
Look at me and carry on.
All is good, I love you.
You can hear me, you can call.
Sing your song with ease and pride.
I’ll be there, not far behind.
Tell them I walked
Tell them I walked your way
Tell them I walked
Tell them I walked your way

– By Anoushka Shankar

(https://www.youtube.com/watch?v=8MO1Ziql48w)

Day 727

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We got the TV installed just before my parents came to stay for a few weeks. We hardly ever watch it. This evening I happened to switch it on as I was alone at home. I watched a film on the Aberfan disaster, a catastrophic collapse of a coal mine spoil tip in a small Welsh village. This occured in October 50 years ago and claimed the lives of 116 primary school kids. One of the snippets showed the utter chaos of it and mothers standing in a long row, passing rubble and bricks away from the disaster site. The mums, now in their 70s and 80s choked up while relating the experience and shared the pictures and sweet little belongings of their kids. They also remembered the great difficulty they had in surviving this immense loss. They wondered what their wee ones would be like as grown ups. They would be in their 50s now!

Wow! What must that be like!

It’s strange that while I actively seek out programmes on mental health related issues and thus manage my deep sense of loss, when I am not seeking anything out, the radio, TV or life bring me face to face with it.

12th of October 2014 was a Sunday. Diwali, the festival of lights was less than 2 weeks away. Diwali signifies joy, love, reflection, resolution and knowledge and represents victory of good over evil and light over darkness. The annual Diwali Mela was being celebrated at Trafalgar Square. Saagar and I went along to that and ran into a photographer friend who took a few pictures.

I had no idea that those would be our last pictures together. Was I in darkness then and now I am in light? Or was I in light then and now I am in darkness? I don’t know.

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This is one of those pictures. This is what a terminally ill person looks like.

With all due respect to parents whose kids have suffered cancer, I sometimes wish Saagar had cancer. It would have been taken seriously and looked after by specialists. I would have been given some facts, figures and things to watch out for. I would have had a chance to tell him how much I love him. I would have had a chance to say good-bye.

Day 726

Sarah Fitchett is a neonatal nurse and a lecturer. She is also a mother bereaved through suicide. Like me, she is affiliated with PAPYRUS Prevention of Young Suicide Charity by way of fundraising and awareness raising. This is an e-mail from her:

“I delivered an awareness session to GPs in Birmingham last week and they were desperate for more training.  They were literally asking me,
“What should I say?”
“What if the answer is yes?”
“What am I looking for?
“There are no services available to signpost young people to – CAMHS is so stretched”
“How will I know?”
“How do I cope with losing a patient to suicide?”
I really hope they will come on ASIST.  Such a lot of work is needed. One of our young volunteers, a mental health nurse from Bristol self-funded a place on ASIST because she had no idea how to help someone at risk of suicide, neither did any of her colleagues. Her training hadn’t covered it and there was no training available to her.  A WM police officer self-funded a place on ASIST and used her annual leave to attend because so very much of her role is attending people in crisis.”

This is an article she’s written about the absence of suicide prevention training on the nurse’s curriculum and the stigma associated with suicide within the medical community: http://theconversation.com/even-nurses-arent-immune-to-the-stigma-of-suicide-66008

11th October 2014 was a saturday. I had tickets for the Omid Djalili show for us. Saagar loved stand-up comedy and I thought it might help him. He sat on my right. I watched his responses. He appeared to be under a cloud. He did laugh but his laughter was subdued. At break time I bought him a drink and for some strange reason it felt like a significant happening, like an unforgettable scene in an iconic film. It was the last time I bought him a drink. It was the last time we went for a show together.

Let us do everything we can to save young lives.

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Thank you Omid for bringing him some happiness. Even if it was short-lived.

But then, everything is temporary, short lived! 

Day 725

Another story.
Another young man.
Another family.
Another mother.
Same themes. Same gaps. Same cover-ups.

“Y went to University, experiencing life away from home for the first time. Although only a 40-minute train journey away, he lived in halls of residence, sharing a flat with four other students. I saw him at least once every fortnight and although I knew he was upset at the break up of his first serious relationship, there were no signs that he was struggling to cope with his studies or not enjoying university life. He appeared to be the same quirky teenager who made friends easily and faced challenges full on.

One Sunday he failed to come home for lunch with the family. Frantic, I drove to his halls where an ambulance and police car were parked and I was given the news that our beloved son was gone. It was another 24 hours before we discovered he had completed suicide. Nothing could have prepared me or our family.

Five months later we attended an inquest into his death where an open verdict was recorded, and the Coroner claimed that everything possible had been done by health care professionals to support Y following a university doctor diagnosing him with depression and prescribing anti-depressants. He had been referred for counselling and his university tutor was informed.

At the inquest, the GP had legal representation. A representative of the university’s counselling service gave evidence on behalf of the counsellor; a statement was read out from a doctor who had admitted Y to hospital following two incidents of self-harm, and another statement was read from the university tutor in whom Y had confided.

As a family, we sat completely dumbfounded that all of these people knew that our child was suffering from mental health issues. Not one of them had contacted any of us, or identified us as a ‘safety contact’, yet felt the need to be legally and professionally protected in court.

Just one month after starting university and following the break-up with his girlfriend, Y made his first suicide attempt. We were not informed. The reason we were given was that he was an adult and all of the professionals involved had a duty to respect his confidentiality. The counsellor’s representative commented that it was ‘possible’ that it ‘may have been suggested’ that Y talk to me about his situation, but she could not confirm that this was the case.

Had Lawrence been involved in any sort of accident then I would have been contacted immediately, but because his admission was a mental health issue the veil of confidentiality came down and prioritised clinical staff welfare rather than that of my son.

Did we as a family – or me, specifically, as his mother – fail him? We failed to see his suffering, but when he was around us he was the usual Y we all knew and loved.

Did the university fail him? Yes, they should have informed his emergency contact/next of kin that he had expressed suicidal thoughts.

Did the clinicians fail him? Yes, by averting culpability and absolving themselves within a care system culture that protects its own and isolates the patient from their family – the people closest to them and those who would have provided the love, care and protection that could have saved a young life.

As a family we felt that the ‘professionals’ closed ranks to protect themselves. In the weeks leading up to that awful day, and the months before the inquest, their self-protective instincts mattered more than the duty of care they had towards protecting our son Y, a caring, funny, intelligent young man with a whole lifetime of adventures in front of him.”

NO CONFIDENTIALITY WHEN IT COMES TO SUICIDE.

In Jan 2014, an official document was published – “Consensus statement on information sharing” (https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/271792/Consensus_statement_on_information_sharing.pdf)

“The statement applies to adults in England. Information can be shared where it is in the public interest to do so. In practice, this means that practitioners should disclose information to an appropriate person or authority if this is necessary to protect the child or young person from risk of death or serious harm. A decision can be made to share such information with the family and friends, and normally would be.”

Who’s left to deal with the loss for the rest of their lives? The people who never knew it was happening. The people who would have gone to any lengths to avert the tragedy. The people who had a right to be informed.

10th of october 2014 was a friday, the beginning of my last weekend with my darling son, the last italian meal we shared. All that is left now is a broken heart holding many beautiful memories on one hand and reliving the nightmare over and over again on the other.

 

 

Day 724

hef

First law of Thermodynamics : Energy can neither be created nor destroyed.

Within my basic understanding of physics, I think of it as: when breaks are applied to a moving car, the kinetic energy from the movement is converted to thermal energy causing the break-pads to heat up. Similarly the turning blades of a wind turbine transform wind (kinetic) energy into electrical energy.

May be each one of us is a field of energy. May be that is why the interaction between two people changes when a third person brings their energy into the equation. May be that is why we like someone for no reason at all and dislike someone for no reason at all. May be our energy can neither be destroyed nor created. So even after someone’s physical form disappears, their energetic form continues to exist. May be it just changes its expression. May be it flows through the people they knew.

Being with Saagar’s friends is comforting for me as I feel his energy in them. It’s the same for them, being with me.

I see our compassion grow. I see us being creative. I see us going out of our way to deepen our understanding of the human condition. I see us wanting to make the world a better place. I see us taking small steps. I see us all constantly loving Saagar and carrying his beautiful energy within us.