Day 219

‘Parity of Esteem’ is a phrase I heard on the radio today. It refers to making sure mental health gets treated the same way physical health does.

One in four people in the UK will experience a mental health issue over their lifetime. 3 in 4 people diagnosed with mental health problems are likely to receive little or no treatment for their condition. Even for psychotic disorders, around one third of people are untreated.

Treatment rates for most physical long-term conditions are much higher, in some cases over 90 percent. People diagnosed with a severe mental illness are nearly 4 times more likely to die from serious conditions such as heart disease or cancer related illnesses.

Mandate to NHS England makes it clear that:

  • mental health is just as important as physical health
  • there is a health gap between people with mental health problems and the population as a whole which should be closed
  • everyone who needs it should have timely access to the best available mental health treatment

NHS England is focussing its efforts and resources on improving clinical services and health outcomes by addressing five major areas as per a publication by Martin McShane from March 2014:

  • Improving Information – so we know where we need to improve care.
  • Improving crisis care – so that people with acute mental health problems get the sort of care people with physical health problems take for granted.
  • Improving physical health care– to tackle the risk of premature death which people with mental illness face.
  • Improving the way we plan and invest in mental health– so that commissioners give it the right attention and investment.
  • Improving services– establishing networks across the country with leaders who are passionate about improving care.

Given the cuts in government funding in the present economic climate, all this sounds like a pipe dream. In fact staff shortages put so much pressure on the staff currently working that they are starting to get demoralised and absenteeism is on the rise.

Moreover these changes require a cultural shift which takes a very long time. From my personal experience I can say that none of the 5 focus points mentioned above have been implemented as yet and it will be interesting to see how and when things change as proposed.

Day 216

A few things I learnt at a recent meeting on Suicide Prevention:

Only 25-40% of people who end their own lives have been  in contact with Mental Health services in the year before their death. So, it is everyone’s problem. It is important to educate everyone about recognising ‘at risk’ people; symptoms typically include dramatic withdrawal, reduced self-esteem, restlessness and agitation, severe hopelessness, acting recklessly, threatening to harm themselves and talking or writing about death.

A patient went to her GP with many of the above features and he said to her,” Why don’t you go shopping?” Not surprising at all. Is it? GPs are not trained adequately to deal with these situations.

Taking time to care and pay attention to everyone, no matter who we are or where we live and work, makes them feel valued. Each one of us can make a difference. It is our responsibility to:

  1. Ask.
  2. Listen.
  3. Give hope.

Very often the professionals will say that a particular suicide was ‘unavoidable”. Really? How do we know? Did we anticipate it? If yes, then did we do our best to prevent it? If not, then why not?

What is an acceptable suicide rate?

There needs to be a change in mindset. A cultural shift needs to take place. We need to believe that we can achieve a Zero Suicide Rate as some places in America have done.

As a society we need to:

  1. Talk openly about suicide as our problem.
  2. Remove access to means of suicide by tackling the hotspots such as multi-storey car parks.
  3. Improve access to Secondary (Specialist) care.
  4. Offer training to all professionals, especially GPs, police, airport and railway staff.
  5. Have a safety plan for patients with a known illness be it mental or physical, such as chronic pain and stroke, that might make them prone to suicide.
  6. Forget about the ‘risk assessment’ approach which is essentially a form of rationing. Do the same thing for everyone – have a safety plan.

Apparently each suicide costs the government £1.4 million. Police and coroners cost plus lost employment for the deceased person and the damaging impact on the people affected by the event. On an average 60 people are deeply affected by each suicide. So, even the treasury is interested in reducing the suicide rate.

Ask. Listen. Offer hope.

Day 212

Self-harmers are commonly looked down upon. They are considered by many as wasters : wasting their own time (seeking sympathy and attention), other people’s time and precious resources.

They are much misunderstood. Self-harm is a coping mechanism. It is a way of expressing very deep distress that cannot be put into words or even thoughts. It is an ‘inner scream’ that helps release emotional pain and show someone else how they feel.

Young women are most likely to self-harm, although the number of young men who do so is on the rise. Mental health problems, stressful circumstances (being homeless, being a single parent, being in financial difficulty), using drugs and alcohol are the commonest causes.

Myth 1: People who self harm don’t feel pain and therefore do not need painkillers to stitch wounds.

Of course they feel pain. They should be offered full assessment of their physical, psychological and social needs by a professional who has been trained in their treatment in an atmosphere of respect and understanding.

Myth 2: Young people who self-harm always have mental health problems.

Not always. Sometimes that is the only way they can cope with traumatic experiences from the past, for example, bullying or abuse.

Myth 3: Young people who self-harm want to commit suicide.

They often don’t. In extreme circumstances though, life can get too much for a young person and that is why it is important to seek help.

Myth 4: People who self-harm are just seeking attention or being manipulative.

Sometimes it is the only way they can express their pain, even though this can be very upsetting for those around them.

How can we help?

  1. Don’t ignore what’s happening.
  2. Tell them that you want to understand how they are feeling and want to help.
  3. Be honest about your feelings while not being critical of or blaming the young person.
  4. Emphasise the positive aspects of the young person’s life.
  5. Be realistic. They may not stop self-harming just because you want them to.
  6. Don’t take over but show you care.

Whether you are a patient or a carer, please seek professional help from GPs, psychiatrists, emergency departments, councellors, psychologists or psychotherapists.

(Source: http://www.bernardos.org.uk)

Day 206

Wonder if he knows how it has been since he left and what it is like for me and the rest of the family at present.

Today I am angry.

  • The bloody UK elections! What an awful outcome. It’s going to be all about the money, money, money  once again. The demise of the NHS as we know it is very near.
  • More non-clinicians will be making clinical decisions than ever before because they cost less.
  • The GPs will be given bigger financial incentives for not referring patients to specialist services. This has already been happening for the last 5 years as we all know.
  • The author of the above article writing as if cancer is the only illness that kills (no disrespect to cancer patients and families).
  • An even smaller budget for mental illness.
  • Having to use ‘sectioning’ as the only way to obtain medical attention for mentally ill patients thus ensuring a police record in their name.
  • Depressive illness still not getting enough attention due to insistence on care in the community, lack of education for medics and carers and the silent nature of the resulting deaths that make it easy for the government to ignore them.
  • I am annoyed with myself for having gone back to my old life – same job, same house, same, same, same, when none of it makes any sense.

This is a rant. Please ignore.

For dinner we had leftovers from the weekend. There was no zing in the food at all. Then I pulled out the little jar of mango pickle made at home by my Mum and added it to the plates. The meal was completely transformed from boring to yummy. Something so special! Mums are gifts too. They can comfort us even from afar. Thank you Mamma.

Day 193

“Antidepressants (Citalopram) may have a role in inducing worsening of depression and the emergence of suicidality in certain patients during the early phases of treatment. An increased risk of suicidal thinking and behavior in children, adolescents, and young adults (aged 18 to 24 years) with major depressive disorder (MDD) and other psychiatric disorders has been reported with short-term use of antidepressant drugs.”

(http://www.drugs.com/sfx/citalopram-side-effects.html)

My son was on Citalopram for the depressive phase of his illness for 4-6 weeks before Day 0. We could call it ‘short term use’. He was 20 years of age. He also had a major depressive disorder. The dose of Citalopram had been increased from 5 to 7.5 mg 2 days before Day 0. Were any side effects mentioned to me? No. Was he warned about this? No. Was he being monitored for this? No. Was he under specialist care? No. How many others out there are in the same situation? We don’t know. We do know that in some parts of UK, such as Blackpool, as many as 6 out of 10 people are on antidepressants.

Brain is the most poorly understood organ in the body. Hence it is not surprising that the drugs that are designed to treat a particular ‘brain disease’ might make it worse for a period of time.

“The bottom line is that rather than an enlightened and compassionate mental health system attending to the needs of our young, we have a dangerous and coercive system that stands impassive, not only in the face of repeated failures, but, unbelievably, of child deaths due to treatment.”

Jan Eastgate, International President Citizens Commission on Human Rights. USA.

Apparently it is not very different in America. Here is a detailed account:

http://www.fightforkids.org/silent_death_of_americas_children.pdf