death

Walking home.

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Every time we visited him in the Intensive Care Unit, he mouthed the line “Just take me home.”

We wanted the same. It was our prayer in every moment that we would be able to take him home. But how would we transport the things that were attached to him? The things on which his life depended – monitors, strong medications being infused through syringe pumps and the beeping robot that was supporting his lungs? Even if we transported those, who would man these gadgets and modulate them as required? The first step was to get him to breathe by himself. It was happening in bursts. Some days he looked so bright that it was easy to believe that it wouldn’t be too long before we could. Other times he seemed tired, simply from the effort of breathing. Of course, they were trying to help him come off the ventilator but sometimes it was too much for him. Despite their good intentions and gentle demeanour, it was too much for him.

One of the young residents encouragingly said, “Sir, we want to send you home soon. That’s why we’re making you work hard.” He pointed skywards with a wry smile, “That way?”

In the end, it was a long, slow goodbye.

“We’re all walking each other home.”

– Ram Dass.

Thirteen weeks

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Date of admission: 2nd Sept 2022 (Friday)

Date of Surgery:     5th September 2022 (Monday)

Date of demise:      2nd December 2022 (Friday)

Length of hospital stay: 13 weeks (91 days)

82 years old gentleman with no significant medical history was admitted for an elective Anterior Decompression of Cervical Canal Stenosis. He wanted to regain his confidence in walking and return to playing golf. He was not on any regular medications. He was not overweight, diabetic or hypertensive. He had no history of heart or lung disease. He lived independently with his wife in their flat on the second floor of a building that had no lift. He went out at least once or twice every day without much difficulty. He was an ardent and proficient bridge player. He drove his car to a friend’s birthday party one week before he was admitted to hospital.

He underwent an uneventful surgery but afterwards he lost power in all his limbs. They took him back to re-operate and make more space for the spinal cord that had swollen up, according to the MRI. That didn’t make any difference. His lungs were unable to work properly as the muscles of his diaphragm became weak. The domes of the diaphragm separate the chest from the abdomen. They play an important part in effective breathing and coughing.  Yes, surprisingly, the nerves to the diaphragm, originate from the neck (C3,4,5). They stopped conducting electricity. His lungs became unsupported.

His doctors said he’ll get better. It was just a matter of time. We needed to be patient. He needed help with his breathing so his windpipe was hooked on to a machine with numbers and waves and graphs and bleeps. He could not speak. No air came through his vocal cords.

Over the next few weeks he regained the sharpness of his mind and found that he was unable to breathe or speak, move or eat, turn from side to side in bed or have any control over his environment. He couldn’t really tell if it was day or night. The machines in the ICU made mad beeping sounds throughout the day and night and no one cared.

Patience wasn’t one of his best qualities but he was patient. Over the next few weeks he regained some strength in his forearms, enough to wave us hello and bye. Enough to blow us kisses and indicate that he was enjoying the music we were playing for him. Enough to bring his hand up to my ears and mouth the words “Nice ear-rings.” He learnt to communicate through his lip and arm movements. He said thanks to everyone who came to see him. He also said, “I love you” more than ever before. He smiled a lot despite his predicament.

His younger son is a writer and a storyteller. He told him a story of two well-known writers of modest means who visited a super-rich investment banker about something. In conversation the banker said he had great wealth, what did these two measly writers have? One of the writers said, we have something you will never have. “Really. What might that be?” He asked with a smirk.

“We have enough.”

After a moment, this patient father on Bed number 19 formed these words with his smiling lips, “I have enough.”

His lungs got infected five times in three months and the morale of his family went up and down like a yo-yo with him. No one knew what would happen next. In between, there were good times – going for a spin on a wheel chair, bowing to the statue of Buddha down the corridor, having bits of tomato-ketchup-flavoured-pringles with tiny sips of Coke, watching sparrows on frangipani trees. But this was not his chosen way of life. He had had enough. His heart had had enough. It stopped. The time to say good-bye left his doctors and nurses in tears too.

Ninety-one days of pure love and deep suffering. The former remains while the latter is done.

May there be peace for all beings everywhere.

“What will survive of us is love.” – Philip Larkin.

Varanasi

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This ancient city of learning and burning sits on the banks of the river Ganga which is home to Saagar’s ashes. We were here twice, within a few months of Saagar’s passing for various ceremonies related with the sudden and tragic nature of his death. A year ago, my Irish medium who I have come to rely on, informed me that the elaborate prayer services that were held for him here had been greatly helpful in freeing his soul. I have no reason to not believe her as everything else she tells me makes sense.

Last month I was back in this iconic city for a long weekend, celebrating the writings of my favourite 15th century poet and philosopher, Saint Kabir.

“Scholars are never made 

from reading countless books.

You only need to understand ‘love’

to be a true scholar.”

Twenty three years ago I left India as a motivated young professional thirsty for knowledge, professional growth and ‘success’. I was a naive kid. I did not know who I was. Now it feels like I’ve taken a tortuous and torturous route to finally come back home, to myself.

Yes, I passed many exams. In the year 2000, I traveled to Dublin for the day, for my first post-graduate exam at the Royal College. As soon as I returned home, Saagar, who was six at that time asked me, “Mamma, did you win?” A huge smile descended on my face and my entire being. I forgot about the stress of that day and the preceding months and got lost in our cuddles and giggles.

I did grow in my work and was ‘successful’ but the most important lesson I am learning is to understand, experience and be love.

The only lesson that is worth learning.

Long shadows

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A few months after Day 0, at a SOBS (Survivors of Bereavement by Suicide) meeting at the All Saints near Euston, I met a father who said, “Eight years” when I asked him how long it had been since his son died. I looked at his face as if he was the most spectacular and wondrous impossibility of the world. Is it possible to live as long as that after the death of a child? He was proof. It was. I had never seen anyone who had been bereaved that long, standing and smiling and speaking sense.

Last Monday I joined the 3 dads on the last leg of their long walk to Westminster alongside many people who want the government to add suicide awareness and helpful resources to the school curriculum. We walked and talked in the rain. I said ‘Nearly eight years’ in response to how long has it been since my son passed. I got the same look from a young mum recently bereaved. She stopped and looked into my eyes through the thick rain drops. Past and future, face to face. “Gosh! Does it get any easier?” she asked. It does, I replied, holding her hands.

All these years I have tried to keep Saagar alive in every way I could – writing, public speaking, teaching Youth Mental Health First Aid courses, advocating for young people, working with various people, charities, NHS, Churchill Trust and other organisations, making films and so on.

I have read other people’s accounts of loss, hoping to lessen my pain and deepen my understanding. The latest book I read was ‘The Year of Magical Thinking’ by Joan Didion. She says:

“I know why we try to keep the dead alive: we try to keep them alive in order to keep them with us.

I also know that if we are to live ourselves there comes a point at which we must relinquish the dead, let them go, keep them dead.

Let them become the photograph on the table.

Let them become the name on the Trust accounts.

Let go of them in the water.

Knowing this does not make it easier to let go of him in the water.”

Eight years! No time at all.

“Time is the school in which we learn.

Time is the fire in which we burn.”

  • Delmore Schwartz.

Grey day

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I didn’t light his candle today. Not because I forgot. But I just couldn’t be bothered. He left without saying bye. I know it’s silly to bring this up now, after so many years. He needed to do whatever it was he needed to do. He needed to go. I understand. But the missing makes my heart crumble again and yet again. How is it possible to keep going after its smashed so many times? It feels like the old yellow rubber duck in his bath, being stamped heavily upon, by a topless angry Arnold Swarzenegger wearing big black military trousers and boots. What is this thing that pretends to drum in my chest, tattered and torn?

He broke the rule. Saying good-night was our ritual for many years. After settling him in his bed, I religiously kissed him on his chin, both his cheeks, first left and then the right, his closed eyes, first the left and then the right and then, once on his forehead. He put his little arms around my neck and we both held each other for a short while before I switched off the light and went to my room. We loved it and slept peacefully.

He didn’t respect our little rule. Maybe he couldn’t. But, I deserved at least, a proper good bye. But then, can anyone truly know who deserves what?

all my love,

endlessly

black and white portrait.

This night.

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He was born when I was 28.

The monsters of pain took him in his 21st.

I was in my 49th.

Today, he would be in his 28th. I am in my 56th.

7 years ago, this night was his last in this house.

I am here tonight. Sleeping in his room.

7 years it takes for all my cells to be replaced.

7 chakras. 7 cycles.

7 colors. 7 musical notes.

7 days clumped into a week.

A bunch of random dates. Time as a thing.

Not straight. A mirage.

Revisiting.

Revolving. Rotating.

An illusion. A thought.

A future forgot.

Grow. Mature. Flower. See.

A constellation upon which I sit as fully me.

Push through the glass wall of Time. Release.

Rise and fall

free.

Come October.

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Such slashing-sloshing wetness that the roads can’t take it. Such a dense grey blanket overhead that the light-switch needs to be flicked on before brushing my teeth, early in the morning. So windy that the umbrellas are bending and twisting into funky shapes, not fit for purpose. This has happened before.

Leaves starting to morph into colourful blades, beginning the descent of their curtains from clean pristine branches high up in the air down to the messy wet Earth, departing the very same points from where, not so long ago, they had sprung. This has happened before.

Some globules of rain clinging to the outside of the window pane, a crescent of heaviness at their lower edges. Quite still. Others making a dash down to the ground with quick wiggly lines disappearing behind them. The glass pane, an alive fashionable frosted sheet of artistic dots and lines, dancing. This has happened before.

This planet, tilted to perfection on its axis, keeping precisely to its orbit in accordance with the laws of creation. Doing what it was made to do. Billions of clumps of matter scattered all over the limitless expanse of space, each on its own path, own trajectory, appearing out of nothingness and then sparkling out of existence, unnoticed. This has happened many times before.

The tenth month is here again, at the cusp of two seasons. A climate of colours and shadows. Its steep, slanting sheets of light illuminating the trees in their sheer nakedness, foreshadowing the arrival of the dark. This too has happened before.

Things people say.

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Dr Indu was broken inside out. She felt like a big black boulder and could barely hold her weight. After all these years of marching on alone and doing the ‘right’ things, this was her reward. Most of her friends had no clue what to say or do. After a few days it was clear that many of them could only stand by her for a week or 10 days max. This is when Indu remembered a passing acquaintance, Ruhi, a girl who wore long flouncy colourful skirts and big dangling ear-rings made of feathers and other dreamy things. She thought of her as a girl even though Ruhi had silvery grey hair and was seven years older than her.

Indu wanted to see Ruhi again. She didn’t know why but it had to be done. Indu posted her an invitation and as back-up, sent her a text with details.

The clear bright day was trying to cover-up the immensity of this death. Ruhi came in a flowing black dress with multiple strings of black wooden beads in various lengths cascading down, from her slender neck to her shapely waist. The ends of her long black sleeves opening-up like flowers to reveal her delicate hands. Not only did she have a pink lip-gloss on but also a serene smile. On this tearful day, she smiled on as if that was the most natural thing to do. No defiance or disrespect. A subtle involuntary smile, puzzling and misplaced.

She walked up to Indu and held both her hands in hers for a few frozen moments. She went on to open her arms and enclose Indu in them like a baby. “One day you’ll be grateful for this”, she whispered in her ear. By now Indu was used to hearing non-sense like “be brave”, “you’re so strong”, “such is life” and so on. She had learnt to ignore a lot. It took too much out of her to do anything more than that. “You have no idea what this is like” she thought to herself, feeling like a duplicate of herself amongst all these people. She drew back from Ruhi and looked into her dark brown eyes through her tearful ones. “Believe me. You will” Ruhi said softly.

Seven years have passed. Now Indu is as old as Ruhi was then.

And she remembers her horror at what Ruhi had whispered in her ear that day. The chains are falling off. Her vision is clearing. She notices more, within and without. She wants to live the truth. Be it. She knows it now. It’s all a ‘seeming’. All of this. It’s so clever. It fools us into believing it’s real. She has felt the presence of the divine in her broken heart. The blessings of a few fleeting golden moments of absolute grace have left her charmed with life and thirsty for more.

Indu and Ruhi meet up at the café that plays Bossa Nova jazz all day. They catch-up over large mugs of cappucino, sing and dance and take long walks together. They laugh and cry with abandon. Both wear pink lip-gloss and without knowing, they smile. Light as dust.

Logotherapy

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It was late 1930s. He was a young man in love. She was a young woman who was delighted to be asked by him. They were married. Soon she was to be a mother. But the clan they belonged to were not allowed to procreate. She was made to abandon the baby even before it was born. They both were sent to different concentration/death camps. But their love story did not end there.

Despite shoveling snow with no shoes on, going for months without proper food, constant beatings and humiliation, not knowing which instant he would be walked to his death, he carried on loving her. He did not know if she was dead or alive but he loved her every second. He hoped to see her again. His longing kept him alive.

Four years later, he was freed and he found out that his sweetheart had passed away soon after their separation, at the age of 24. His father, mother and brother had met the same fate in that ugly assault of humanity on itself. His sister had survived and moved to a faraway land.

Viktor E. Frankl was a Psychiatrist. He took 9 days to pen down his learning and thoughts which became a book – ‘Man’s Search for Meaning’ that sold millions of copies all over the world as it helped them transform their suffering .

He pioneered a new way of counselling patients called Logotherapy or ‘meaning-based-therapy’. When asked of the difference between Psychoanalysis and Logotherapy, he said, “In Psychoanalysis the patient must lie on a couch and tell you things which sometimes are very disagreeable to tell. In Logotherapy the patient may remain sitting erect but he must hear things which sometimes are very disagreeable to hear.”

It is a future focussed approach through which the patient is reoriented toward his unique and specific attributes aligned to a purpose which can be fulfilled by him/her alone. It is based on the premise of freedom – the freedom to choose our response to our experiences, the freedom to choose the stance we take when faced with a difficult and unchangeable situation.

Over the last 5 years I have read Frankl’s book at least 5 times, each time deriving new inspiration. Last week I had the good fortune of being able to share some of those insights on-line with a community close to my heart. The Compassionate Friends helped me discover that Frankl’s love story will never end. It is interwoven into yours and mine and with the love-stories of those yet to come across it.