The garden

No home to return to this time. A few months ago, we were feeling un-anchored while planning our upcoming summer-break in the UK. No home to return to this time.

I sat down, thinking, this was a chance to make a home in another part of the UK for a few weeks, wondering where that might be. By the sea. Somewhere quiet and quirky, not-too-long a train-ride from London. Devon! We’d spent a delightful few days with friends there  last year. I looked up houses for short lets and a cabin appeared. It was available for the duration. It was solely solar powered with a good fridge-freezer and all amenities. Most of all it boasted of an array of outdoor spaces. The photographs were a feast. We booked it before it was taken. In our minds our holiday had begun.

On the day, our hosts were at the car park to receive us and help us with our luggage. They asked us if we knew the story of the garden on the clifftop, where our cabin was located. We didn’t.

Jason was an accomplished young geologist, working at a Diamond mine in Angola.

“On 8th November 1998, the Yetwene mine was attacked by rebels. Several of his colleagues were killed and Jason along with 3 expatriates and 5 Angolans were last seen being herded into the bush.  For many years the families were led to believe their men folk were alive.  What followed the disappearance of the men is a story still waiting to be told. When someone ‘disappears’ in such circumstances, it means there is no defined moment when ALL family members can accept the missing person IS dead.  Each person comes to accept that inevitability at different times, in different ways – and even then, there can be an extended period of time when you believe he’s dead but hope he’s alive.  Oscillating between those two states.  He must be dead, but he may be alive!

When the hammer fell signalling this plot was now the Pope family’s – it was an emotional moment for Nev and Alan.  Did it mean they both accepted their son was dead? (Sadly, the answer was “No”.)”

Of all the places we could’ve landed up in, we are here, in a memorial garden by the sea, with the family of a young man who did not come home, a family that actively sought answers, remembered and talked about things and lives that matter.

Can anyone claim to know which is worse?

Knowing your son is dead or not knowing if he is?

This question is invalid as no one can judge any loss as ‘good’, ‘better’ or ‘worse’. I cannot know how Nev felt then and how she feels now. She cannot know how I feel. Sometimes I can hardly identify my own feelings. How can I claim to know anything of others? No one can. It may be a good guess but only in the head. Not in the bones, the middle of the chest. Not in the experience of the drag of gravity.

This is a joyful garden of fragrant pink roses and hand-made big-eyed metallic spiders, massive and tiny, dotted around. It has a playful feel to it. It is clearly, all about love.

If the path of grief is a loving humbling pilgrimage, this is a perfect shelter along the way.

(Resource: Circle of Remembrance – peer-led support groups for bereaved parents)

Am I eleven and a half?

( From ‘Wonder Walkers‘ by Micha Archer)

A father, on his daughter’s third death anniversary declared, “I am three today. I started my new life, three years ago. Now, I am a toddler. In a new world, I am learning its new language. Often, I make things up. Right now, I can only ride a bike with three wheels. I know only a few numbers. Some are etched on my memory. I can socialize but before long, must return to familiar spaces. There is so much I don’t know yet, and I am learning to be okay with all my unanswered, perhaps unanswerable questions.”

You cannot enter any world for which you do not have a language. I have been yearning for a better kind of language for as long as I can remember. I am creating my own in a new way. I simply make up words and sentences that I want to say and hear. They may sound silly to the world, but I am finding the balance between courage and fear, between confusion and clarity.

The violence within, frightens me. Sometimes I am very alone with it, and I wonder who I am. Who else can I be? This fear is a kind of intelligence I know but where does it live in me? What am I afraid of? How can I put a language to it? How can I create a friendship with it? And with the confusion, the unknown?

Saagar’s death will not become the primary definition of me, I say.

Does this happening seek my permission or has it already claimed its place?

Am I already eleven and a half?

The C – Word

It might explode like a grenade thrown into a small room. I worried that everyone might be put right off by it. They might log out, log off, shut their laptops and go for a walk.

What do you mean ‘Celebrate’? What is there to celebrate? Nothing. NA – Not Applicable.

After a severance such as this. The death of my child? How can I? To me, it does not apply. I belong to another club now. Here, the air is laden with a sense of exclusion and non-deserving. Here, the rejection of invitations to celebrate is automatic.  

Memories of our kids. The foods they loved, toys, TV shows, films, books, nursery rhymes, practical jokes, school and Christmases. Our hugs. Sweet stories revealed through their friends after they died. Their hidden kindnesses. Laughter. Tears. A whole life worth remembering. Worth honouring. Celebrating.

What of us? Parents. Alive. Old labels stripped off and new strange ones slathered on. The ground beneath our feet taken away and replaced with quicksand. Our identity shattered. Life in the After becoming something resembling life. An unthinkable exile. Aloneness, inside the non-understanding of the world. Every day, a fight. A reconciliation. Every day, showing up and facing whatever shows up. Keeping the broken bits of our hearts held together with the glue of love inside our silently sighing chests. Still alive.

The invitation at the Circle of Remembrance was to celebrate ourselves for being here. Now. It did not go off like a granade in a small room. No one left in a huff. It was accepted graciously. At the end of an hour and a half, the virtual space was filled with acknowledgement of things to celebrate – our love, patience, resilience and compassion reflected in this poem by Lucille Clifton written in the 1960s. We can replace ‘nonwhite and woman’ with any other phrase:

won’t you celebrate with me

what I have shaped into

a kind of life? i had no model.

born in Babylon

both non-white and woman

what did I see to be except myself?

i made it up

here on this bridge between

star-shine and clay

my one hand holding tight

my other hand;

                        come celebrate

with me that everyday

something has tried to kill me

and has failed.

PS: Circle of Remembrance is an international online peer-support group for bereaved parents that has been effectively working for the past three years and four months. Please visit the website http://www.core-community.com to learn more. Please recommend it to any parents you know who might be struggling alone after a tragic loss.

Thirteen weeks

Date of admission: 2nd Sept 2022 (Friday)

Date of Surgery:     5th September 2022 (Monday)

Date of demise:      2nd December 2022 (Friday)

Length of hospital stay: 13 weeks (91 days)

82 years old gentleman with no significant medical history was admitted for an elective Anterior Decompression of Cervical Canal Stenosis. He wanted to regain his confidence in walking and return to playing golf. He was not on any regular medications. He was not overweight, diabetic or hypertensive. He had no history of heart or lung disease. He lived independently with his wife in their flat on the second floor of a building that had no lift. He went out at least once or twice every day without much difficulty. He was an ardent and proficient bridge player. He drove his car to a friend’s birthday party one week before he was admitted to hospital.

He underwent an uneventful surgery but afterwards he lost power in all his limbs. They took him back to re-operate and make more space for the spinal cord that had swollen up, according to the MRI. That didn’t make any difference. His lungs were unable to work properly as the muscles of his diaphragm became weak. The domes of the diaphragm separate the chest from the abdomen. They play an important part in effective breathing and coughing.  Yes, surprisingly, the nerves to the diaphragm, originate from the neck (C3,4,5). They stopped conducting electricity. His lungs became unsupported.

His doctors said he’ll get better. It was just a matter of time. We needed to be patient. He needed help with his breathing so his windpipe was hooked on to a machine with numbers and waves and graphs and bleeps. He could not speak. No air came through his vocal cords.

Over the next few weeks he regained the sharpness of his mind and found that he was unable to breathe or speak, move or eat, turn from side to side in bed or have any control over his environment. He couldn’t really tell if it was day or night. The machines in the ICU made mad beeping sounds throughout the day and night and no one cared.

Patience wasn’t one of his best qualities but he was patient. Over the next few weeks he regained some strength in his forearms, enough to wave us hello and bye. Enough to blow us kisses and indicate that he was enjoying the music we were playing for him. Enough to bring his hand up to my ears and mouth the words “Nice ear-rings.” He learnt to communicate through his lip and arm movements. He said thanks to everyone who came to see him. He also said, “I love you” more than ever before. He smiled a lot despite his predicament.

His younger son is a writer and a storyteller. He told him a story of two well-known writers of modest means who visited a super-rich investment banker about something. In conversation the banker said he had great wealth, what did these two measly writers have? One of the writers said, we have something you will never have. “Really. What might that be?” He asked with a smirk.

“We have enough.”

After a moment, this patient father on Bed number 19 formed these words with his smiling lips, “I have enough.”

His lungs got infected five times in three months and the morale of his family went up and down like a yo-yo with him. No one knew what would happen next. In between, there were good times – going for a spin on a wheel chair, bowing to the statue of Buddha down the corridor, having bits of tomato-ketchup-flavoured-pringles with tiny sips of Coke, watching sparrows on frangipani trees. But this was not his chosen way of life. He had had enough. His heart had had enough. It stopped. The time to say good-bye left his doctors and nurses in tears too.

Ninety-one days of pure love and deep suffering. The former remains while the latter is done.

May there be peace for all beings everywhere.

“What will survive of us is love.” – Philip Larkin.

Come home, my darling.

I still hear the key turning in the door from the outside and you stepping in. Can you believe it? I still see your face, darkened by the sun. Dressed in your cricket whites, you drag your massive cricket-bag-on-wheels behind you by your left arm.

“Did you take the sun-screen with you?” I ask.

“Yes, it’s in the bag.”

“Did you actually put it on?’

 “Mamma, I’m hungry.”

I still wait for you to join us for dinner. I cook the foods you like, especially on your birthday: spinach-paneer for mains, chocolate mousse for dessert. I wonder what you’d be doing in this realm if you were here. Job? Girl-friend? How silly! Isn’t it? I can’t help it. It’s involuntary. It’s got something to do with the heart. With longing. With missing. With love. It’s not supposed to make sense. You would have had a good old chuckle at my expense if you were here. But you are not and I am. How random is that?

I still remember the first time I felt you elbow-ing or knee-ing me from inside my tummy, as if we had an inside joke between us. I remember holding all three kilos of you in my arms for the first time. I couldn’t believe you were for real. You were all mine. Now my arms ache with emptiness. Is this real?

Do you miss me sometimes?

Happy birthday my darling.

Heaven

It will be the past

And we’ll live there together.

Not as it was to live

But as it is remembered.

It will be the past.

We’ll all go back together.

Everyone we ever loved,

And lost, and must remember.

It will be the past.

And it will last forever.

                      – A poem by Patrick Phillips, on the New York subway.

(“Ghar aa” is a Hindi phrase that means “Come home”)