Day 973

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The days are just packed.

Days come and go, one after another, in a silent single file. Left to me, I would let the disciplined procession pass quietly. Luckily, it is not left to me alone. Si is an expert at creating things to look forward to. Never before has my diary been so full of fun things to do. Even when the diary is blank, he comes up with ideas that make the day go by in the most enjoyable way.

We had no plans for today but then we needed to buy hose connections to water our tiny garden. A trip to the garden centre meant we walked around with a trolley and looked at things and found a few that would be nice for the house. Before long, we had to get a second trolley for things we hadn’t thought of before we entered the store.

Dolly Parton famously quotes, “my definition of happiness is having something to do what you love to do, someone to love and something to look forward to.”

One argument against constantly wanting something to look forward to could be that it takes our attention away from the present moment. Yet, the two do not have to be mutually exclusive. Simple things like half an hour of peace to meditate or write a journal, a walk with a friend, a bike ride through the park, a warm shower or a bubble bath, trying out a new restaurant, a long chat with a friend on the phone, reading a book, cooking something nice and sharing with friends, a good stretch, a massage, a dance or exercise class can be uplifting. However, ‘doing’ something all the time is no fun. Doing less may be the answer for some.

Coming from a place of gratitude and abundance, looking forward to something is fabulous!

Thanks for helping me see that, Si.

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Day 971

Truth will set you free. But before that, it will piss you off. 

If you’ve heard public speaking gurus speak publicly, you will know that not all of them are as fantastic as they think they are.

This is a snatch from a private conversation:

“When I was first married, I was right on time with the biological clock which set the pattern of correctness and timely dutifulness and the predictability of a marriage that lasted 14 years, kids, two of them, of course, divorce, a second marriage which was a disaster because, like everyone who divorces after 14 or 18 or 22 years, you’re crazy as a loon and you don’t know it and you think you’ve learnt so much and now you know what you really want and then this man shows up who tells you that you’re the one he’s been looking for forever and your body wakes up and you feel attractive and valued and excited about life again and so what if he’s a lot younger than you and even though all your friends and all the books and articles warn you that it’s too soon, that you need at least a year or two to figure things out, what’s the rush etc etc, you’re so caught up in the look in his eyes and, besides, he seems to know what he’s doing and it just feels so good to be in love and lust again that you go ahead and marry him and then it takes a week or two, maybe a month to figure out that you blew it. All your friends and books and articles were right. I mean he doesn’t even know the words to your favourite songs but then it takes a year or two to finally give up and get out and then you finally meet someone right for you. You marry him and you don’t see it coming. One morning two weeks before Christmas when you’re reading the newspaper over a cup of coffee and you are in your nice home with your nice husband and you are suddenly terrified that your life will continue exactly as it is until the day you die and you realise you better put your seat belt on because lunacy is sitting in the corner behind the Christmas tree, and it just irritates the hell out of me that all this is part of the schedule, you know, all that midlife crisis stuff, and I’m right on time as usual. I am a compulsive punctual, having a nervous breakthrough.”

That’s a stump speech. Showing up to yourself.
Write one for yourself. I will too. Answer four questions:

Where am I going?
Why am I going there?
Who’s going with me?
How will I get there?

Day 968

Artspace

‘Art should comfort the disturbed and disturb the comfortable.’ – Cesar A. Cruz

Yesterday’s play on ‘Shifting perspectives’ through theatre and today’s trip to the Dragon café brought this truth home.

The work done by the patrons of the Dragon café was compiled into a big black book called ‘Artspace’. Looking through it was an immersive experience. Some brought me comfort and some disturbed me, making me a mixture of ‘comfortable’ and ‘disturbed’.
I shall let you find out how they make you feel.

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Certain events or times of day are more difficult – like being alone late at night, or having arguments. During these times it can often be more difficult for us to feel a sense of hope, to feel connected to the idea of safety, to feel our own resilience. This is the times when ‘self-care’ is essential – taking time out to be kind to ourself, to find activities that feel good, or allow us to connect with ourself again. Self-care is about caring for ourself, inside and out.

Focusing on the present moment, the present activity, whilst allowing thoughts and feelings to just be – has a long history of helping people with their mental wellbeing. By allowing ourself to become absorbed in the moment it’s possible to feel a sense of calm and focus that can distract from painful thoughts and feelings. No wonder colouring books for adults and kids alike are taking a special place on book store shelves.

Here’s PAPYRUS’ bright idea

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Day 967

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One of the actors at the above workshop, who is also a mentally ill patient in recovery spoke about his insights, “I realised that as long as I depend on the State to look after me, I will be met with the lowest common denominator. This brought me to the conclusion that I may not have control but I have agency.”

After I got home, I looked up the meaning of ‘agency’ to figure out exactly what he meant. Agency is an ‘action or intervention producing a particular effect’. For example, many infectious diseases are caused by the agency of insects. Synonyms to this effect are: influence, power, effect, force, means, channels, routes, mechanisms and techniques.

In effect, he was referring to ‘self-help’. He was saying, “I have the power to change my situation.” It was inspiring for me to hear him say that. That statement reinforced the message of the workshop – there is a very thin line between the well and the ill. Role reversals are common. Sometimes visible. Often not.

I came away from there with a mixed bag of feelings. On the one hand, I could clearly see the daily struggles of mentally ill patients and on the other, their brilliance shone through. I wonder how Saagar would have been, had he got through that big dip.

May the force be with you. And me.

Day 965

Guidelines, guidelines everywhere…

NICE guidelines on ‘Bipolar Disorder in Adults’ regarding the role of families and carers state:

“Quality standards recognise the important role families and carers have in supporting adults with bipolar disorder. If appropriate, health and social care practitioners should ensure that family members and carers are involved in the decision‑making process about investigations, treatment and care.”

“Why is it that some psychiatrists sometimes don’t fully appreciate the views of carers and involve them in the care of a patient when NICE guidelines clearly state that it should be otherwise?” I asked a senior psychiatrist casually during a recent conversation. “Traditionally” he said, “doctors were sons and daughters of doctors, their friends and spouses were often doctors and those were the people they spoke with. Carers didn’t fit into that box. It’s a cultural thing, still lingering. Hardest thing to change – a mindset.”

India gets criticised for its caste system. In other countries it exists in other forms – the power dynamic between different groups of people in different strata of society. As the Grenfell tragedy unfolds, I see how the management didn’t  take the resident’s concerns seriously. What is the nature of Tenant-Management relationship? Who is disadvantaged?

Any number of guidelines cannot change deep-rooted, unconscious biases. Only humanity can.

Mrs May visited the site but couldn’t speak with the residents for ‘security’ reasons and because she is very tired after her recent election campaign. Being with them would have taken compassion. And humanity. I wonder if this was a Mayfair tower wether she would have felt more secure and less tired.