Day 967

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One of the actors at the above workshop, who is also a mentally ill patient in recovery spoke about his insights, “I realised that as long as I depend on the State to look after me, I will be met with the lowest common denominator. This brought me to the conclusion that I may not have control but I have agency.”

After I got home, I looked up the meaning of ‘agency’ to figure out exactly what he meant. Agency is an ‘action or intervention producing a particular effect’. For example, many infectious diseases are caused by the agency of insects. Synonyms to this effect are: influence, power, effect, force, means, channels, routes, mechanisms and techniques.

In effect, he was referring to ‘self-help’. He was saying, “I have the power to change my situation.” It was inspiring for me to hear him say that. That statement reinforced the message of the workshop – there is a very thin line between the well and the ill. Role reversals are common. Sometimes visible. Often not.

I came away from there with a mixed bag of feelings. On the one hand, I could clearly see the daily struggles of mentally ill patients and on the other, their brilliance shone through. I wonder how Saagar would have been, had he got through that big dip.

May the force be with you. And me.

Day 966

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It seems like that was another lifetime. Some moments however last forever. My mind has been dancing in overlapping elliptical, circular, zig-zag and squiggly shapes between the remotest past and the far future and deep inside this bottomless present moment. I find gems scattered all around. Today the moment when I first saw his face shone the brightest. I picked it up. I held it in both my hands, looked at it for a while, felt it, kissed it and held it close to my heart. This is where he lives. In my heart, in the past, the future and the Now.  That moment from another lifetime is mine again.

Experiences can only be experienced. Not explained. Ones who has experienced it know it, ones who haven’t can have a guess. Some songs say it all. This one does. It speaks to me. It’s a song of love. Roberta Flack sings to my heart. She knows how I felt the first time ever I saw his face.

“The first time ever I saw your face
I thought the sun rose in your eyes
And the moon and the stars were the gifts you gave
To the dark and the endless skies my love
To the dark and the endless skies

The first time ever I kissed your mouth
I felt the earth move in my hand
Like the trembling heart of a captive bird
That was there at my command my love
That was there at my command my love

And the first time ever I lay with you
I felt your heart so close to mine
And I knew our joy would fill the earth
And last ’till the end of time my love
And it would last ’till the end of time

The first time ever I saw your face
Your face, your face.”

Day 965

Guidelines, guidelines everywhere…

NICE guidelines on ‘Bipolar Disorder in Adults’ regarding the role of families and carers state:

“Quality standards recognise the important role families and carers have in supporting adults with bipolar disorder. If appropriate, health and social care practitioners should ensure that family members and carers are involved in the decision‑making process about investigations, treatment and care.”

“Why is it that some psychiatrists sometimes don’t fully appreciate the views of carers and involve them in the care of a patient when NICE guidelines clearly state that it should be otherwise?” I asked a senior psychiatrist casually during a recent conversation. “Traditionally” he said, “doctors were sons and daughters of doctors, their friends and spouses were often doctors and those were the people they spoke with. Carers didn’t fit into that box. It’s a cultural thing, still lingering. Hardest thing to change – a mindset.”

India gets criticised for its caste system. In other countries it exists in other forms – the power dynamic between different groups of people in different strata of society. As the Grenfell tragedy unfolds, I see how the management didn’t  take the resident’s concerns seriously. What is the nature of Tenant-Management relationship? Who is disadvantaged?

Any number of guidelines cannot change deep-rooted, unconscious biases. Only humanity can.

Mrs May visited the site but couldn’t speak with the residents for ‘security’ reasons and because she is very tired after her recent election campaign. Being with them would have taken compassion. And humanity. I wonder if this was a Mayfair tower wether she would have felt more secure and less tired. 

 

 

 

Day 964

Grenfell fallen

127 flats
24 storeys
20 residential levels
400-600 residents
4 mixed levels of community areas and residential flats
2016 refurbishment completed

Fire Sign

The tower was built in 1974. It was recently made to look pretty for £8.6 million pounds. Lower 4 floors were remodelled, creating nine additional homes, better heating and communal facilities.

1 am, Wednesday, 15th June : A fire started at the 4th floor and rapidly engulfed the entire tower. Source unknown.
No alarms. No sprinklers. No warning.
40 fire engines and 200 fire fighters.
More than 24 hours to bring the blaze under control.
17 reported dead so far. Count rising. Many hospitalised. Many missing.

Heart-rending stories of people trying to save their kids and themselves in any way possible. Firemen and women traumatised by what they saw. Families distraught. Neighbourhood shattered. London shaken.
Previous warnings by residents ignored. False assurances given.
All to do with money. Cheap material used for encasing the building. Each unit not adequately isolated.
Recommendations made by inquiries into similar previous fires not implemented. All to do with money.

Our country cannot provide its citizens with proper medical care, education or housing. First world country?
This is what it must be like in countries like Syria, Yemen and Lebanon where every day, unmanned drones drop ruinous bombs on innocent unsuspecting civilians. We are all the same people.

We don’t need aliens. Thank you. We are clever enough to self-destruct.

Day 961

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Cycling again, I feel happy. Alive.
Every few hundred yards, hordes of pristine white conical lilies smile at me. The first time I saw a black and white picture of one such lily was 18 years ago. For the next 5 years it was the largest picture in our house. It filled our space and me with a sense of peace and beauty. I remember being mesmerised by it the first time I saw it. The fact that one single petal could shape itself into this exotic flower, stupefied me. The contrast with that particularly deep shade of green never fails to capture my eyes. Its elegance leaves me speechless.

It has many names – trumpet-lily, arum-lily and calla-lily. Botanically speaking, it’s not a lily at all. It derives its name from ‘calla’, the Greek word for beauty. In the 19th century, there was a flower-language boom that meant certain flowers were associated with expressing particular feelings. There was no need for words. No surprise that it was the theme of many artistic works.

The calla-lily came to play a role in the Christian Easter service as a symbol of Jesus’ resurrection. In art throughout history, the calla-lily has been depicted with the Virgin Mary or Angel of Annunciation. It is associated with purity. As it blossoms in spring, it is also a symbol of youth and rebirth. It’s appropriate for weddings and funerals. It symbolises love, devotion and grief.

While mostly white, they are also found in other colours, each one carrying a different meaning. Pink has a connotation of admiration, purple denotes passion and yellow is typically associated with gratitude. Black ones are truly enigmatic and carry a certain mystery.

“The modest Rose puts forth a thorn,
The humble sheep a threat’ning horn:
While the Lily white shall in love delight,
Nor a thorn nor a threat stain her beauty bright.” – By William Blake

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Georgia O Keeffe’s most famous painting – Keeffe Calla Lily