Towards the end of 2020, a series of phone calls with mums and dads from the USA, Australia and the UK resulted in the formation of an on-line peer support group that has met every other Saturday evening for an hour and a half. The first meeting was held in the middle of January 2021. We’ve recently had our 32nd meeting. The group provides a warm space for sharing and offers non-judgemental listening and understanding. It provides a fertile ground for post-traumatic healing and growth. We call it CORe: Circle of Remembrance.
The loss of a child is different from other losses. The purpose of CORe is to honour our children, to create an opportunity for sharing our inner and outer experiences and to seek tools and mutual understanding for establishing a firmer ground of compassion, from which to live our new lives.
Over time, I have come to appreciate my need for a tribe to belong to. Other people who are also living through the loss of their child validate our experiences, witness our pain and help us feel less alone.
After many years of trying to make sense of something so treacherous, I now know that it is impossible to make any sense of it. However, I also know that it’s possible to create a new path for ourselves. A path of learning and peace.
It has been an honour for Si and me to facilitate the CORe group of roughly 20 friends and witness their journeys. The rich, life-sustaining conversations and friendships within the group are a delight to be a part of.
It therefore gives me great joy to invite bereaved parents to a new group that will meet on alternate Wednesdays from 7.00 – 8.30 pm (UK time). Please visit the website of CORe (link below) for more details and testimonials and sign up if you would like to join. In our experience with the Saturday group, the upper limit to attendees is 25. Once we have about 15 members, we’ll get started. The tentative start date is 4th May 2022.
It would be a bit much to say they are friends. But they are very fond of each other and meet up as often as they can which is about twice a year. They both care deeply for young people and support each other’s work. One is a dedicated mother of five. Keeps a beautiful house and garden. Cooks the best food. Sews gorgeous clothes and looks amazing. The second woman has one child who stopped living a few years ago. She doesn’t care much about her house or garden. Can’t use a sewing machine. Doesn’t pay much attention to her appearance.
The second woman appreciates the first one’s invitation to lunch. They sit at the dining table on top of which appear five large aromatic dishes straight from the oven – roasties, grilled carrots and broccoli, kale chips and baked salmon marinated in exotic spices.
As they settle down with their plates, the first woman starts “My Anne has been challenging since she was little. When she was six and we lived in South America, she got it in her head that she wanted to make a cloth tent. We went to the shops and she chose the materials in the green colour she likes. I put it together the best I could and then she wanted buttons and ribbons to go on it and I did all of that. When the tent was ready, I put it up in the living room before she returned from school with great anticipation. She took one look at it and declared “I no like.” She kicked it. It went lopsided and she went up the stairs to her room.”
“My Mike is dreadfully over-confident. He can charm anyone into telling him their secrets. He can make anyone laugh ….. And my Noel! He’s a big architect in Leeds and I love his girl-friend. She is so down-to-Earth. I am so glad they found each other …. And when they asked me what I wanted for my birthday …. And when we all went on a holiday ….. And when they got engaged …. And my Lisa! She is such a good designer. She comes up with original patterns for her tops and I stitch them for her. She carries her dresses like a model …. And my youngest… Oh! He’s full of ….”
The second woman places her attention on the delicious meal. She has no invitation to speak.
Over and over I asked myself – Now what? Now what? What happens after a severance such as this? How long do one’s bones bleed? Do the tears ever finish? What does ‘recovery’ look like? Is it even possible? How does one keep placing one foot in front of the other? Where is the road? Where does it come from? Where does it go? How long and meandering is it? When does the screaming in my head stop? How long can I keep up the facade? Pretend to be sane? Is this what a new diagnosis of a terminal illness feels like? Is forgiveness possible? Self-forgiveness? Acceptance? Surrender? All these big words! Surrender what? To whom? Who am I now? What do I do?
No answers. Silence. The tilted earth keeps spinning around its imaginary axis. It keeps cradling me. The sun stays at the center of its orbit. My son stays at the center of my being. My breath keeps coming and going. I grow new eyes. My bones carry my weight even though they bleed. The road appears under my feet. It reveals itself one step at a time. Rumi and Khalil Gibran come and hold my hand. The screaming softens. The wall of bricks that was my body, loosens. I come to know the terror and the joy of being insane, catch glimpses of being free. Respect for those who went before and sadly others, who follow. I stop fighting with the big words and keep it simple. Watch. Observe. See. Open. Let the gash in my heart, allow the light in.
It was late 1930s. He was a young man in love. She was a young woman who was delighted to be asked by him. They were married. Soon she was to be a mother. But the clan they belonged to were not allowed to procreate. She was made to abandon the baby even before it was born. They both were sent to different concentration/death camps. But their love story did not end there.
Despite shoveling snow with no shoes on, going for months without proper food, constant beatings and humiliation, not knowing which instant he would be walked to his death, he carried on loving her. He did not know if she was dead or alive but he loved her every second. He hoped to see her again. His longing kept him alive.
Four years later, he was freed and he found out that his sweetheart had passed away soon after their separation, at the age of 24. His father, mother and brother had met the same fate in that ugly assault of humanity on itself. His sister had survived and moved to a faraway land.
Viktor E. Frankl was a Psychiatrist. He took 9 days to pen down his learning and thoughts which became a book – ‘Man’s Search for Meaning’ that sold millions of copies all over the world as it helped them transform their suffering .
He pioneered a new way of counselling patients called Logotherapy or ‘meaning-based-therapy’. When asked of the difference between Psychoanalysis and Logotherapy, he said, “In Psychoanalysis the patient must lie on a couch and tell you things which sometimes are very disagreeable to tell. In Logotherapy the patient may remain sitting erect but he must hear things which sometimes are very disagreeable to hear.”
It is a future focussed approach through which the patient is reoriented toward his unique and specific attributes aligned to a purpose which can be fulfilled by him/her alone. It is based on the premise of freedom – the freedom to choose our response to our experiences, the freedom to choose the stance we take when faced with a difficult and unchangeable situation.
Over the last 5 years I have read Frankl’s book at least 5 times, each time deriving new inspiration. Last week I had the good fortune of being able to share some of those insights on-line with a community close to my heart. The Compassionate Friends helped me discover that Frankl’s love story will never end. It is interwoven into yours and mine and with the love-stories of those yet to come across it.
It wasn’t just a physical transportation but also an emotional one. For four weeks I was not an anaesthetist or a wife. I was just a traveling (Churchill) Fellow, curious to learn everything about ways of supporting vulnerable people through crises, advocacy for struggling families and attempt survivors, intentional and effective peer support, safe care-transitions and timely compassionate support for families, friends and communities affected by suicide.
Two contrasting towns with distinct landscapes. Concord in New Hampshire was a small, friendly town resplendent with autumnal beauty, a quiet serenity and a lot of ‘heart’. New York, a big blustering metropolis with clanking trains, crazy-ass driving (yes, worse than London), much honking and many high-level policy-makers. Hence, more like the ‘head’ of the suicide prevention community.
Since Saagar’s passing, I have not been on my own for that length of time. Especially as his 5th anniversary fell right in the middle of it. It was not easy living fully immersed in the world of Suicide prevention (SP) almost every day for a month. Sometimes it was overwhelming and ‘too much’. It turned out that I was not alone. I was met with much warmth, kindness and understanding. Some old friends made time to catch up with me and some new friends emerged.
One sunny autumn day I had the pleasure of riding a 3-person- tandem bike with an amazing couple who have cycled thousands of miles in tandem all over the world for the past 27 years. On the 16th Ann (an excellent SP trainer) and I went for a nice long walk in the woods in Derry with Dr Indiana Jones, her Border Collie. This was followed by a much needed brunch at a classic American ‘Red Arrow’ Diner where I had the best ever Tuna melt sandwich.
Polly’s pan-cakes was our destination one afternoon as we set off towards the north – Elaine, Pauline and I. We spoilt ourselves with a rich variety of pancakes before taking a walk along the river and visiting ‘The Basin’.
On my return to the UK, I joined the 50th anniversary celebrations weekend retreat of an amazing charity that supports bereaved parents and their families. It’s called ‘The Compassionate Friends’. The film below captures many aspects of the experiences as bereaved parents/siblings. Changed forever.
I am happy to be back home and back at work. My life greatly enriched, I hope to share the learning and bring about changes for the better, working with various charities, the NHS and the Mayor’s office as effectively as I can. Right now I am assimilating it all, bit by bit by bit.