Mental Illness

Working and celebrating together

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She could be my younger sister by two weeks. She’s survived and survived again. She’s been through so much mentally and physically but her spirit remains undefeated. Our children brought us together – Saagar and Stephanie. Both these young people were musically gifted, very compassionate and super-good-looking. This earthly realm proved to be too harsh a place for them both. It turned out their mothers were doctors, feeling betrayed by the very system they had been a part of. They were trying to understand the shortcomings in that system, make them visible and bring about change. They both felt guilty. They felt inadequate as mothers and as doctors. Each of them understood the other, without need for words.

Stephanie’s dad kept putting one step in front of the other, walking and running, cycling and swimming in memory of Stephanie. A strong believer in collaboration, he brought people, their efforts and voices together. He raised thousands of pounds and supported the endevours of individuals and charities to create more hope in the world. A dutiful father and husband, he looked after everything the best he could and continues to do so.

He believes that ‘using our Lived-Experience and working together, we will prevent future deaths.” I salute him and Stephanie’s mum for showing us what is possible when we connect and continue to cherish the memories of Stephanie. I thank them for their friendship which continuously enriches my life and warms my heart, even from across the oceans. I am grateful that together we can manufacture any excuse for a party. I feel blessed to know these two exceptional people with whom we can celebrate our children and our lives.

Happy Belated Birthday Doug! The party is due.

Nights – 3654.

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A hundred and twenty months. Ten years. An outrageous survival.

Each night angry, uncharitable.  Sleep. No sleep. Dreams. No dreams.The death of so many. Dreams.

In my dreams, I plead with you. Please stay, Be’ta.

We’ll find a way. Don’t give up yet. Don’t go away.

Come here. Sit with me.

Tell me what I need to know. Tell me what hurts you so. Tell me how I can make it go.

I could guess when you were hungry, thirsty.

To your amused annoyance, even when you wanted to pee. I just knew. I don’t know how.

But this one I did not see coming.   I couldn’t. I don’t know how.

I am sorry. I had no map. I was lost in the fast lane.

In my dreams, our dark sides are friends.

Together they figure it out, Have a laugh, make it all okay.

In my dreams, we breathe together nice and slow,

As if singing a joyful melody. We hold hands and dance in our kitchen

Crying on each other’s shoulders, secretly.

From the fridge, I pull out a white china bowl

Filled with pomegranate seeds,

Rubies, I harvested earlier in the day. Please stay, my Jaan. I would say.

In my dreams,

through my furious longing

I can momentarily understand.

Your pain, your silence.

I can understand why you had to go.

Like a boat sailing into a new morn,

I must release you.

I must stay.

I must let you be on your way.

In my dreams.



(An ancestor of this poem is Walt Whitman, who said, “We were together. I forget the rest.” )

170,000

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– the number of suicides in India every year. India holds the top position in the world in very few things. This is one of them. Of these deaths, more than 40% are under the age of thirty. Both these facts possibly underestimate the problem due to poor data collection, criminalisation of suicidal attempts, inefficient registration systems, lack of medical certification of deaths and biggest of all, stigma. Every eight minutes a young Indian person dies by suicide. Year on year, the rates are rising by 4-7%.

The incidence of student suicides surpasses population growth rates. Over the last decade, the number of student suicides increased from 7,696 to 13,089.

Source: A report released on Sept 10th 2024: Student Suicides: an epidemic sweeping India.

Today, to mark World Mental Health Day, a brave young lady, Jayeta Biswas, published an article remembering her brother, Jayanta. Aside from revealing some shocking statistics, it lamented the seriously negative societal attitudes towards poor mental health and suicide in India:

“A home that was always filled with visitors when my brother was alive saw no one from his school, college, professional life or network after his departure. None of his friends, including those he had contacted in his last hours – attended his funeral, nor did they visit our house. I am certain that this is because they heard that he died by suicide.”

We have a long way to go as a society but small school initiatives such as SEHER give me hope.

Early autumn

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How can people not know that their coat buttons are misaligned and one side is hanging lower than the other? One buttonhole is so very obviously exposed at the top, middle or at the bottom. And one button hanging loose somewhere along that vertical line. How can they not notice before they leave their front door? I used to be baffled when I saw patients like this in the hospital or random people on the streets, oblivious of this blatant asymmetry.

This afternoon, I went walking around my neighbourhood, taking delight in the profusion of red oval rosehips on roadside bushes and the yellowish-brown tinge starting to appear at the edges of leaves. Dense clouds were threatening to break open and fall on my head while my head was in the past. A few years ago, this date would have been a busy one for me.

10th of September – World Suicide Prevention Day

Not today. After years of searching for answers, raising awareness and trying to change the narrative, I have stepped back from it all. I accept the mystery that is life and death. I have slowed right down and found this to be the right way to live, for me.

Death is not a defeat or a failure. It’s not caused by a weakness or a flaw. It simply is. Its timing is its own. It has a wide range of imaginative excuses to visit. We like to impose a timing on it but it is a free agent.

Yesterday, a friend asked “I would love to show you my boy’s wedding album but it must be hard for you to see things like that because your son … Do you ever wonder how things might have been if he was alive?” After a brief silence, I replied “Every time my mind wants to go there I point out the one big assumption it’s making – if he was alive he would be in good health. I don’t know that. In fact, I don’t know much about anything at all. That allows me to live in awe, in wonder. I would love to see your boy’s wedding album.”

As I ambled along the empty streets this afternoon, I felt we are all dying a little bit every moment of every day, amidst celebrations and conversations, hopes and aspirations. Just then I noticed that the right side of my shirt-dress was hanging three inches lower than the left. The top button on the left side of my neck was hanging loose.

Resource: Online support for bereaved parents: Circle of Remembrance: http://www.core-community.com

It’s a story. It’s not a story.

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Last weekend I was part of a team of volunteers. The Compassionate Friends hosted a summer retreat for parents who have lost a child to suicide or substance use. We expected seventy parents to arrive, some as couples, some by themselves. Many of us drove for many miles through road works and traffic jams. Some changed trains more than once and persevered through serious delays due to fatalities on the tracks on two successive days. Even though their own hearts ached, they traveled from all over the UK to Leeds.

The venue was a new one, Hinsley Hall. It was true to the pictures on its website – majestic. Having never worked there before, many of us arrived a day prior, to familiarise ourselves with the space and allocate rooms to activities depending on their size and suitability, getting to know the staff and setting out folders, notice boards and programes.

The job at hand was to belong to those who attended and have them belong to us. I went up to my room and drew the curtain. I gasped at the view. My window looked over a deep-green lawn with dark old trees and two parallel hedges with patches of yellow.

As the participants arrived through the gates, we welcomed and escorted them despite their visible anxiety and fatigue, a reluctance to acknowledge their eligibility to be here, attending this retreat. Slowly, cups of tea, coffee and glasses of water loosened the atmosphere.

At the Writing workshop, words like ‘disassembled’ and ‘brown silt’ were shared and felt. A bronze sculpture of a young woman in the courtyard, standing with her arms wide open was a constant encouragement to open our hearts.

Over the next couple of days, each of us felt seen, listened to, acknowledged and our grief felt witnessed. Friendships were born. There was much laughter and many tears flowing through truck-loads of memories. Grace was at work. It was allowing something within us to soften and relax.

At the end, one mum said she met some lovely people and found much comfort and connection. Another said, she met herself, this time with gentleness.

Being there, volunteering, was a good way to honour Saagar’s  life and mine.  What better way to spend our days than to hold our kids, ourselves and each other in a warm embrace?

I am here. He is here.