Every day a good day?

After one year of near-perfect climatic conditions, when it rains non-stop for three whole days and nights, one starts to notice the changing inner weather-system.

Isn’t everything pristine as is? A day is a day. Clouds are nothing but clouds. Trees are simply trees. Nothing good or bad about them. They are what they are. When seen through a clean lens, things can be seen as they are. The smudges come from our judgements. It is one thing to notice how they make us feel and another to blame them for being there.

He shouldn’t have made that horrible remark.

The car was seriously misbehaving.

That fire-door nearly broke my arm.

What a noisy bunch!

Mango good. Jack-fruit bad.

Sun good. Rain bad.

Birth good. Death bad.

Untimely. Preventable. Tragic. Etc. Etc. Blah…blah…blah…

It is absolute. So is the mango, the rain, the love. Absolute.

One day I will die. I live, remembering that each moment that I am alive is a miracle. I am way beyond my preferences, opinions and thoughts. I am not them. They are not me. That every day is a good day, I am beginning to see.

Walking home.

Every time we visited him in the Intensive Care Unit, he mouthed the line “Just take me home.”

We wanted the same. It was our prayer in every moment that we would be able to take him home. But how would we transport the things that were attached to him? The things on which his life depended – monitors, strong medications being infused through syringe pumps and the beeping robot that was supporting his lungs? Even if we transported those, who would man these gadgets and modulate them as required? The first step was to get him to breathe by himself. It was happening in bursts. Some days he looked so bright that it was easy to believe that it wouldn’t be too long before we could. Other times he seemed tired, simply from the effort of breathing. Of course, they were trying to help him come off the ventilator but sometimes it was too much for him. Despite their good intentions and gentle demeanour, it was too much for him.

One of the young residents encouragingly said, “Sir, we want to send you home soon. That’s why we’re making you work hard.” He pointed skywards with a wry smile, “That way?”

In the end, it was a long, slow goodbye.

“We’re all walking each other home.”

Ram Dass.

Thirteen weeks

Date of admission: 2nd Sept 2022 (Friday)

Date of Surgery:     5th September 2022 (Monday)

Date of demise:      2nd December 2022 (Friday)

Length of hospital stay: 13 weeks (91 days)

82 years old gentleman with no significant medical history was admitted for an elective Anterior Decompression of Cervical Canal Stenosis. He wanted to regain his confidence in walking and return to playing golf. He was not on any regular medications. He was not overweight, diabetic or hypertensive. He had no history of heart or lung disease. He lived independently with his wife in their flat on the second floor of a building that had no lift. He went out at least once or twice every day without much difficulty. He was an ardent and proficient bridge player. He drove his car to a friend’s birthday party one week before he was admitted to hospital.

He underwent an uneventful surgery but afterwards he lost power in all his limbs. They took him back to re-operate and make more space for the spinal cord that had swollen up, according to the MRI. That didn’t make any difference. His lungs were unable to work properly as the muscles of his diaphragm became weak. The domes of the diaphragm separate the chest from the abdomen. They play an important part in effective breathing and coughing.  Yes, surprisingly, the nerves to the diaphragm, originate from the neck (C3,4,5). They stopped conducting electricity. His lungs became unsupported.

His doctors said he’ll get better. It was just a matter of time. We needed to be patient. He needed help with his breathing so his windpipe was hooked on to a machine with numbers and waves and graphs and bleeps. He could not speak. No air came through his vocal cords.

Over the next few weeks he regained the sharpness of his mind and found that he was unable to breathe or speak, move or eat, turn from side to side in bed or have any control over his environment. He couldn’t really tell if it was day or night. The machines in the ICU made mad beeping sounds throughout the day and night and no one cared.

Patience wasn’t one of his best qualities but he was patient. Over the next few weeks he regained some strength in his forearms, enough to wave us hello and bye. Enough to blow us kisses and indicate that he was enjoying the music we were playing for him. Enough to bring his hand up to my ears and mouth the words “Nice ear-rings.” He learnt to communicate through his lip and arm movements. He said thanks to everyone who came to see him. He also said, “I love you” more than ever before. He smiled a lot despite his predicament.

His younger son is a writer and a storyteller. He told him a story of two well-known writers of modest means who visited a super-rich investment banker about something. In conversation the banker said he had great wealth, what did these two measly writers have? One of the writers said, we have something you will never have. “Really. What might that be?” He asked with a smirk.

“We have enough.”

After a moment, this patient father on Bed number 19 formed these words with his smiling lips, “I have enough.”

His lungs got infected five times in three months and the morale of his family went up and down like a yo-yo with him. No one knew what would happen next. In between, there were good times – going for a spin on a wheel chair, bowing to the statue of Buddha down the corridor, having bits of tomato-ketchup-flavoured-pringles with tiny sips of Coke, watching sparrows on frangipani trees. But this was not his chosen way of life. He had had enough. His heart had had enough. It stopped. The time to say good-bye left his doctors and nurses in tears too.

Ninety-one days of pure love and deep suffering. The former remains while the latter is done.

May there be peace for all beings everywhere.

“What will survive of us is love.” – Philip Larkin.

Varanasi

This ancient city of learning and burning sits on the banks of the river Ganga which is home to Saagar’s ashes. We were here twice, within a few months of Saagar’s passing for various ceremonies related with the sudden and tragic nature of his death. A year ago, my Irish medium who I have come to rely on, informed me that the elaborate prayer services that were held for him here had been greatly helpful in freeing his soul. I have no reason to not believe her as everything else she tells me makes sense.

Last month I was back in this iconic city for a long weekend, celebrating the writings of my favourite 15th century poet and philosopher, Saint Kabir.

“Scholars are never made 

from reading countless books.

You only need to understand ‘love’

to be a true scholar.”

Twenty three years ago I left India as a motivated young professional thirsty for knowledge, professional growth and ‘success’. I was a naive kid. I did not know who I was. Now it feels like I’ve taken a tortuous and torturous route to finally come back home, to myself.

Yes, I passed many exams. In the year 2000, I traveled to Dublin for the day, for my first post-graduate exam at the Royal College. As soon as I returned home, Saagar, who was six at that time asked me, “Mamma, did you win?” A huge smile descended on my face and my entire being. I forgot about the stress of that day and the preceding months and got lost in our cuddles and giggles.

I did grow in my work and was ‘successful’ but the most important lesson I am learning is to understand, experience and be love.

The only lesson that is worth learning.

Long shadows

A few months after Day 0, at a SOBS (Survivors of Bereavement by Suicide) meeting at the All Saints near Euston, I met a father who said, “Eight years” when I asked him how long it had been since his son died. I looked at his face as if he was the most spectacular and wondrous impossibility of the world. Is it possible to live as long as that after the death of a child? He was proof. It was. I had never seen anyone who had been bereaved that long, standing and smiling and speaking sense.

Last Monday I joined the 3 dads on the last leg of their long walk to Westminster alongside many people who want the government to add suicide awareness and helpful resources to the school curriculum. We walked and talked in the rain. I said ‘Nearly eight years’ in response to how long has it been since my son passed. I got the same look from a young mum recently bereaved. She stopped and looked into my eyes through the thick rain drops. Past and future, face to face. “Gosh! Does it get any easier?” she asked. It does, I replied, holding her hands.

All these years I have tried to keep Saagar alive in every way I could – writing, public speaking, teaching Youth Mental Health First Aid courses, advocating for young people, working with various people, charities, NHS, Churchill Trust and other organisations, making films and so on.

I have read other people’s accounts of loss, hoping to lessen my pain and deepen my understanding. The latest book I read was ‘The Year of Magical Thinking’ by Joan Didion. She says:

I know why we try to keep the dead alive: we try to keep them alive in order to keep them with us.

I also know that if we are to live ourselves there comes a point at which we must relinquish the dead, let them go, keep them dead.

Let them become the photograph on the table.

Let them become the name on the Trust accounts.

Let go of them in the water.

Knowing this does not make it easier to let go of him in the water.”

Eight years! No time at all.

Time is the school in which we learn.

Time is the fire in which we burn.”

  • Delmore Schwartz.