Vite Vine

Darling Saagar,

You learnt your English in the UK from English-speaking people. I learnt it in fits and starts from Hindi/Punjabi/Bengali-speaking folk in India. It was not a surprise that you were only 10 when you took it upon yourself to start correcting my English. All the time.

“Saagar, please would you close the vindow?”

“The parent’s meeting is on Vednesday. No?”

“Where does the best Vite Vine come from?”

You would be all over the floor. What was funny? These were simple questions. In Hindi, there is an equivalent for ‘v’. None for ‘w’. The sound of ‘w’ is learnt. I learnt it and can apply it to everything except nouns. Must be a genetic aberration. I had a huge sense of achievement when I made you laugh, given my sense of humour was nothing compared to yours.

Other words that I spoke wrongly were – rebel (re-bell), adolescence (a-doll-essence) and such.

Sometimes I knowingly uttered incorrect sentences, so you could correct me, playing with your predictable pleasures.

“Bought a really nice t-shirt today.” you said.

‘What colour?’

“Not ‘what colour’ Mamma. It’s ‘which colour’.”

‘Ah. Right. What colour?’ I asked again with a crooked smile.

Rolling-up your eyes, shaking your head from side to side.

“Parents!”

Laughter.

We’re in lockdown at present, Saagar. Long story! I can’t help thinking how fab it would be to have you home. We would have so much time together to try new recipes, to exercise and laugh, play carom and do some gardening, relax and watch funny cat-videos and so on…

Time … tic-toc, tic-toc … gone forever.

My mind plays silly monkey-tricks with me. The rascal. I watch it. Holding my own, I am not getting carried away with it. I am being the witness (vitness).

You are here, with me always.

I love you.

Yours,

Mamma.

The Sliding.

Ryan woke up at least twice every night to run to the loo. But last night he moved like a little whirlwind under the sheets. Sue slept through most of it but found it peculiar. She didn’t say anything, lest it disturb him but he disturbed her at least every hour without knowing it.

She woke up feeling tired at 6.30 am. It was a Monday morning. The day of the week didn’t matter much any more as both of them had recently retired. She as a head-mistress of a primary school and he as an accountant.

Their daughter lived in Liverpool with her boy-friend. Her job as a personal trainer at David Lloyds was less than they’d hoped for her. Her boy-friends spoke funny but for a living, wrote speeches for prominent people. The phony politicians who couldn’t even write what they wanted to say to the people they represented.

Sue put the kettle on and freshened up while it whirred. She put two green and gold Wedgewood cups and saucers on a tray along with a matching milk pot and a tea pot large enough to hold 4 cups. She entered the bedroom with the tray. Instead of sitting up in bed thumbing his phone, Ryan was flat on his back. His eyes red and fine vertical lines above his nose.

‘Morning!’ she sang, ‘You ok darling?’

With a smile, she placed the tray on his bedside table and placed her hand on his forehead.  

“Yes. I’m fine.” Said Ryan.

‘Did you sleep well?’

“Not really. The temperature in this room was all over the place. Couldn’t settle.”

The temperature was just fine, she thought but decided to stay mum.

‘Care for a cuppa?’

“Yeah. Sure.” Ryan raised his head off the pillow. An oval wet patch was imprinted on the white cotton pillow case. He quickly turned it around and stood it up against the cushioned head-board. She noticed but did not comment. She poured the golden-brown tea into the cups and added a few drops of milk for him. Over this first month of their retirement they had been falling into a nice little routine. Opening the day with a shared pot of tea was a special pleasure for them both. It made space for the rest of the day to slide into their lives.  

“What shall we do today?” she asked Ryan.

‘I miss my work. All the friends I had. My clients. The window in front of my desk. The 11 am coffee with colleagues. The laughter. I even miss the commute. I never thought I’d hear myself say that but it was nice. I miss all that.’

“Yes. I am sure. I miss my work too but not much. Shall we go to the garden centre and get some saplings? This is a good time for planting. The Organic Café does some nice coffee too.”

‘Let’s see. I might just enjoy the sun-shine in our garden today.’ He got up to visit the loo again. This was not like Ryan. He was the one who normally put ideas forward and she was the one who normally said yes or no.

As soon as he left the room, she put her cup down and stood up to get a closer look at the other side of his pillow. It was definitely damp. She peeled back Ryan’s side of the duvet. The bedsheet underneath him was certainly moist. It smelt of him. Only stronger. This was unusual.

Sue’s pulse quickened. She’d heard of people working really hard all their lives and then dying soon after their retirement. She shoved her silly thoughts aside and waited for Ryan to come back, trying to focus on the delicateness of the tea.

When Ryan came back, she was surprised to hear the puffing sounds of his breathing. His brow had started to glisten.

“Would you rather have a lie-in Ryan?”

‘No. I am ok. Nice tea. Don’t make an old man of me. I’ll be fine once I’ve had a shower. It’s funny. My left arm feels strange. Must’ve slept funny.’

Now she could hear her own heart pumping in her ears. But she kept it cool.

She managed a fake smile. A polite false agreement. She wanted to jump at the phone and dial 999 but didn’t want to scare Ryan.

“There’s no rush to have a shower. More tea?”

‘No. Thanks. I’ll get myself a glass of water.’

“Don’t worry. I’ll get it for you.” She jumped.

At the kitchen sink Sue stood like a statue, staring at the water pouring down the hole in the stain-less steel basin. Is today the day my life changes for ever?

She debated with herself on what to do next. A tug of war went on within her. Does he know he’s unwell? Is he really unwell or am I imagining this? Is that new virus in him? In our house? In our bed? Will he be terrified if I tell him what I think? Is he just having the blues? Or a heart attack? Or an infection? Or nothing at all?

She carries the glass of water back to Ryan. He glugs it back and slowly slides back inside his duvet. She walks around to her side of the bed, slips under the covers and lays down right beside him, holding him with both her arms, a little bit tighter than usual.

Like a couple of soft cuddly toys, they snuggle up. In that moment, she has all she needs. Ryan breathing, resting right next to her. Her tears meld into her pillow. The past and the future disappear. In that moment, life is whole and complete.

The good times.

Once again I found myself sitting in the waiting room at a Healing Centre in Wales. I sat facing a wall covered with effusive and colourful thank-you messages plus baby pictures. They were addressed to the acupuncturist who had helped these women become mums. I was here to connect with my son through the beautiful, Moya, whom I have seen twice before. She is compassion personified. Each time I have met her, I have found great comfort in her readings and felt close to Saagar. So, despite Storm Dennis, train disruptions, a brewing respiratory infection and a serious jet-lag, I made my way up in water-proofs and a big red polo-neck jumper.

The first thing she mentioned was Varanasi. A seat of learning. A place of pilgrimage, where the temporality of this human body is clear to see. Of course, Varanasi, where Saagar’s ashes are immersed in the Ganges, where we had a prayer ceremony with 5 priests simultaneously chanting and carrying out various rituals for 5 hours to help Saagar’s soul transcend peacefully into another realm. Where my ashes will go.

Then came a string of other places and memories: Playing catching-catch on a beach in Port Rush, stepping over multitudes of hexagonal stones at Giant’s Causeway, crossing the flimsy Carrick-a-rede bridge, the 3-day trip on a narrow boat one beautiful summer, shopping in New York, visiting his Uncle, Aunt and new-born cousin in Chicago, admiring the moon and stars through the big Velux windows in his large loft conversion space. All these sweet things came up.

He wanted to present me a Cherry blossom. Did that make any sense to me? Yes. Coming up to March, we would be using Sakura in our Ikebana arrangements, bringing nature into our homes. A very special time of year for this Japanese art.

Moya said he is peaceful where he is. He understands that sometimes I breath deep and hard to stay alive and sometimes it feels like I am breathing glass and sometimes I wish I could just stop. He understands. And he holds all these happy memories and places that he cherishes.

He’s reminding me of the good times. I need to look at them and cherish them much more than I do. They were ours. They will always be ours.

The ocean and me.

That was the winter of 2014-15. This is the winter of 2019-20.

This was the beach in Goa where I sat paralysed for weeks. Some days I didn’t walk or talk. For days, I peered into my laptop, trying to figure out the ugly intruder who had broken into our house and taken my everything, my son. I swam in the whys and hows of this tragedy that had befallen us. The fact that my life continued while his had ended baffled me. I struggled with how that could be and what was the meaning and purpose of what was left. What now? What now? The question marks sprang up incessantly.

Si was with me then as he is today.

In this time, life has revealed that there is no one answer, no single destination, nowhere to go, nothing to do. All there is, is unfolding. The Universe endlessly expressing itself through this beach, the moon, the sand, the pain and me.

After dark, the wave fronts approach the shore shimmering like sword edges of the cavalry, roaring towards me and then breaking apart into a playful white surf and disappearing into the sandy slope. Again and again. Same but different. In the navy blue of the night it appears as though the special effects team has spent hours to make it look like this.

The lukewarm sand between my toes. The dancing waterline swirling around my feet. My hand tenderly held in Si’s. The rhythmic breathing of the ocean. The ins and out of my breath. The moon, an oval light overhead. The sea breeze ruffling my hair. The hint of salt in the air. The humidity, same as that in my eyes.

A pause. A break. A blank.

A moment holding everything within. It’s all here.

Soloman’s wisdom.

A parabel.

Soloman prayed to God “Give therefore thy servant an understanding heart to judge thy people, that I may discern between good and bad.” And his wish was granted.

And Solomon awoke; and, behold, it was a dream. And he came to Jerusalem, and stood before the ark of the covenant of the Lord, and offered up burnt offerings, and offered peace offerings, and made a feast to all his servants.

Then came there two women, that were harlots, unto the king, and stood before him. And the one woman said, O my lord, I and this woman dwell in one house; and I was delivered of a child with her in the house.

And it came to pass the third day after that I was delivered, that this woman was delivered also: and we were together; there was no stranger with us in the house, save we two in the house. And this woman’s child died in the night; because she overlaid it.

And she arose at midnight, and took my son from beside me, while thine handmaid slept, and laid it in her bosom, and laid her dead child in my bosom. And when I rose in the morning to give my child suck, behold, it was dead: but when I had considered it in the morning, behold, it was not my son, which I did bear.

And the other woman said, Nay; but the living is my son, and the dead is thy son. And this said, No; but the dead is thy son, and the living is my son. Thus they spake before the king.

Then said the king, The one saith, This is my son that liveth, and thy son is the dead: and the other saith, Nay; but thy son is the dead, and my son is the living.

And the king said, Bring me a sword. And they brought a sword before the king. And the king said, Divide the living child in two, and give half to the one, and half to the other.

Then spake the woman whose the living child was unto the king, for her bowels yearned upon her son, and she said, O my lord, give her the living child, and in no wise slay it. But the other said, Let it be neither mine nor thine, but divide it.

Then the king answered and said, Give her the living child, and in no wise slay it: she is the mother thereof.

And all Israel heard of the judgment which the king had judged; and they feared the king: for they saw that the wisdom of God was in him, to do judgment.

Footnote: Indifference kills. Love and wisdom preserve.

Could I?

She ran around chasing her multiple ‘to-do’ lists the whole time. She managed to tick things off it with fare speed. Yet her chores never ended. She didn’t allow herself the slightest slip-up. She slowed down for nothing or no one. Despite running herself down she kept carrying on. Yet she thought she wasn’t quite hitting the mark. There was so much more to do. She lived so much in the future that she could never see the landscape of her own heart or anyone else’s. She didn’t know that if your own cup is empty, you can’t fill someone else’s.

She thought she had everything under control. She didn’t ask anyone for help or advice. Even if they offered it, she seldom took it. She did her own thing. Deep down she knew that she didn’t know best but had no idea how to admit it. She took herself way too seriously. She bull-dozed her way around the marshland of her life and crushed a poor little soul every now and then. She didn’t know how to apologise even when she was truly sorry.

She took herself off to far-away places as and when she fancied, oblivious of the impact it would have on those left behind. She just wanted to fly high, be happy, be free. She made it look like she had it all figured out when in fact, she was lost. She had no names for her feelings. Somewhere along the way she had learnt that it was ok to be a martyr and a bully and she managed to play both those roles to perfection. She didn’t know that it wasn’t ‘hard work’ but kindness that made a life good.

She had been unfulfilled and ignorant in so many ways for so many years but she had no clue. She was under the impression that she was successful. There was so much that she did not know. But none of it was her fault.

Could I forgive her?

She was the mother of my son before Day 0.

Could I accept her? Even love her? Embrace her? Could I?

Ode to Fall

Spring falls

leaving traces behind  

on every leaf.

Leaves fall

As if in love

with the ground.

Trees

Display their skeletons

For Halloween.

Standing bereft

Pretending

To celebrate.

A curtain once green

Now a crunching

crispness

Beneath my feet.

Moon falls.

Full no more.

Light falls at

Slanting angles

Turning everything

to gold.

Apples fall

Fill the air with honey.

Acorns fall

All over the pavements.

Each one

A possible tree.

Crack. Crush. Crush.

Pumpkins sit

Outside every door.

Toothy smiles

To match the kids.

Kids fall.

Whimper.

Get up and go.

A season for cuddles.

For magical beauty

And transformation.

Night falls.

Love, let go.

Grow, let go.

Treatment versus Care

It was a clean, warm and open space with well-designed floral furniture in pastel blues and greens. It had plenty of natural light and pots of healthy looking plants thoughtfully dotted around the floor. The artwork on the walls was selected by someone who knew their stuff. It would be hard to guess that this was the entrance to the New Hampshire Hospital. which provides acute inpatient psychiatric services for all age groups.

As I was guided through the facility, I was enamoured by a lush beautiful big greenhouse, two well-stocked libraries, a massive gym for staff and patients, 3 cafés, an outdoor patio and play area for kids, a vegetable patch, a healthy colourful aquarium on wheels, loads of Halloween decorations all around, an art workshop and cooking class in progress, television screens, a chapel, a small shop, a pool table, a ping-pong table, lots of board games and cheerful group therapy, treatment and visitor’s rooms.

Each kid had a room to himself or herself with nice bed-linen of their choice. 2 adults often shared a room. The age groups were appropriately separated. The youngest patient there was 6 years old and the oldest a septuagenarian. The nurse’s station was not a demarcated area. It was part of the ward layout. Social workers, occupational therapists, doctors and nurses didn’t wear any uniforms. They were dressed in everyday clothes. Everyone spoke softly and the atmosphere was relaxed and caring.

The most impressive part of the service was the presence of an Aftercare Liaison officer. It is well known that patients are at the highest risk within 30 days of discharge from inpatient services or Emergency department. (Ref: Luxton, June and Comtois 2013) They concluded that repeated follow-up contacts appear to reduce suicidal behaviour.

Aside from following up on these patients, the Aftercare Liaison Officer has the following roles before the patient is discharged:

  1. Speaks, listens and connects to each child and adolescent patient. Educates them and their support system about warning signs of suicide, triggers, risk factors, protective factors and restriction of means of self-injury.
  2. Draws up a detailed Safety Plan with them and their carers.
  3. Helps them identify sources of social support (trusted adults) and develop personal resources through open conversations.
  4. Interface with other professional agencies (eg. for DBT) and community services that will help dilute their identity as a person diagnosed with a Mental Illness. For example, they match their interests to activities such as therapeutic horsemanship, a running group or a Mountain Teen Project.
  5. Engage their parents, families and friends and anyone they would like to involve.
  6. Use technology if possible – MY3App.

I don’t think we have this service in the UK. I know we don’t.

The one thing that is most important to me and worth living for is … to continually express my love for Saagar and help other parents do the same for their kids.

Come October

3/10/2019. 6 am: I am excited. At the airport, waiting to board my flight to Washington Dulles. Change to another flight to Manchester and then a taxi ride to Concord, New Hampshire. This is the first leg of my travels as a Churchill Fellow. I have checked in and am having a cup of tea. I have just come across this post from a young woman on Facebook:

“According to my local crisis team, I was ‘too articulate’ to be feeling suicidal.
As a writer, and someone who works in languages, I am a naturally very articulate person. Because I could speak so clearly about my thoughts and feelings, I was discharged from the crisis team as I didn’t fit the bill of someone suicidal, or indeed, of being mentally unwell enough to need their support despite evidence to the contrary.

The Papyrus text line allowed me to articulate how I felt (you don’t have any choice really when you’re using the text service, you have to ‘say’ it how it is!!), and that was delved into so much deeper with thoughtful questions, suggestions and recommendations that allowed me to get through a real low point and see that there was hope. At no stage did they reply with ‘sorry, you’re too articulate to be feeling the way you claim’.

Non-judgemental, kind, compassionate, a REAL life saver, especially in the current climate of NHS mental health cuts.”

Judgement. The ultimate wall. Even a positive judgement can be harmful. A missed opportunity. A lost life. Who fills the gaping holes created by ‘unfit for purpose’ services, NHS cuts and ignored carers?

Charities. Families. Friends.

The needs of young people are different. They need an active, positive and creative interaction to make sense of how they feel. They need to be heard and understood. They need to know in their hearts that they are deeply loved and cared for just the way they are. They need to know that things get better. Educating families is crucial.

4/10/2019

Today’s gem: Mayo Clinic video for parents. All parents of adolescents should see this.

No shame. Just love.

Last week I met Matt. A young man, calmly determined to share his story and open up a rainbow that would envelop the world and knit it closer together. A story of a glorious love, a damning shame and a tragic unnecessary death.

Matt and Naz met in Birmingham in the year 2000 and instantly fell in love. Matt Ogston and Dr Nazim Mahmood. Both men. Men in love. They tried having a relationship in that city but knew that if they wanted to live like normal people doing normal things, they’d have to move away. So, they did. Over the next 13 years they built and lived a fulfilled and happy life together in London. All this time they managed to hide their gayness from Naz’s family as it was guaranteed to create unhappiness.

One weekend Naz needed to go back to Birmingham for a family event. The question of his sexuality came up and he spoke the truth. As expected, his family reacted badly. He was told that he was living in ‘sin’ and his ‘condition’ was treatable. I cannot imagine how he must have felt. Deeply humiliated I guess. That day he must have known that now, he could never be the man he was born to be. His love for his fiancé would always be seen as sin by others he deeply loved.

He returned to London. To Matt. Two days later he ended his life.

In his utter devastation, Matt found the determination to do what he could, to stop religion from getting in the way of love. He set up the Naz and Matt Foundation.

“Our mission is to never let religion, any religion, come in the way of the unconditional love between parents and their children.”