I am not my diagnosis.

While I continue to struggle to figure out Twitter, forget how to update my website, get confused while recording podcasts, consistently get my innumerable passwords mixed up, stay oblivious about Instagram and Snapchat, the digital world gallops ahead.

Digital Interventions in mental health Conference 2017 was recently held in London. It explored topics across psychiatry, technology and culture to identify innovative ways of addressing mental health needs.

Dr Becky Inkster is a Neuroscientist, passionate about digital interventions in mental health, social media data analysis, genomics, molecular biology, and neuroimaging. She co-founded Hip-Hop Psych as she is passionate about working with hard-to-reach, disadvantaged groups and youth culture.

‘Views from the street’, ‘Prison transition tools’, ‘Beyond the bullets’ and ‘The Digital Psychiatrist’ are some of the workshops that were conducted at the above conference. The range of topics was rather fantastic. It was aimed at improving our understanding of how social media is helping to create and facilitate new spaces for mental health practices and support, exploring the benefits of social media and social networking to improve a sense of identity, self-expression, community building and emotional support through examining a few popular international examples. Participants and facilitators engaged in interactive sessions to understand how new tools for self-expression via pictures, videos, captions and short personal narratives can help break down the stigma surrounding mental health and perhaps even lead to more people seeking help. They explored how to empower young people to use social networks in a way that promotes their mental health and wellbeing, how to harness the power of social media to nurture mental health innovations that the future holds.

Impressive stuff. I carry on doing what I do. I write another article for the Huffington post – Darkness to light. I talk about my darling Saagar and emphasise the importance of us, the people, educating and empowering ourselves so that we can help ourselves and each other through the light of knowledge and empathy. I continue to speak with ordinary people living extra-ordinary lives. Here is a conversation with Sara Muzira, mother of the beautiful Simba. Both, mum and son are artists. She talks about the state of inpatient mental health services in her experience and things that can be made better for patients and their families. Thank you Sara.

 

 

 

 

 

 

 

 

 

 

Day 957

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At 26, she finally sought help. She is bright, has received fabulous education, is brought up in a stable, happy household and has travelled extensively. After graduation she got a great job in the city of London but came to realise it was not right for her.

After a tempestuous patch, she has landed on her feet. Great wisdom has come to her in abundance. She has discovered that her family is her strength. She can trust them. Her mother walks right beside her, growing with her, every step of the way. She now appreciates her dog more than ever before. A drive to the coast and a stroll by the sea with a loved one is not something she takes for granted anymore. Yoga is now a part of her daily routine. Gardening brings her peace. She spends her time colouring picture books and drawing sketches.

Her creativity is finding expression. Zaynah lives with Borderline Personality Disorder and writes a blog – Not a simple mind. Her life is not easy but it is a hundred percent authentic. She shares it generously. She is determined to help others. While Facebook constantly incites her to compare her life with that of others, she knows better. She can tell real from fake. She understands she is in recovery. It’s a zig-zag road but it’s good. Yes. All this learning at 26!

“Recovery isn’t about getting back to how you were before, it’s about building something new.” – Anonymous.

In the recording below, Zaynah talks to me about her diagnosis, her recovery and the changes in her life:

 

Day 938

Oooops! Sorry!

If a previously healthy man recognises that he is a huge risk to himself. If he takes himself to a mental health facility and pleads for help. If they admit him and then classify him as ‘low risk’ and leave him unsupervised. If he then goes on to end his life in the hospital within hours of being there. This has got to be wrong. One would think this to be nearly impossible. It isn’t. It happens.

A Canadian study published in 2014 on inpatient suicides concluded that “It is possible to reduce suicide risk on the ward by having a safe environment, optimising patient visibility, supervising patients appropriately, careful assessment, awareness of and respect for suicide risk, good teamwork and communication, and adequate clinical treatment.”

Recently, a Coroner’s report on an inpatient suicide found the same things that came out in Saagar’s case:
-Risk of suicide was not properly and adequately assessed and reviewed
-Transfer of verbal and written information was poor
-Risk assessment and quality of observation was poor
-Adequate and appropriate precautions were not taken to manage the risk of suicide
In addition, they found that previous recommendations on risk and environmental factors were not implemented adequately. This means that similar deaths had occurred before but nothing had changed.

How many people need to be sacrificed before something changes?
Ed Mallen, 18, died while he was on a waiting list.
Many thousands are still waiting!

Ruby is a lovely young lady who shares the joys of being on a waiting list, among other things. Here’s the link. This time it’s 18 minutes.
Thank you Ruby! We wish you well!!!

Day 932

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A Cast for a Pod?

When I was in India for a couple of weeks, I missed all the Archers and Desert Island discs. I couldn’t listen to BBC Radio 4 but was content in the knowledge that I could listen to these programmes when I got back as they would all be downloaded as Podcasts on my I-pad. While in the Himalayas, I attended a writing retreat where we talked about blogging and podcasting. I learnt that I could make podcasts of my own and put them on-line. I didn’t believe it but I liked the idea of trying it some day.

One of Saagar’s friends, Nate kindly came to cat-sit for us while we were away. He was home when we got back and it was a delight to have him around. I was assured of excellent technical assistance with him here and he very kindly agreed to be the first guinea pig. So, we got on with it and made a little recording this morning.

Here’s our first experimental, unscripted, unedited podcast. A brief conversation (8 minutes) between 2 amateur participants about what the world looks like from the standpoint of this young man. Comments, suggestions and volunteers welcome. 🙂