Ms Helplessness

During Saagar’s illness, I was helpless. Also, I was rubbish at asking for help. A few weeks into Saagar’s unrelenting and forever changing moods, I was baffled. I realised I couldn’t do this alone, I needed to ask for help. Most of my family lived in India so I needed to hurry up.

Looking back, I asked somewhat hesitantly, by sending a group e-mail to my family members in India. Some tried to help and couldn’t. Others didn’t try. Yet others kept mum. Some advised me to send him to India. Some couldn’t even pick up the phone. I was so panicked that I couldn’t think straight. It didn’t cross my mind that I needed support too. The fact that I was a hot shot doctor at a hot shot hospital did not help. At that point, I was simply his desperate mother.

I texted a distant uncle on Tuesday night to say I was really worried about Saagar and we needed urgent help. He lived 20 minutes away. He texted back to say he could only help on weekends. By Thursday, it was all over. I suppose none of us had the slightest inkling of the disaster that was hurtling towards us.

Helplessness was the darkest cloud there ever was. It was a humiliating beast of a thing. It had completely obliterated the way I saw myself – capable, resourceful. It had made me a stranger to myself. Again and again, it invaded from the past to leave me without oxygen. I imagined I would limp through the rest of my life, trying to get to a point of relief, of grace. There was no way of getting that ghost of helplessness off my back.

A few years after his death, on a warm quiet afternoon on a beach in Goa, I invited Ms Helplessness to sit with me. We sat cross legged on the wooden floor of the beach hut. We looked into each other’s eyes for a few still moments. With tears streaming down my face, I extended both my hands toward her, and she took them in hers, gently squeezing them and then loosening her grip. I steeled myself and looked harder into her eyes.

I hate you. I forgive you for nearly killing me once. Thank you for showing me I can’t control what happens.

Maybe there’s a power beyond us both, that rules.

Promise me, you won’t be so cruel again. Will you? She had her gaze fixed on the ground in front of us. A tearful silence ensued.  Then she stood up and walked away.

Stories are us.

Why are they here? These random strange-looking foreigners? One is white and the other we’re told is from the north of India. Wonder which is worse. At least one of them is easy to steel from. Surely the other is obnoxious. But she teaches English at the Primary school for free. Wonder what’s in it for her. Oh yes. She’s using our kids to learn Kannada for free. That must be it.

The minds of the villagers are desperately trying to make sense of what we’re doing here, in this remote village. The nearest airport is 5 hours’ drive away and the closest decent hospital, at least an hour from our village. We don’t speak the local language and hardly anyone speaks Hindi or English.

The first story of us was that I am a film director and Si, an actor. We’re scouting a suitable location to shoot a period drama. But then no camera or crew showed up. So, that was discarded.

The next tale was that we are here to set up a petrol station. That’s how people with connections in high places syphon off their black money. That fits, they believed, knowing nothing about us. But then no signs of construction appeared for months.

The next guess was that we want to open a bar and restaurant. As we are close to the highway, it’s a great place to open-up something for the travellers to rest and refresh. That didn’t seem to be happening either.

What can it be? Oh. They both have seriously grey hair. All their friends must be old. They must deeply empathise with old people. They must be planning an old people’s home. Well, no signs of that yet.

What are they about after all? The dogs and kids seem to love them. They seem like nice enough people. Maybe they’re planning to start an orphanage?  Don’t know. We’ll have to wait and watch.

Well, all they seem to be doing is planting more trees and making more compost and playing music to their plants, setting up irrigation systems and so on. Maybe they’re doing all the groundwork to ultimately grow cannabis.

Oh! How we need stories!

My road. And mine alone.

This is a village being a village. It has done me no wrong.

People are being people of all kinds and shapes and forms.

The mid-afternoon sun is being the sun, not an upstart.

Each one, a character in a story, playing its part.

Seeing them as villains and heros

is the naive mind assigning roles

To what is simply an Is-ness.

They are being them. They can’t be the other lot because they are not.

They have no will, no thought.

The stories that my mind makes up do. Yet, I hold them to be so so true.

I am learning they are not.

Gotta just walk.

I am the cause. I am the cause. I am the cause.

To know that the gaze of the Universe is me.

To be held within the fold of Here and Now of Divinity.

That’s all.

I wonder if that’s the journey.

To find me exactly where I started.

Completely new.

Joyland

Islam forbids suicide. It calls it a grave sin or ‘haraam’. It is viewed as taking away the gifts of life given by God. The Qu’ran says, trust God, have faith in the mercy of God and do not destroy life.

Joyland is a bold film, the first Pakistani feature to be premiered at Cannes in 2022.

It is about being alone in a crowd of expectations, being punished for having secret desires and accidentally making them seen. It is about someone else having to pay the price for our impulsive indiscretions, about how the bucket of shame topples itself on our heads as soon as we allow our innermost wants to be visible. It talks about how others can forcibly live their dreams through us, how our roles in society hold us firmly in one place and make us invisible as individuals, how we don’t have permission to be confused and are not allowed the time and space to think and talk things through, how life can be cluttered and noisy.  It’s about knowing you want to ‘run away’ but not knowing what that means or looks like. It’s about having to figure all this out, all by yourself.

It’s about treasuring moments of joy when they arise.

They could be hidden in the kitchen, on the Ferris wheel or inside the pages of an old book.

Thirteen weeks

Date of admission: 2nd Sept 2022 (Friday)

Date of Surgery:     5th September 2022 (Monday)

Date of demise:      2nd December 2022 (Friday)

Length of hospital stay: 13 weeks (91 days)

82 years old gentleman with no significant medical history was admitted for an elective Anterior Decompression of Cervical Canal Stenosis. He wanted to regain his confidence in walking and return to playing golf. He was not on any regular medications. He was not overweight, diabetic or hypertensive. He had no history of heart or lung disease. He lived independently with his wife in their flat on the second floor of a building that had no lift. He went out at least once or twice every day without much difficulty. He was an ardent and proficient bridge player. He drove his car to a friend’s birthday party one week before he was admitted to hospital.

He underwent an uneventful surgery but afterwards he lost power in all his limbs. They took him back to re-operate and make more space for the spinal cord that had swollen up, according to the MRI. That didn’t make any difference. His lungs were unable to work properly as the muscles of his diaphragm became weak. The domes of the diaphragm separate the chest from the abdomen. They play an important part in effective breathing and coughing.  Yes, surprisingly, the nerves to the diaphragm, originate from the neck (C3,4,5). They stopped conducting electricity. His lungs became unsupported.

His doctors said he’ll get better. It was just a matter of time. We needed to be patient. He needed help with his breathing so his windpipe was hooked on to a machine with numbers and waves and graphs and bleeps. He could not speak. No air came through his vocal cords.

Over the next few weeks he regained the sharpness of his mind and found that he was unable to breathe or speak, move or eat, turn from side to side in bed or have any control over his environment. He couldn’t really tell if it was day or night. The machines in the ICU made mad beeping sounds throughout the day and night and no one cared.

Patience wasn’t one of his best qualities but he was patient. Over the next few weeks he regained some strength in his forearms, enough to wave us hello and bye. Enough to blow us kisses and indicate that he was enjoying the music we were playing for him. Enough to bring his hand up to my ears and mouth the words “Nice ear-rings.” He learnt to communicate through his lip and arm movements. He said thanks to everyone who came to see him. He also said, “I love you” more than ever before. He smiled a lot despite his predicament.

His younger son is a writer and a storyteller. He told him a story of two well-known writers of modest means who visited a super-rich investment banker about something. In conversation the banker said he had great wealth, what did these two measly writers have? One of the writers said, we have something you will never have. “Really. What might that be?” He asked with a smirk.

“We have enough.”

After a moment, this patient father on Bed number 19 formed these words with his smiling lips, “I have enough.”

His lungs got infected five times in three months and the morale of his family went up and down like a yo-yo with him. No one knew what would happen next. In between, there were good times – going for a spin on a wheel chair, bowing to the statue of Buddha down the corridor, having bits of tomato-ketchup-flavoured-pringles with tiny sips of Coke, watching sparrows on frangipani trees. But this was not his chosen way of life. He had had enough. His heart had had enough. It stopped. The time to say good-bye left his doctors and nurses in tears too.

Ninety-one days of pure love and deep suffering. The former remains while the latter is done.

May there be peace for all beings everywhere.

“What will survive of us is love.” – Philip Larkin.