Day 969

Caffeine are Us

At the Delhi International Airport, leaving home, I usually am sad to be leaving my folks. But on this occasion I felt like an uplifted version of myself. Positively happy. Buzzing. Most uncharacteristic. Something was not right, if you know what I mean. I thought back to what had gone on in the few preceding hours. Well, the only new thing was that just before leaving home, I had a glass of ice-coffee that my Mum had made for us. It was most welcome on a warm day like that. That was the first time I had coffee in more than 10 years.

Here was my answer. Saagar used to love Mocha Frappucino. I thought it was just the sugar hit he liked but now I know it is a combination of the coffee, the coolness and the calories. For some, the cream on top. I had just found a ‘back-up’ plan for my blues. It was a tried and tested remedy.

Since last weekend the temperatures have completely justified a generous dose of ice-coffee and we’ve indulged every day.

This is how we make 2 glasses :

Medium strength coffee: 200 mls
(While hot, dissolve 2 heaped teaspoons of dark muscavado sugar in it and allow to cool to room temperature)
Cold Milk: 1 glass
Ice cubes: 14-16

Blend the coffee and sugar mix in a blender.
Add the milk. Blend again
Add about 12 ice cubes. Reblend.
Pour into 2 tall glasses and add the other 1-2 ice cubes in each glass.
For extra luxury, add cream or vanilla/chocolate ice-cream to the mix.
If you drink properly, you can even get yourself a nice moustache. I am hooked. Can hardly wait till tomorrow.

(I am not going to be a numpty and post a picture of ice-coffee. I think everyone knows what it looks like.)

Day 968

Artspace

‘Art should comfort the disturbed and disturb the comfortable.’ – Cesar A. Cruz

Yesterday’s play on ‘Shifting perspectives’ through theatre and today’s trip to the Dragon café brought this truth home.

The work done by the patrons of the Dragon café was compiled into a big black book called ‘Artspace’. Looking through it was an immersive experience. Some brought me comfort and some disturbed me, making me a mixture of ‘comfortable’ and ‘disturbed’.
I shall let you find out how they make you feel.

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Certain events or times of day are more difficult – like being alone late at night, or having arguments. During these times it can often be more difficult for us to feel a sense of hope, to feel connected to the idea of safety, to feel our own resilience. This is the times when ‘self-care’ is essential – taking time out to be kind to ourself, to find activities that feel good, or allow us to connect with ourself again. Self-care is about caring for ourself, inside and out.

Focusing on the present moment, the present activity, whilst allowing thoughts and feelings to just be – has a long history of helping people with their mental wellbeing. By allowing ourself to become absorbed in the moment it’s possible to feel a sense of calm and focus that can distract from painful thoughts and feelings. No wonder colouring books for adults and kids alike are taking a special place on book store shelves.

Here’s PAPYRUS’ bright idea

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Day 967

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One of the actors at the above workshop, who is also a mentally ill patient in recovery spoke about his insights, “I realised that as long as I depend on the State to look after me, I will be met with the lowest common denominator. This brought me to the conclusion that I may not have control but I have agency.”

After I got home, I looked up the meaning of ‘agency’ to figure out exactly what he meant. Agency is an ‘action or intervention producing a particular effect’. For example, many infectious diseases are caused by the agency of insects. Synonyms to this effect are: influence, power, effect, force, means, channels, routes, mechanisms and techniques.

In effect, he was referring to ‘self-help’. He was saying, “I have the power to change my situation.” It was inspiring for me to hear him say that. That statement reinforced the message of the workshop – there is a very thin line between the well and the ill. Role reversals are common. Sometimes visible. Often not.

I came away from there with a mixed bag of feelings. On the one hand, I could clearly see the daily struggles of mentally ill patients and on the other, their brilliance shone through. I wonder how Saagar would have been, had he got through that big dip.

May the force be with you. And me.

Day 966

2 (1)

It seems like that was another lifetime. Some moments however last forever. My mind has been dancing in overlapping elliptical, circular, zig-zag and squiggly shapes between the remotest past and the far future and deep inside this bottomless present moment. I find gems scattered all around. Today the moment when I first saw his face shone the brightest. I picked it up. I held it in both my hands, looked at it for a while, felt it, kissed it and held it close to my heart. This is where he lives. In my heart, in the past, the future and the Now.  That moment from another lifetime is mine again.

Experiences can only be experienced. Not explained. Ones who has experienced it know it, ones who haven’t can have a guess. Some songs say it all. This one does. It speaks to me. It’s a song of love. Roberta Flack sings to my heart. She knows how I felt the first time ever I saw his face.

“The first time ever I saw your face
I thought the sun rose in your eyes
And the moon and the stars were the gifts you gave
To the dark and the endless skies my love
To the dark and the endless skies

The first time ever I kissed your mouth
I felt the earth move in my hand
Like the trembling heart of a captive bird
That was there at my command my love
That was there at my command my love

And the first time ever I lay with you
I felt your heart so close to mine
And I knew our joy would fill the earth
And last ’till the end of time my love
And it would last ’till the end of time

The first time ever I saw your face
Your face, your face.”

Day 965

Guidelines, guidelines everywhere…

NICE guidelines on ‘Bipolar Disorder in Adults’ regarding the role of families and carers state:

“Quality standards recognise the important role families and carers have in supporting adults with bipolar disorder. If appropriate, health and social care practitioners should ensure that family members and carers are involved in the decision‑making process about investigations, treatment and care.”

“Why is it that some psychiatrists sometimes don’t fully appreciate the views of carers and involve them in the care of a patient when NICE guidelines clearly state that it should be otherwise?” I asked a senior psychiatrist casually during a recent conversation. “Traditionally” he said, “doctors were sons and daughters of doctors, their friends and spouses were often doctors and those were the people they spoke with. Carers didn’t fit into that box. It’s a cultural thing, still lingering. Hardest thing to change – a mindset.”

India gets criticised for its caste system. In other countries it exists in other forms – the power dynamic between different groups of people in different strata of society. As the Grenfell tragedy unfolds, I see how the management didn’t  take the resident’s concerns seriously. What is the nature of Tenant-Management relationship? Who is disadvantaged?

Any number of guidelines cannot change deep-rooted, unconscious biases. Only humanity can.

Mrs May visited the site but couldn’t speak with the residents for ‘security’ reasons and because she is very tired after her recent election campaign. Being with them would have taken compassion. And humanity. I wonder if this was a Mayfair tower wether she would have felt more secure and less tired.