grieving

Shiny-new-object Syndrome

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If you’d ask me, what’s the one thing I want to do before I die, I’d say – write my book.

I have been working on it for years but it fails to materialise because there is work, home, travel, putting away summer clothes, family, packing, births, films, reports, reading, e-mails, deaths, Diwali, slumber, too-hot, too-cold, Christmas, don’t-feel-like-it, may-be-later, not-inspired, not-now and the list goes on to fill five pages.

This blog is a friend, a punch-bag, a vent, a discovery, an exploration, a path and a ready distraction. It is my creative play-ground, seemingly under my control and gives me instant gratification – writing a few hundred words within an hour or two and hitting ‘Publish’. Done.

It takes tonnes of time, sweat, blood and gut-wrenching angst to get the first draft of a book done. Things to think about – the setting, characters, voice, pace, first-person or not, genre, authenticity, shouldn’t sound preachy, shouldn’t be too emotional, shouldn’t be too short or too long, chapter-isation, privacy, audience and mountains more. It needs reworked, edited and rewritten many times over till it’s polished and ready. It needs to pass through expert scrutiny before it gets anywhere near ‘Publish’. It needs my full attention.

I’ve spent the last three days at a little village called Satkhol taking part in a Creative Writing Course at The Himalayan Writing Retreat. It’s been an exercise and a luxury. The air is pristine, the hospitality impeccable, the space serene, the teaching clear and the long range of snow-capped Himalayas in the near distance, stunning. This environment elevates me and brings me home to my truth. So, distractions will have to go. For now, I shall take a break from blogging to focus on the book. Stay in touch. I will resume when I have made a submission to a literary agent. Thank you for being here with me. I have felt your warmth. It has sustained, inspired and encouraged me for as long as I have been with you. Thank you. This is no more than a pause.

May each new day and the coming New Year bring you clarity and unveil the joys that lie within your heart.

“Doesn’t everything die at last and too soon?

Tell me, what is it you plan to do

With your one wild and precious life?”

                                    -an excerpt from The Summer Day by Mary Oliver.

Walking home.

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Every time we visited him in the Intensive Care Unit, he mouthed the line “Just take me home.”

We wanted the same. It was our prayer in every moment that we would be able to take him home. But how would we transport the things that were attached to him? The things on which his life depended – monitors, strong medications being infused through syringe pumps and the beeping robot that was supporting his lungs? Even if we transported those, who would man these gadgets and modulate them as required? The first step was to get him to breathe by himself. It was happening in bursts. Some days he looked so bright that it was easy to believe that it wouldn’t be too long before we could. Other times he seemed tired, simply from the effort of breathing. Of course, they were trying to help him come off the ventilator but sometimes it was too much for him. Despite their good intentions and gentle demeanour, it was too much for him.

One of the young residents encouragingly said, “Sir, we want to send you home soon. That’s why we’re making you work hard.” He pointed skywards with a wry smile, “That way?”

In the end, it was a long, slow goodbye.

“We’re all walking each other home.”

– Ram Dass.

Thirteen weeks

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Date of admission: 2nd Sept 2022 (Friday)

Date of Surgery:     5th September 2022 (Monday)

Date of demise:      2nd December 2022 (Friday)

Length of hospital stay: 13 weeks (91 days)

82 years old gentleman with no significant medical history was admitted for an elective Anterior Decompression of Cervical Canal Stenosis. He wanted to regain his confidence in walking and return to playing golf. He was not on any regular medications. He was not overweight, diabetic or hypertensive. He had no history of heart or lung disease. He lived independently with his wife in their flat on the second floor of a building that had no lift. He went out at least once or twice every day without much difficulty. He was an ardent and proficient bridge player. He drove his car to a friend’s birthday party one week before he was admitted to hospital.

He underwent an uneventful surgery but afterwards he lost power in all his limbs. They took him back to re-operate and make more space for the spinal cord that had swollen up, according to the MRI. That didn’t make any difference. His lungs were unable to work properly as the muscles of his diaphragm became weak. The domes of the diaphragm separate the chest from the abdomen. They play an important part in effective breathing and coughing.  Yes, surprisingly, the nerves to the diaphragm, originate from the neck (C3,4,5). They stopped conducting electricity. His lungs became unsupported.

His doctors said he’ll get better. It was just a matter of time. We needed to be patient. He needed help with his breathing so his windpipe was hooked on to a machine with numbers and waves and graphs and bleeps. He could not speak. No air came through his vocal cords.

Over the next few weeks he regained the sharpness of his mind and found that he was unable to breathe or speak, move or eat, turn from side to side in bed or have any control over his environment. He couldn’t really tell if it was day or night. The machines in the ICU made mad beeping sounds throughout the day and night and no one cared.

Patience wasn’t one of his best qualities but he was patient. Over the next few weeks he regained some strength in his forearms, enough to wave us hello and bye. Enough to blow us kisses and indicate that he was enjoying the music we were playing for him. Enough to bring his hand up to my ears and mouth the words “Nice ear-rings.” He learnt to communicate through his lip and arm movements. He said thanks to everyone who came to see him. He also said, “I love you” more than ever before. He smiled a lot despite his predicament.

His younger son is a writer and a storyteller. He told him a story of two well-known writers of modest means who visited a super-rich investment banker about something. In conversation the banker said he had great wealth, what did these two measly writers have? One of the writers said, we have something you will never have. “Really. What might that be?” He asked with a smirk.

“We have enough.”

After a moment, this patient father on Bed number 19 formed these words with his smiling lips, “I have enough.”

His lungs got infected five times in three months and the morale of his family went up and down like a yo-yo with him. No one knew what would happen next. In between, there were good times – going for a spin on a wheel chair, bowing to the statue of Buddha down the corridor, having bits of tomato-ketchup-flavoured-pringles with tiny sips of Coke, watching sparrows on frangipani trees. But this was not his chosen way of life. He had had enough. His heart had had enough. It stopped. The time to say good-bye left his doctors and nurses in tears too.

Ninety-one days of pure love and deep suffering. The former remains while the latter is done.

May there be peace for all beings everywhere.

“What will survive of us is love.” – Philip Larkin.

I fold.

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My latest love is folding. The act of arranging a piece of paper or cloth in a way that it occupies less space and looks neat. Layering one part of it on top of another to make it compact. Apparently, molecules, tents, parachutes, rocks and beds fold too. But I am more inclined towards an un-stitched piece of material. Bed sheets and towels are my favourites but I don’t mind table-covers, handkerchiefs and face-towels.

Firstly, it’s the subtle fragrance of moist lavender fabric conditioner, still fresh from the wash. When I open my arms out wide to hold the margins, the top edge rises right up to my nose and the aroma gets right inside my head. Exhilarated by that, my fingertips follow the margins to find the corners. Sometimes the rim curls up on itself and needs to be straightened, patted back repeatedly on a flat surface. The corner often falls to the floor and it takes a deep forward bend to lift it up. These are the in-built stretching advantages for the upper and lower body.

The corresponding corners are brought together and the first large fold created which gets progressively smaller with every corner alignment, until I have a beautiful stack-able rectangle in my hands, ready to land on its shelf in the airing cup-board along with and on top of its contemporaries in white, blue, orange and green. If dried on a clothes-line, it doesn’t need ironing. That’s the energy saving advantage.

Folding a sari is an art-form. I learnt it from my mother. Here, the mouth and teeth assume an active role. The sari is an un-tailored stretch, at least six yards long and about forty-two inches wide. Before anything I need to ensure that I have a bed nearby so that I can lay the length of the material there while I work on the edges and corners. After figuring out which horizontal edge is up and which surface goes on the outside, I start from the top left corner. The rest of the routine has to be witnessed to be believed but it’s the middle point on the top edge of the sari that has been folded twice over that is held between the incisors for a short time. The silk ones have a habit of going all askew if not held and laid perfectly and lovingly flat. A real treat for the hands and arms.

Oh. The satisfaction. I wish all the ruffles and crinkles of the world could be folded neatly away and patted out with warm hands.

Yesterday I found myself putting away a pashmina that I had used once since it was dry-cleaned. In default mode, I was making the folds along the same lines, in the same direction as the dry-cleaner had done. It was strangely pleasurable and worrying.

Wonder where this new love of mine will take me.

Unspeakable.

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Age: 82 years.

Sex: Male

Residence: Bed number 19. Intensive Care Unit.

Duration of stay: 70 days and on-going.

Last heard speaking 68 days ago.

Up and down with repeated pneumonias, rising and falling need for support with breathing and blood pressure, weeks of starting and stopping a plethora of antibiotics, kidneys pushed to their limits, sepsis coming and going, metabolic state constantly fighting off infections. This goes on and on and we, his family go up and down with him. In between spells of invasions by nasty bugs, he mouths words, some of which we can decipher and some we can’t. It’s excruciating on both sides when he gives up after a few times of trying to be understood.

“I want to speak.”

Last evening, he insisted silently, sitting up in his hospital bed. His lips firmly formed the shapes of those words. After a quick consultation with the doctor in-charge, we arranged a brief attempt to enable him to speak. We did the appropriate suctions, explained everything to him and blocked his tracheostomy manually with a thumb covered in a sterile glove, to enable the small amount of air in his lungs to leave through his vocal cords, which have not been used for nearly ten weeks.

This man who used to have a big voice, spoke four languages and sang sweet songs had been rendered wordless. In a somewhat broken, hoarse, unrecognisable semi-voice he whispered, “I am trying.”

There were tears. Lots of them. Of love and all the unspeakable stuff.

His eyes were two bright lamps in a poor man’s hut. Oh! To be understood!